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Living with a stoma
Stoma I have been told my debulking surgery I will lose my bowel has any one else going through this and living with a stoma and how bad is it to live with.
Stoma I have been told my debulking surgery I will lose my bowel has any one else going through this and living with a stoma and how bad is it to live with.
Stepdancer
in
My Ovacome
4 years ago
My brothers Crohn’s
My brother is now 32, diagnosed at 17. His consultant says he is the worst case of Crohn’s they have ever treated in NI. Over the years he has had many surgeries and treatments. Last year he had Keyhole surgery and resulted in a stoma. He recovered but soon after seemed to develop an abscess type thing
My brother is now 32, diagnosed at 17. His consultant says he is the worst case of Crohn’s they have ever treated in NI. Over the years he has had many surgeries and treatments. Last year he had Keyhole surgery and resulted in a stoma. He recovered but soon after seemed to develop an abscess type thing
thompsond29
in
Crohn's and Colitis Support
4 years ago
In focus: diet - introduction
Hello, everyone This month in our ‘Health in Focus’ posts, we’ll be looking at diet. Often, people diagnosed with cancer make changes to their diet because they want to support their health. In these posts, we’ll look at some of the types of food that we are asked about on the support service, whether
Hello, everyone This month in our ‘Health in Focus’ posts, we’ll be looking at diet. Often, people diagnosed with cancer make changes to their diet because they want to support their health. In these posts, we’ll look at some of the types of food that we are asked about on the support service, whether
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
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Living with stoma bag
Hi This past week during OV IV cancer debulking I was given an iliostomy My surgery was a cancer removal success “visually” HOORAY !!! and the stoma is REVERSIBLE Overall doing Ok just working on getting stoma output regulated I have had three chemos and have three more to go so either at end of
Hi This past week during OV IV cancer debulking I was given an iliostomy My surgery was a cancer removal success “visually” HOORAY !!! and the stoma is REVERSIBLE Overall doing Ok just working on getting stoma output regulated I have had three chemos and have three more to go so either at end of
Supermary
in
Living with a Stoma
4 years ago
No need to worry if i can do it anyone can hand on heart
Nothing to worry about. I was 63 when i had a non reversible ileostomy and done great and now 70. Take things easy for around six weeks and do as told. don't over do things that's when problems occur. Same with regard to exercise etc. Eat little to start and build up food intake over a period of time
Nothing to worry about. I was 63 when i had a non reversible ileostomy and done great and now 70. Take things easy for around six weeks and do as told. don't over do things that's when problems occur. Same with regard to exercise etc. Eat little to start and build up food intake over a period of time
smaller
in
Living with a Stoma
4 years ago
I have had a total hysterectomy including ovary removal can it come back?
So February this year I had a major operation to remove everything ovaries, womb the lot. Plus bowel surgery. I had a stoma until August and I have recently had an operation to reverse it back. Just the other day I noticed I had similar symptoms to when I had endometriosis. I’m very scared that it’s
So February this year I had a major operation to remove everything ovaries, womb the lot. Plus bowel surgery. I had a stoma until August and I have recently had an operation to reverse it back. Just the other day I noticed I had similar symptoms to when I had endometriosis. I’m very scared that it’s
disneyanna
in
Endometriosis UK
4 years ago
Never ever give up
Stage 4 endometriosis plus plus plus . Surgeons said worst case they had ever seen . Bowel resection, sepsis and stoma. However look what we have got. Never give up on your dreams
Stage 4 endometriosis plus plus plus . Surgeons said worst case they had ever seen . Bowel resection, sepsis and stoma. However look what we have got. Never give up on your dreams
Jo15
in
Endometriosis UK
4 years ago
Virtual support from Ovacome and Ovarian Cancer Action this week
Hello This is to let you know about the online events on our programme this week. Stoma Group - Tuesday 15 September, 11am-12pm https://www.ovacome.org.uk/Event/stoma-group-event Is ovarian cancer hereditary in my family? - Tuesday 15 September 12.30-1.30pm https://www.ovacome.org.uk/Event/is-ovarian-cancer-hereditary-in-my-family
Hello This is to let you know about the online events on our programme this week. Stoma Group - Tuesday 15 September, 11am-12pm https://www.ovacome.org.uk/Event/stoma-group-event Is ovarian cancer hereditary in my family? - Tuesday 15 September 12.30-1.30pm https://www.ovacome.org.uk/Event/is-ovarian-cancer-hereditary-in-my-family
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
Possible stoma?
Hi all, During my consultation I was pleased to be told that the risk of a stoma although increased due to how my bowel is attached near rectum, would be low. Surgeon said he was confident that it would not be needed. However, I have just received the letter he has sent to my endo socialist to proceed
Hi all, During my consultation I was pleased to be told that the risk of a stoma although increased due to how my bowel is attached near rectum, would be low. Surgeon said he was confident that it would not be needed. However, I have just received the letter he has sent to my endo socialist to proceed
AtomicHair
in
Endometriosis UK
4 years ago
Delicate??????
Forget the word ‘delicate’ when discussing bowel problems!!!! Everybody has bowels, and bowel activity. I have had systemic sclerosis for thirty years. I have had five operations, and have ended up with a colostomy, and mesh for a hernia. All this because of slow motility, and lack of peristalsis in
Forget the word ‘delicate’ when discussing bowel problems!!!! Everybody has bowels, and bowel activity. I have had systemic sclerosis for thirty years. I have had five operations, and have ended up with a colostomy, and mesh for a hernia. All this because of slow motility, and lack of peristalsis in
Mumso
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Scan results for ovarian cancer stage 3
Hi again. Just had my scan done a d doctors says some shrinkage in tumour in ovary.the said tge could operate and i would have a stoma bag put in. Disease stable in diaphragm? The operation scares me i dont know what to do.after op i will have 2 more chemo Will they take all out ovaries womb tubes and
Hi again. Just had my scan done a d doctors says some shrinkage in tumour in ovary.the said tge could operate and i would have a stoma bag put in. Disease stable in diaphragm? The operation scares me i dont know what to do.after op i will have 2 more chemo Will they take all out ovaries womb tubes and
Anamcara63
in
My Ovacome
4 years ago
Clear cell cancer - surgery only?
Hi everyone. I am new here. Would be grateful to hear anyone who has had surgery only for clear cell ovarian cancer. I had surgery in March and was diagnosed stage 3B, but oncologist advised chemo not proven to be effective and with added issues with COVID I opted not to have chemo. Unfortunately recurred
Hi everyone. I am new here. Would be grateful to hear anyone who has had surgery only for clear cell ovarian cancer. I had surgery in March and was diagnosed stage 3B, but oncologist advised chemo not proven to be effective and with added issues with COVID I opted not to have chemo. Unfortunately recurred
Belladrum
in
SHARE Ovarian Cancer Support
4 years ago
IBS - really diverticulitis?
I used to have IBS - for around 13 years - then had perforated bowel and stoma fitted 6 months ish ago - this was sudden and life threatening -for those with these kinds of issues for years advice from me would be to get a ct scan to find out if you have diverticulitis - that's what must have caused
I used to have IBS - for around 13 years - then had perforated bowel and stoma fitted 6 months ish ago - this was sudden and life threatening -for those with these kinds of issues for years advice from me would be to get a ct scan to find out if you have diverticulitis - that's what must have caused
cristinita
in
IBS Network
4 years ago
Virtual support events from Ovacome this week
Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis - Tuesday 18 August 2-2.45pm https://www.ovacome.org.uk/Event/gentle-home-exercise-class Stoma Group - Wednesday 19 August 11am-12pm https
Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis - Tuesday 18 August 2-2.45pm https://www.ovacome.org.uk/Event/gentle-home-exercise-class Stoma Group - Wednesday 19 August 11am-12pm https
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
How to cope?
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
My symptoms began truly way back at 8 year old, my first period landed me in hospital. I suffered massive traumas, abuses at the hands of several pervert men, abuses from parents, bullied etc... how i made it this far is beyond me. Edit: These abuses were in childhood and are for context that i suffered
Hidden
in
Endometriosis UK
4 years ago
No stoma
Hi. First of all I hope you are all feeling well and positive. And to thank you all for the reassurance re the possible stoma. I had my debulking op on Tuesday pm and it all went well and no stoma after so much energy wasting in worrying about it!! Dr trying go get me out today if time allows and if
Hi. First of all I hope you are all feeling well and positive. And to thank you all for the reassurance re the possible stoma. I had my debulking op on Tuesday pm and it all went well and no stoma after so much energy wasting in worrying about it!! Dr trying go get me out today if time allows and if
LesleyGB
in
My Ovacome
4 years ago
Terrible letter, good result.!!!
Hi, for those of you who supported me with sound advice (thanks so much) l thought l would share with you the outcome of my abnormal routine bowel screening. l finally had a phone call to have a Colonoscopy but l did not want any invasive procedure if it wasn't needed so l asked for a CT of the bowel
Hi, for those of you who supported me with sound advice (thanks so much) l thought l would share with you the outcome of my abnormal routine bowel screening. l finally had a phone call to have a Colonoscopy but l did not want any invasive procedure if it wasn't needed so l asked for a CT of the bowel
kefalonia1
in
British Heart Foundation
4 years ago
Is laparoscopy worth it if I'm not in severe pain? (Severe endo)
2 years ago now I started getting mild pains and UTI symptoms. After multiple dipstick tests (that showed no UTI) I was referred to gynae, then an ultrasound (2 cysts and adhesions), then an MRI (severe endo all over the bowel, ovaries and bladder). I've been put on Triptorelin shots to prepare for the
2 years ago now I started getting mild pains and UTI symptoms. After multiple dipstick tests (that showed no UTI) I was referred to gynae, then an ultrasound (2 cysts and adhesions), then an MRI (severe endo all over the bowel, ovaries and bladder). I've been put on Triptorelin shots to prepare for the
slopp
in
Endometriosis UK
4 years ago
Here we go again!
I managed to get the first flight home from Portugal on 1st July. Since then I’ve been having all sorts of problems with my tummy. I have a stoma and it’s been unpredictable and painful. My CA125 has gone from 30 during chemo to 70 after chemo (prescribed Leterazole) and is now in the 100s. Obviously
I managed to get the first flight home from Portugal on 1st July. Since then I’ve been having all sorts of problems with my tummy. I have a stoma and it’s been unpredictable and painful. My CA125 has gone from 30 during chemo to 70 after chemo (prescribed Leterazole) and is now in the 100s. Obviously
Lockygill
in
My Ovacome
4 years ago
What products help you most with your PRD symptoms?
Hi, I volunteer for PRDA as a fundraiser, and I am keen to get businesses to donate to PRDA, especially those that supply products that people with Pelvic Radiation Disease find particularly useful. Please could you reply with any information about your medication, medical products (such as continence
Hi, I volunteer for PRDA as a fundraiser, and I am keen to get businesses to donate to PRDA, especially those that supply products that people with Pelvic Radiation Disease find particularly useful. Please could you reply with any information about your medication, medical products (such as continence
PurpleIris47
Community Pioneer
in
Pelvic Radiation Disease Association
4 years ago
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