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Ostomy belt
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Back where I started!
Hi I was diagnosed with Ulcerative Colitis some 34 years ago. Had all the normal treatments and regular stays in hospital. Then 6 years ago had a emergency total colectomy. Left hospital with a ileostomy . At the time it was the best thing that happened as at last I had some control over my bowels. A
Hi I was diagnosed with Ulcerative Colitis some 34 years ago. Had all the normal treatments and regular stays in hospital. Then 6 years ago had a emergency total colectomy. Left hospital with a ileostomy . At the time it was the best thing that happened as at last I had some control over my bowels. A
silverbadger
in
Crohn's and Colitis Support
7 years ago
Update
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and Oliver Jones they have discussed the concerns of operation vs steroids and as hubby finishes steroids in 2 weeks time they think this should give enough
Susiecarer
in
CLL Support
7 years ago
Ovarian cancer
Aged 65 . Stage three c . Had the full works eighteen months ago including a stoma. I'm still on three monthly checks but so far so good. Live each day as it comes
Aged 65 . Stage three c . Had the full works eighteen months ago including a stoma. I'm still on three monthly checks but so far so good. Live each day as it comes
Madgestagethree
in
My Ovacome
7 years ago
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Bowel issues
Hi ladies, I'm in need of some advice or comforting words. I have had 2 scopes in the past week, there were question marks after the first one. Consultant has confirmed that cancer has spread to bowel and now they cannot offer me radiotherapy as was suggested a few weeks back. I'm devastated and hope
Hi ladies, I'm in need of some advice or comforting words. I have had 2 scopes in the past week, there were question marks after the first one. Consultant has confirmed that cancer has spread to bowel and now they cannot offer me radiotherapy as was suggested a few weeks back. I'm devastated and hope
Westawake
in
My Ovacome
7 years ago
Help with constipation
Good morning ladies I need help. Have been fighting this evil decease for over eight years have been taking Niraparib for 2 1/2 months with a few side effects but manageable. Sunday my Stoma slowed and Monday it stopped working and I was v sick it's now working sot of but very painful have taken docusate
Good morning ladies I need help. Have been fighting this evil decease for over eight years have been taking Niraparib for 2 1/2 months with a few side effects but manageable. Sunday my Stoma slowed and Monday it stopped working and I was v sick it's now working sot of but very painful have taken docusate
Hidden
in
My Ovacome
7 years ago
Post surgery fertility blues!
So I had my 3rd surgery in July I awoken to find they had to perform a laparotomy, bowel resection and stoma, and stents in kidney tubes. So I'm just about recovered physically I only had this procedure as an attempt to conceive naturally to be told in hospital that it wouldn't be possibly due to scar
So I had my 3rd surgery in July I awoken to find they had to perform a laparotomy, bowel resection and stoma, and stents in kidney tubes. So I'm just about recovered physically I only had this procedure as an attempt to conceive naturally to be told in hospital that it wouldn't be possibly due to scar
katie26
in
Endometriosis UK
7 years ago
Creres
I have carers 3 times a day but they don't clean up or cook a meal from fresh I have coped. osterartris and a stoma bag could any more money than I have now
I have carers 3 times a day but they don't clean up or cook a meal from fresh I have coped. osterartris and a stoma bag could any more money than I have now
Lyndareynds
in
Care Community
7 years ago
Another "latest" update
Afternoon everyone. Hubby was at Dermatology yesterday to have an MOHS procedure. Appt was at 8.30, we left 11 hours later. The BCC on his ear took 6 specimens before it finally came back clear. The BCC had spread further on his ear and in the words of the doctor doing the procedure. 'It took them
Afternoon everyone. Hubby was at Dermatology yesterday to have an MOHS procedure. Appt was at 8.30, we left 11 hours later. The BCC on his ear took 6 specimens before it finally came back clear. The BCC had spread further on his ear and in the words of the doctor doing the procedure. 'It took them
Susiecarer
in
CLL Support
7 years ago
Endometriosis or Colon cancer??
Hi Everyone, I asked for a CA125 blood test because I had bloating, constipation and pelvic discomfort on the left side, but NO Pain. It was 134. The ultrasound was all normal, I had repeated the CA125 two more times, and it is still climbing up, it was 158 last month. My gynaecologist ordered an MRI
Hi Everyone, I asked for a CA125 blood test because I had bloating, constipation and pelvic discomfort on the left side, but NO Pain. It was 134. The ultrasound was all normal, I had repeated the CA125 two more times, and it is still climbing up, it was 158 last month. My gynaecologist ordered an MRI
Krisztina111
in
Endometriosis UK
7 years ago
Dads set backs
Well all was going ridiculsly well after dads successful ospehegectomy all tubes had been removed apart from the chest drain which he still has insitu. I called this am to ask how he was and to be told his jeg is now leaking. Is this a bad sign ? There is clear fluid in his chest drain which im
Well all was going ridiculsly well after dads successful ospehegectomy all tubes had been removed apart from the chest drain which he still has insitu. I called this am to ask how he was and to be told his jeg is now leaking. Is this a bad sign ? There is clear fluid in his chest drain which im
Hope1972
in
Oesophageal & Gastric Cancer
7 years ago
living with nets
hi would like to chat to some one with nets i was told a year ago i had nets they removed part of my bowel after it ruptured with the tumour and had a stoma bag in place got all the scans and tests done and was told there was no more cancer 1 year later i went for my reversal and they found another tumour
hi would like to chat to some one with nets i was told a year ago i had nets they removed part of my bowel after it ruptured with the tumour and had a stoma bag in place got all the scans and tests done and was told there was no more cancer 1 year later i went for my reversal and they found another tumour
andrea49
in
My Cancer Community
7 years ago
Ups and downs ......
Well chemo 3 has been done. I've been back in hospital twice with decreased urine output. Currently believe it to be a UTI. I went back to consultant yesterday as stomach swollen and painful as well. They think it is a combination of chemo/Cancer and the stoma operation along with as cities but not
Well chemo 3 has been done. I've been back in hospital twice with decreased urine output. Currently believe it to be a UTI. I went back to consultant yesterday as stomach swollen and painful as well. They think it is a combination of chemo/Cancer and the stoma operation along with as cities but not
Eriksendi
in
My Ovacome
7 years ago
Decisions - huge op or not 😨
Morning ladies Had appt last Wednesday and after 2.5 hours of waiting saw a gynae onc surgeon unexpectedly instead of my consultant which is who I was expecting to see. As you can imagine that was a shock in itself before I heard what she had to say. As I have low grade serous and have not long finished
Morning ladies Had appt last Wednesday and after 2.5 hours of waiting saw a gynae onc surgeon unexpectedly instead of my consultant which is who I was expecting to see. As you can imagine that was a shock in itself before I heard what she had to say. As I have low grade serous and have not long finished
Jo2305
in
My Ovacome
7 years ago
Newly diagnosed with Essential Thrombocythemia
Hi everyone. I was diagnosed with ET last week. I've been told to start Aspirin 75mg daily and peginterferion alfa 45 mcg injection once a week. I'm 46 and previously had bladder cancer back in 2002. My first follow up appointment is in a month. What should I be asking of the haemalogist as my brain
Hi everyone. I was diagnosed with ET last week. I've been told to start Aspirin 75mg daily and peginterferion alfa 45 mcg injection once a week. I'm 46 and previously had bladder cancer back in 2002. My first follow up appointment is in a month. What should I be asking of the haemalogist as my brain
alastair70
in
Fight MPN
7 years ago
Latest update on my sister
My sister is still in hospital following her caecostomy, sepsis etc. She developed fistulas which have complicated her surgical recovery. The stoma works occasionally but sometimes the fistulas let the bowel contents out. The stoma nurses have been brilliant trialling different wound management bags.
My sister is still in hospital following her caecostomy, sepsis etc. She developed fistulas which have complicated her surgical recovery. The stoma works occasionally but sometimes the fistulas let the bowel contents out. The stoma nurses have been brilliant trialling different wound management bags.
Seavccg
in
My Ovacome
7 years ago
What next after surgery?
I have recently had excision surgery for stage 4 endometriosis, which went very well. Avoided stoma bag and any major complications. We had previously been TTC and have been told we may need IVF however surgery can increase our chances. We was asked if i wanted to do a course of decapeptyl next, what
I have recently had excision surgery for stage 4 endometriosis, which went very well. Avoided stoma bag and any major complications. We had previously been TTC and have been told we may need IVF however surgery can increase our chances. We was asked if i wanted to do a course of decapeptyl next, what
Emma_16x
in
Endometriosis UK
7 years ago
Anyone have any idea what's next?
My sister had a bowel perforation following neutropenic sepsis and she's managed to pull through but has a permanent stoma. She's still in hospital 10 days post surgery but the perforated part of the bowel which was repaired is still leaking and the doctors have told her twice now that there are no more
My sister had a bowel perforation following neutropenic sepsis and she's managed to pull through but has a permanent stoma. She's still in hospital 10 days post surgery but the perforated part of the bowel which was repaired is still leaking and the doctors have told her twice now that there are no more
Seavccg
in
My Ovacome
7 years ago
Feeling Guilty
I am new to this site, may I tell you a little about us,I have M.S, hypertension and small heart problem and carpel tunnel, I have beencareing for my husband for 2 years now, he has Parkinsons that has taken his legs, he now can hardly walk, he has a blood disorder, so is on life time Warfrin, last year
I am new to this site, may I tell you a little about us,I have M.S, hypertension and small heart problem and carpel tunnel, I have beencareing for my husband for 2 years now, he has Parkinsons that has taken his legs, he now can hardly walk, he has a blood disorder, so is on life time Warfrin, last year
Lucy73
in
Care Community
7 years ago
Update No. 3
Hi Everyone Well hubby came home this afternoon, he certainly looks 'healthier' and is definitely more energetic.... The plan now us, for next 3 weeks x 2 times per week he will have blood tests and blood transfusions. They have also bought his appt forward to the 10th with Dr Schuh. They are anticipating
Hi Everyone Well hubby came home this afternoon, he certainly looks 'healthier' and is definitely more energetic.... The plan now us, for next 3 weeks x 2 times per week he will have blood tests and blood transfusions. They have also bought his appt forward to the 10th with Dr Schuh. They are anticipating
Susiecarer
in
CLL Support
7 years ago
Update on my mum's high grade serous stage 4 OC
Hi all, it's been a while and there has been the most amazing progress that I have not dared to believe possible but my mum has had surgery!!! It was the most dramatic of weeks thus far when we went for her normal appointment with her consultant prior to chemo cycle #4 and he was concerned as he could
Hi all, it's been a while and there has been the most amazing progress that I have not dared to believe possible but my mum has had surgery!!! It was the most dramatic of weeks thus far when we went for her normal appointment with her consultant prior to chemo cycle #4 and he was concerned as he could
CancerCarerChats
in
My Ovacome
7 years ago
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