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Positive crossmatch ?
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
Hello everyone, Excuse me for my English as its my second language. Hope you will understand me. My mother was diagnosed with a kidney failure few years a go, but the GFR goas up and down for her, last September it was 14, and last month it goas up to 20 “ not sure what is the couse of that but it
MAK88
in
Kidney Disease
3 years ago
Wellness poster for my stay at hospital
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
I am due to have a stem cell transplant and have prepared myself for my stay at the hospital. It’s been suggested that I can decorate my room and can use posters to put on the wall. I wonder if anyone could suggest somewhere online that they would know of that I could find any reasonably priced posters
Kraskie1915
in
CLL Support
2 years ago
Week 2 Buddy?
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
Anyone on Week 2? Looking for an online buddy or some chat with someone who is at the same point as me? I’m doing in part for health reasons as I’m waiting for a kidney transplant. Doing most of the actual runs with my partner, unfortunately he finds them very easy and is naturally fit!
MerlinonMull
in
Couch to 5K
3 years ago
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Sct question
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Johan2021
in
MPN Voice
2 years ago
March - National Kidney Month
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
“Needing a Kidney Gave Me Strength to Help Others” by Anne Bina My name is Anne Bina and I am here to tell you the story of my miracle, my gift of life. It all started with the story of my kidney transplant on October 15, 1999. H3: The Beginning My story is a little different than most. While many
WYOAnne
in
Early CKD Support
3 years ago
HCC Any New Up to Date Recommendations?
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Iggy08713287
Patient
in
Blue Faery Liver Cancer
3 years ago
I'm a bit Scared, to be honest😥
Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most People that is! However I am Immune Suppressed, due to BOTH Vasculitis AND a Kidney Transplant (in July 2013).Clearly IF I DO contract, this disease
Dear All, Several of my neighbours, we only have eighteen flats, have had/ currently 'have' COVID. Now I know that this 'Variant' isn't as Serious- to Most People that is! However I am Immune Suppressed, due to BOTH Vasculitis AND a Kidney Transplant (in July 2013).Clearly IF I DO contract, this disease
AndrewT
in
Vasculitis UK
3 years ago
Cipro and bactrim for Pseudomonas aeruginosa infection
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
Did any got Cipro and bactrim for bacteria infections? How did you deal with it? I got a kidney transplant 18 days ago. Deceased donor, never on dialysis. Recently got fever and went back admitted to the hospital with an infection. After some testing, they found have Pseudomonas aeruginosa, and sent
vision22
in
Kidney Transplant
3 years ago
2nd transplant
Is anyone on disability and had a second kidney transplant less than 1 year ago?
Is anyone on disability and had a second kidney transplant less than 1 year ago?
Leekee
in
Kidney Transplant Patient Support
3 years ago
Trikafta drug US Name - Kaftrio drug UK Name
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Trikafta drug US Name - Kaftrio drug UK Name Can someone please tell me if the above drug is only offered to people who have Cystic Fibrosis in the UK? i.e Would it not be offered to anyone who has Severe Bronchiectasis or anyone who could no longer have a Lung Transplant? Kind regards as always Joe
Joseph260268
in
Lung Conditions Community Forum
3 years ago
Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
Nutritionist denial
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
ThyroidDeb
in
Living with Fatty Liver and NASH
3 years ago
4 years post transplant and now a fibro scan of happy liver
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
meme7
in
British Liver Trust
3 years ago
Kidney transplant
Anybody else Waiting for a transplant & feeling like they don’t know what to do or feel. Me I feel lost and numb . Someone please help 😔
Anybody else Waiting for a transplant & feeling like they don’t know what to do or feel. Me I feel lost and numb . Someone please help 😔
AmberScavolo93
in
Kidney Transplant
3 years ago
Removed from Transplant
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect. My respiratory
Sadly I have been removed from the lung transplant list . Harefield say the pulmonary hypertension I have has worsened so much that I wouldn’t survive surgery. I have no idea what will happen next. I’m on 24/7 oxygen, my lungs have approximately 10% capacity and I have no idea what to expect. My respiratory
mary1956
in
Lung Conditions Community Forum
3 years ago
Tests before a liver transplant
Hi everyone. I'm Mark. I'm new to all this. I've been told that I will have a liver transplant. I've been told also that I need test done.... heart.... lungs ect. Can anyone tell me what the test are and length of time doin the tests please. As you can imagine I'm s%%ting it. Lol. Thanks x
Hi everyone. I'm Mark. I'm new to all this. I've been told that I will have a liver transplant. I've been told also that I need test done.... heart.... lungs ect. Can anyone tell me what the test are and length of time doin the tests please. As you can imagine I'm s%%ting it. Lol. Thanks x
marknash67
in
British Liver Trust
3 years ago
Pulmonary Hypertension
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair
I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair
mary1956
in
Lung Conditions Community Forum
3 years ago
New on transplant list.
After years of slowly decreasing kidney function, I was recently listed for kidney transplant.
After years of slowly decreasing kidney function, I was recently listed for kidney transplant.
6V53
in
Kidney Transplant
3 years ago
World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
Rejected for liver transplant
This morning my partner was advised by the Royal free liver transplant assessment unit that he had been rejected for a liver transplant. This was on the basis of false information. The drug and alcohol nurse had advised that he was unwilling to allow RF to access his data from the drug and alcohol support
This morning my partner was advised by the Royal free liver transplant assessment unit that he had been rejected for a liver transplant. This was on the basis of false information. The drug and alcohol nurse had advised that he was unwilling to allow RF to access his data from the drug and alcohol support
Naomi425
in
British Liver Trust
3 years ago
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