Experiences with

Organ transplant

Was away to see my consultant last week.. He told me that copd has taken 63% of my lung capacity only 37% is ok ..😢 just discovered I have Bronchiectasis to .. 😡 A lung transplant maybe on the cards but at a later date as I’m still to young and fit for it just now..😩 He sent me for a blood test

I am 1 year post liver transplant. Feeling great and very strong too. Only issues is from the immune suppressant therapy. I am having anxiety and high blood pressure. I focus on good and am doing great. I have edema and swelling in legs and feet and the swelling can cause pain when standing or long

So i use to come on here alot. 2016 was my "dark year" on here. 2016 febuary my heart went into an arrythmia and at the time i wasnt even sure what it was. I didnt want to leave my bed or do anything at all. I was so scared to even walk around and do anything. Took over a year for them to catch

Hello, I am 15 months post liver transplant and have managed to get down to 125mg of Ciclosporin a day. I have been plagued with fatigue, a little depression and anxiety, occasionally painful joints but mostly a brain fog type feeling and ringing in my ears. This week I have been put on 500mg of Mycophenolate

I recently went in for a kidney transplant evaluation and the social worker told me that I am only allowed to have 3 cats (and I am no longer allowed to clean their litter box) and that I need to get rid of my birds now or I can't get the transplant but that even if I didn't need a transplant she said

Well first off, I hope everyone had a great thanksgiving yesterday! But I have some questions for those of you who had a kidney transplant.. when you got the call to head to the hospital, how did you feel? What kind of stuff did you pack? How long where you in the hospital for? How did you feel afterwards

In early 2017, I took a big bet. I suspended normal cancer treatments, in order to preserve my eligibility for a very novel phase 1 clinical trial. Initially, I didn't qualify, but they agreed to modify the trial to make me eligible. That process took a while, so we didn't get started until late 2017

AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk

Does anyone have a suggestion about who to consult regarding what will be paid by my Humana Advantage Medicare policy for a kidney transplant? I asked my Transplant Center Coordinator and she (curtly) replied that I had to research that information. BTW: For those just recently put on dialysis or anticipating

Hi I'm Ruder. Had a heart transplant in 2013 after 15 years of familial dilated cardiomyopathy. I am doing great and just completed a 3 week holiday in the US.

Hello again all. After my good news yesterday I have just received a phone call from my GP that is a bit of a downer. You will recall (that is all of you that have read my posts) that I have been suffering quite badly with my back. I had a back x ray 2 days ago and apparently I have two fractures of

Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if need be. The first MRI should be done between 12 and 18 months to get a baseline reading and then repeated at age 3. From then on it too needs

This is really for those of you who have been fortunate enough to have received a life changing Liver Transplant. I personally had my transplant on the 1st October 2016. I, as for most people, was so humbled and gratefully for everyone's support and help all through the whole life saving experience

Hello everyone, My father had his LT 5 days ago, now he’s hallucinating and shouting he doesn’t recognize us sometimes! Like he live in the past and he calls for people don’t exist !! I am so worried, I don’t get it !! Is it permanent ?? The doctor still don’t do a thing abut It !! Why is that ?

Hi I'm a post op double lung transplant patient. I had my op in March of this year and am still feeling pretty useless. Recovery has been a long process. I'm suffering depression and anxiety. Had kidney problems. Weight loss and sickness. Stopped eating for 6 months. Very tired. Was in hospital most

I'm relatively new to posting here. Have been a lurker for a few months just doing a lot reading. The knowledge and support here is incredible. Has anyone who is currently on the wait list for a liver transplant or who has undergone a liver transplant had a liver offer that cam from a high risk donor

My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were

Last Tuesday, I had a wonderful day out at my old stomping ground of Wrexham. Some of you may know that the British Liver Trust's, "Love Your Liver" roadshow shall be visiting the town on the 20th November. I went over there to promote the event, and to raise awareness. 12-years ago, having been thrown

I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude

How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is