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Ostomy belt
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A somewhat overdue update.
A lot has happened since my last post. I had a total hysterectomy (The whole factory is gone now), omenectomy, and low anterior resection of my bowel near the rectum as part of my surgical debulking on January 20th. I initially healed well from it, but ended up back in the hospital January 31st when
A lot has happened since my last post. I had a total hysterectomy (The whole factory is gone now), omenectomy, and low anterior resection of my bowel near the rectum as part of my surgical debulking on January 20th. I initially healed well from it, but ended up back in the hospital January 31st when
mogwaicat
in
My Ovacome
7 years ago
Out the other side!
So 2 days after surgery - sitting in the chair rather than bed. It was adhesions causing the blockage - no visible disease and no stoma - what a relief. Thank you for all of your good wishes. Still in the critical care ward but feeeling much better today. Yesterday was excruciating as they had to stop
So 2 days after surgery - sitting in the chair rather than bed. It was adhesions causing the blockage - no visible disease and no stoma - what a relief. Thank you for all of your good wishes. Still in the critical care ward but feeeling much better today. Yesterday was excruciating as they had to stop
Beckyjh
in
My Ovacome
7 years ago
cronic constipation
i have and ostomy for no good reason it does not work. i have caonstapation real ba for years and still do . started to take constella ,it works but mostly all watery some stool anyone else have that problem?
i have and ostomy for no good reason it does not work. i have caonstapation real ba for years and still do . started to take constella ,it works but mostly all watery some stool anyone else have that problem?
ggerry
in
IBS Network
7 years ago
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Surgery this week
Following an appointment with a specialist today my sister is scheduled for surgery on Wednesday. Initial staging is a 4 because of the ascitis but could be downgraded to a 3 once everything is out and looked at. A stoma has been mentioned as a worst case scenario. The other thing she was told is it
Following an appointment with a specialist today my sister is scheduled for surgery on Wednesday. Initial staging is a 4 because of the ascitis but could be downgraded to a 3 once everything is out and looked at. A stoma has been mentioned as a worst case scenario. The other thing she was told is it
Seavccg
in
My Ovacome
8 years ago
Anyone have experience of stoma bags?
Hi everyone. I'm Cath and new here and hope you don't mind me asking this: I need to gave a full hysterectomy in six months as a result of large cysts and kissing ovaries. There is a high chance that damage to my bowel will occur and I will need a stoma etc for a while afterwards while my bowel recovers
Hi everyone. I'm Cath and new here and hope you don't mind me asking this: I need to gave a full hysterectomy in six months as a result of large cysts and kissing ovaries. There is a high chance that damage to my bowel will occur and I will need a stoma etc for a while afterwards while my bowel recovers
CathKraken
in
Endometriosis UK
8 years ago
Reaccurance
Hi. Ladies, l was diagnoses July 2015 had no debulking surgery but with stoma. I went through chemo, and 12 treatments of Aavastin with no major problems. I started to feeel very tired and last I had a very mini I stroke, right hand and slight slurred speech. All nearrl. Back to normal' was admitted
Hi. Ladies, l was diagnoses July 2015 had no debulking surgery but with stoma. I went through chemo, and 12 treatments of Aavastin with no major problems. I started to feeel very tired and last I had a very mini I stroke, right hand and slight slurred speech. All nearrl. Back to normal' was admitted
valo
in
My Ovacome
8 years ago
Hi
Hi everyone My daughter is 9 years old and has an ace stoma since she was 5 years old. She is undiagnosed. It has been a very long journey and we struggle most days with her washouts.
Hi everyone My daughter is 9 years old and has an ace stoma since she was 5 years old. She is undiagnosed. It has been a very long journey and we struggle most days with her washouts.
Kellywatson
in
ERIC
8 years ago
Severe endo. Choice of ovary removal or bowel surgery
Had quite a shock when I went back to my surgeon this week. He confirmed my diagnosis was severe endometriosis. I had though it was mild to moderate. He had warned me of the need for more surgery which I hadn't been keen on. I had started to brace myself for this bowel op after the sigmoidoscopy and
Had quite a shock when I went back to my surgeon this week. He confirmed my diagnosis was severe endometriosis. I had though it was mild to moderate. He had warned me of the need for more surgery which I hadn't been keen on. I had started to brace myself for this bowel op after the sigmoidoscopy and
Starry
in
Endometriosis UK
8 years ago
More Surgery
In the autumn, I wrote that I was starting Caelyx as 3rd line chemo. That was discontinued last month, after 3 cycles, as my scan showed it was having no effect. My onc suggested that, as I've had my current 4 GCT tumours for nearly 4 years, & no more new ones in that time, & nothing seems to be working
In the autumn, I wrote that I was starting Caelyx as 3rd line chemo. That was discontinued last month, after 3 cycles, as my scan showed it was having no effect. My onc suggested that, as I've had my current 4 GCT tumours for nearly 4 years, & no more new ones in that time, & nothing seems to be working
Di16
in
My Ovacome
8 years ago
Worried about the hernia operation
In Aug 16 I underwent operation for rectal cancer and have a permanent stoma. I developed parastomal hernia which is being operated on at the end of this month. I am worried that something could go wrong and or the hernia could re-occur. I play golf and would like to start as soon as possible; how soon
In Aug 16 I underwent operation for rectal cancer and have a permanent stoma. I developed parastomal hernia which is being operated on at the end of this month. I am worried that something could go wrong and or the hernia could re-occur. I play golf and would like to start as soon as possible; how soon
khemthapa
in
Living with a Stoma
8 years ago
Oxynorm
Hi , I'm new to this forum but would like to ask a question about my medication as I'm hoping to find some answers or advise please. I suffer from chrones disease , ME, ruemotoide arthritis, fibromyalgia, had Stoma bag a few times and other operations. I have been on shortec 20mg up to 10 times a day
Hi , I'm new to this forum but would like to ask a question about my medication as I'm hoping to find some answers or advise please. I suffer from chrones disease , ME, ruemotoide arthritis, fibromyalgia, had Stoma bag a few times and other operations. I have been on shortec 20mg up to 10 times a day
Wendyess
in
Pain Concern
8 years ago
Decapeptyl Decisions
Hello again everyone, Looking for some input on Decapeptyl monthly injections? I've been told i have severe endometriosis due to a large recto vaginal nodule. Been ttc for a while now and hoping endo excision in august can help boost my fertility my ovaries are not too damaged and tubes are clear.
Hello again everyone, Looking for some input on Decapeptyl monthly injections? I've been told i have severe endometriosis due to a large recto vaginal nodule. Been ttc for a while now and hoping endo excision in august can help boost my fertility my ovaries are not too damaged and tubes are clear.
Emma_16x
in
Endometriosis UK
8 years ago
Just arrived home after debulking surgery on Thursday. A stoma was never part of the plan 😔
After 3 admissions and aborted surgeries due to low white count/neutrophils... It finally went ahead last Thursday. Prior to surgery my CA125 went down to normal range (in 3 chemos) and scan showed excellent response. My surgeon was convinced that I wouldnt need anything more than the usual debulking
After 3 admissions and aborted surgeries due to low white count/neutrophils... It finally went ahead last Thursday. Prior to surgery my CA125 went down to normal range (in 3 chemos) and scan showed excellent response. My surgeon was convinced that I wouldnt need anything more than the usual debulking
Hidden
in
My Ovacome
8 years ago
When it's all just too much!!
Hi everyone, we all know how hard life is there's no doubt about that!! But add to that a long term health condition thrown into the mix, which I know many of you have too.For me right now it's just all too much to deal with.i told my partner this morning I don't want to be here anymore.its a constant
Hi everyone, we all know how hard life is there's no doubt about that!! But add to that a long term health condition thrown into the mix, which I know many of you have too.For me right now it's just all too much to deal with.i told my partner this morning I don't want to be here anymore.its a constant
Angep
in
Mental Health Support
8 years ago
Hernia support belt with stoma
Hi I had surgery in February last year to year as I have FAP ( a hereditary illness which means I stand a high chance of developing bowel cancer due to polyps) the surgery was preventative to remove my colon & rectum. I had a illeostomy/stoma for 3 months to give new pouch time to heal. I had the reversal
Hi I had surgery in February last year to year as I have FAP ( a hereditary illness which means I stand a high chance of developing bowel cancer due to polyps) the surgery was preventative to remove my colon & rectum. I had a illeostomy/stoma for 3 months to give new pouch time to heal. I had the reversal
Suep1964
in
Living with a Stoma
8 years ago
Would just like to say Hi!
Well.... Hello, I am a 48 year old married Mum of 2 from Lancashire in the UK. In 2013 I was diagnosed with Colon Cancer after emergency surgery for a perforated bowel. A Hartman's procedure was carried out and I was left with what is now a permanent colostomy. Unfortunately due to post operative complications
Well.... Hello, I am a 48 year old married Mum of 2 from Lancashire in the UK. In 2013 I was diagnosed with Colon Cancer after emergency surgery for a perforated bowel. A Hartman's procedure was carried out and I was left with what is now a permanent colostomy. Unfortunately due to post operative complications
Grn_Eyes
in
Living with a Stoma
8 years ago
Lupus since 18
I got sick and I was told it was a urine tract infection . So because my immune system couldn't take care of the problem lupus attached my stomach and my abdominal area. They gave me steroids and antibiotics took the for ever to see me I nauseated, bloated all the time ,stomach hurt , threw up also.
I got sick and I was told it was a urine tract infection . So because my immune system couldn't take care of the problem lupus attached my stomach and my abdominal area. They gave me steroids and antibiotics took the for ever to see me I nauseated, bloated all the time ,stomach hurt , threw up also.
Priss
in
LUPUS UK
8 years ago
Newbie with a Permanent Stoma
Thought I would share my experience with members of this site to help people considering options before surgery and to know what to expect as no one seems to get down to the nitty gritty of what happens. It really does not have to be as bad as you might first imagine. I was first diagnosed with Ulcerative
Thought I would share my experience with members of this site to help people considering options before surgery and to know what to expect as no one seems to get down to the nitty gritty of what happens. It really does not have to be as bad as you might first imagine. I was first diagnosed with Ulcerative
Howlinwolf999
in
Living with a Stoma
8 years ago
Stoma forever
Hi I have had slowvtransit constipation for many years until my large bowel and colon slowed to a stop. I had an iliostomy in April 2016 with a view to reversing. Now I have terrible trouble with mucus dripping out bum without warning and stomach pain. I now am booked in for collectomy to have large
Hi I have had slowvtransit constipation for many years until my large bowel and colon slowed to a stop. I had an iliostomy in April 2016 with a view to reversing. Now I have terrible trouble with mucus dripping out bum without warning and stomach pain. I now am booked in for collectomy to have large
Tired45
in
Living with a Stoma
8 years ago
Getting Permanent Stoma
Hello i have had so callled Diverticulitus for over 5 yrs, which ive suffered, ive had various tests done, with very litte results, they have been unable to get the scope right in, so not getting good results, i want them to remove my bowel, and give me a perm stoma, cant suffer any more of this, they
Hello i have had so callled Diverticulitus for over 5 yrs, which ive suffered, ive had various tests done, with very litte results, they have been unable to get the scope right in, so not getting good results, i want them to remove my bowel, and give me a perm stoma, cant suffer any more of this, they
cheeko8
in
Living with a Stoma
8 years ago
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