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Ostomy belt
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asking for advice
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
Imakelace
in
Pelvic Pain Support Network
6 months ago
perineal myxoid pseudotumor of fat
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
snoochy
in
Kidney Disease
1 month ago
Long time PRD sufferer.
Hi all. Let me introduce myself. My names Terry, I live in larne, Northern Ireland. 47 year old long time sufferer from the late affects of Pelvic radiation. Back in 1979 I had a rare cancer in my bladder, as a result I had chemotherapy and radiation therapy and had my bladder removed. As a result I've
Hi all. Let me introduce myself. My names Terry, I live in larne, Northern Ireland. 47 year old long time sufferer from the late affects of Pelvic radiation. Back in 1979 I had a rare cancer in my bladder, as a result I had chemotherapy and radiation therapy and had my bladder removed. As a result I've
Tel76
in
Pelvic Radiation Disease Association
6 months ago
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no cure
I’m pleased to see the post telling everyone about ‘how their endometriosis was cured’ has been taken down. There is NO CURE! Even if you have all diseased tissue removed you still have the disease. Some are lucky and don’t get a reoccurrence of the diseased tissue but for most the disease comes back
I’m pleased to see the post telling everyone about ‘how their endometriosis was cured’ has been taken down. There is NO CURE! Even if you have all diseased tissue removed you still have the disease. Some are lucky and don’t get a reoccurrence of the diseased tissue but for most the disease comes back
Lily1986
in
Endometriosis UK
6 days ago
What's on at Ovacome next week? (week starting Monday 15 July 2024)
Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 16 July - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 16 July - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
OvacomeSupport
My Ovacome Team
in
My Ovacome
7 days ago
Apprehensive +++
I am 73 and I live in England. Amongst several other conditions, I have a very slow transit bowel and SIBO. These, combined with a contribution from my late-diagnosis of Muscular Dystrophy, lead to chronic constipation and I've been told that an elective ileostomy may be the only permanent solution to
I am 73 and I live in England. Amongst several other conditions, I have a very slow transit bowel and SIBO. These, combined with a contribution from my late-diagnosis of Muscular Dystrophy, lead to chronic constipation and I've been told that an elective ileostomy may be the only permanent solution to
skylark15
in
Living with a Stoma
14 days ago
awareness advocate🫶
[i]
Hey there Everyone 👋🏼
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I’m new to this amazing community ☺️
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My names Hollie & I am 27 years old.
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Since 11 years of age I have been suffering with Bowel Endometriosis.
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It took years to get the correct diagnosis & many teams of specialists
[i]
Hey there Everyone 👋🏼
[/i] [i]
I’m new to this amazing community ☺️
[/i] [i]
My names Hollie & I am 27 years old.
[/i] [i]
Since 11 years of age I have been suffering with Bowel Endometriosis.
[/i] [i]
It took years to get the correct diagnosis & many teams of specialists
HolandstaceTED
in
Endometriosis UK
14 days ago
ovary removed, womb with mirena coil still there . Now in full menopause has anyone else been thru this ? Wot was your journey?
they suspected ovarian cancer so was operated on 2 weeks ago where there the plan was full hysterectomy but they where unable to do this due to severe endo n womb adhered to bowel so badly id have ended up with s stoma n as ovarian tumour there was no rational to take such extreme measures. So ovaries
they suspected ovarian cancer so was operated on 2 weeks ago where there the plan was full hysterectomy but they where unable to do this due to severe endo n womb adhered to bowel so badly id have ended up with s stoma n as ovarian tumour there was no rational to take such extreme measures. So ovaries
madtabby
in
Endometriosis UK
1 month ago
What's on at Ovacome next week? (week starting Monday 17 June 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 18 June - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 18 June - Gentle strengthening exercise class between 11:00am – 12:00pm: https://www.ovacome.org.uk/Event/exercise-class - Worcestershire
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 month ago
More good news
Ralph hasn't had his swallow x-ray, they only do 3 a week on a Tuesday, and it's in order of need and Ralph's is just to see what can happen in the future. He may not even get it done before he goes home.Physio are almost ready to sign him off, he's done 36 steps yesterday and tomorrow they're taking
Ralph hasn't had his swallow x-ray, they only do 3 a week on a Tuesday, and it's in order of need and Ralph's is just to see what can happen in the future. He may not even get it done before he goes home.Physio are almost ready to sign him off, he's done 36 steps yesterday and tomorrow they're taking
Gardenview10
in
British Heart Foundation
1 month ago
A survey of your experiences of one-piece closed stoma bags
Hello everyone, I am posting about the submission we are making to the National Institute for Health and Care Excellence (NICE ) for their Late-Stage Assessment on one-piece closed bags for adults with a colostomy. Thank you so much to those of you who have already contacted us with your feedback
Hello everyone, I am posting about the submission we are making to the National Institute for Health and Care Excellence (NICE ) for their Late-Stage Assessment on one-piece closed bags for adults with a colostomy. Thank you so much to those of you who have already contacted us with your feedback
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 month ago
Need surgery
Hi I'm not new here but I thought I'd take a shot in the dark and explain the predicament that I am in. I have a prolapsed stoma which is 4 inches long and 55mm in diameter I've also herniated my bowel with it being 10cm in length. I also have 1 metre of small bowel left so not really much at all when
Hi I'm not new here but I thought I'd take a shot in the dark and explain the predicament that I am in. I have a prolapsed stoma which is 4 inches long and 55mm in diameter I've also herniated my bowel with it being 10cm in length. I also have 1 metre of small bowel left so not really much at all when
Joeyskin
in
IBS Network
2 months ago
Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
2 months ago
NICE colostomy consultation - invitation to Ovacome focus group
Good morning everyone, We have been contacted by the National Institute for Health and Care Excellence (NICE) as they are currently undertaking an assessment looking at one-piece closed stoma bags for adults with a colostomy. We would like to contribute to this assessment by making a submission as we
Good morning everyone, We have been contacted by the National Institute for Health and Care Excellence (NICE) as they are currently undertaking an assessment looking at one-piece closed stoma bags for adults with a colostomy. We would like to contribute to this assessment by making a submission as we
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Mum in ICU
Hi all , I’m at the beginning of my mums ICU journey and I’m so glad I came across this page . Up until last Friday my mum at 76 had a few health problems as you would expect but was still the main carer for my dad who has Parkinson’s . All last week she was complaining of tummy ache and to cut a long
Hi all , I’m at the beginning of my mums ICU journey and I’m so glad I came across this page . Up until last Friday my mum at 76 had a few health problems as you would expect but was still the main carer for my dad who has Parkinson’s . All last week she was complaining of tummy ache and to cut a long
Exhausted247
in
ICUsteps
2 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
2 months ago
Does anyone know how long surgery is from your MDT meeting?
Hi warriors, I've just had my results from my MDT meeting. I've got to have a consent/discussion consultation and another with a bowel consultation incase I need a stoma. My question is, does anyone have a time scale of when they got surgery after the MDT meeting. I'm under Cambridge team. Thankyou
Hi warriors, I've just had my results from my MDT meeting. I've got to have a consent/discussion consultation and another with a bowel consultation incase I need a stoma. My question is, does anyone have a time scale of when they got surgery after the MDT meeting. I'm under Cambridge team. Thankyou
Loveneige
in
Endometriosis UK
2 months ago
What's on at Ovacome next week? (week commencing Monday 13 May 2024)
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 13 May - Monday monthly meet - up between 4:00pm and 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday 14 May -
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 13 May - Monday monthly meet - up between 4:00pm and 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday 14 May -
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
Dealing with endo after children in late thirties
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
EKP31
in
Endometriosis UK
2 months ago
Tibilone experiences
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing. Unfortunately there was been little improvement to my Endometriosis even
Lily1986
in
Endometriosis UK
3 months ago
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