Experiences with

Ostomy belt

Hello friends, Seeking advice to support my dad with advanced PC. Good news, he just finished Pluvicto (6 rounds) and his PSAs are below 1. Bad news, he has literally had one UTI after another for about 18 months. After being hospitalized multiple times for them, the doctors started testing him

I had my first laparoscopy in November where I was diagnosed with severe endometriosis and told I had endometriosis and my ovary was also stuck to my bowel. After my surgery the surgeon said I would probably need a stoma and a hysterectomy and then left the room! Since then my gynaecology follow up

Hi I was diagnosed with osteoporosis in February this year after having a bone density scan. I was just about to start taking ibandronic acid when I found out I had colorectal cancer so I was worried about side effects of the ibandronic acid and didn't take it until November.I was given an ileostomy

Hi everyone.Ralph had trachy changed again yesterday (Thursday), a few later than normal, to avoid being due at Christmas. Consultant pleased he's capping 7 hours a day, but now wants him to get to capping all his waking hours if he can. NOT to do it while sleeping in case he stops breathing. Next appointment

Hello, my Dad had emergency surgery yesterday due to a complete blockage of the bowel caused by a lesion. This is a complete shock to us as although he had been feeling ill for a week or so and Gp was just starting investigation, we didnt even know he had a lesion.They had to remove most of his large

I don’t know where to start! I’ve struggled with crippling period pain for years to the point of passing out. It’s like labour. 18mths ago an MRI diagnosed me with deep infiltrating endo, into the rectum, fibroids, chocolate cysts and adenomyosis. In recent months I’m struggling daily with discomfort

Hello All This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 19 November Worcestershire ovarian cancer support group between 11:00am - 1:00pm https://www.ovacome.org.uk/Event/worcestershire-group

I have had Radiation induced lumbar plexopathy (RILP) for 50 years ever since I received pelvic radiation after a pollop removal. At the time it was suggested I could have radiation just in case anything had escaped although the doctors thought they had removed everything (the pollop had become fractured

Hi everyone, this is a bit of a different post for me and please let me know if this isn't allowed. Basically, since my first surgery in June my symptoms have not got any better, in fact some of them are worse and I have recently found out that the surgeon who did my lap (who told me she removed all

Hi, I’m really worried my stoma has sucked itself back inside so now it’s flat to my skin no dongle bit 😭 I don’t know why this happened I was in a lot of pain last night and naturally it’s sore but I changed it after my bath yesterday and it was fine but now today I changed it and it’s now not protruding

Hi, I’m really worried my stoma has sucked itself back inside so now it’s flat to my skin no dongle bit 😭 I don’t know why this happened I was in a lot of pain last night and naturally it’s sore but I changed it after my bath yesterday and it was fine but now today I changed it and it’s now not protruding

Hi, I’m really worried my stoma has sucked itself back inside so now it’s flat to my skin no dongle bit 😭 I don’t know why this happened I was in a lot of pain last night and naturally it’s sore but I changed it after my bath yesterday and it was fine but now today I changed it and it’s now not protruding

I have struggled with infertility since I was 18. Tried to conceive for 12 years. I was diagnosed with PCOS and mild endometriosis in 2012, I finally got pregnant in 2023 but sadly my baby passed away at 5 days old in February 2024. I am now back to trying to conceive again but since been told I have

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 14 October - Monday monthly meet-up group between 4:00pm - 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday

So I seen a new gynae today went through my history explained everything, she was then trying to say it didn’t sound endo related, she then carried out examinations and then internal examinations which I cried due to the pain and have had severe bleeding since, after the examinations we then chatted

Hi, must be a month since our last post, as Ralph is having his trachy changed again next Thursday and that's every 6 weeks He got the RIG out of his tummy 4 weeks ago, no problem at all. She came to the house and did it and thankfully took the loads of syringes back with her. They're all individually

I was diagnosed stage 4 in April was told I was inoperable but after 4 chemos the surgery went ahead in August, which they tell me was successful but I had so much removed and ended up with a stoma . Due to restart chemo Monday, then due to BRCA gene will be on olaparib. I really struggle mentally with

I just got home from hospital after a 2 and a half week nitemare stay in hospital after very complicated surgery to remove my whole colon. I was OK in hospital because I couldn't get any sleep but the past 2 nights I'm that tired I've woke up and my bag has leaked all over the place my poor wife is shattered

I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell! I would

I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist