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Organ transplant
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21 public communities
Kidney Transplant
3,511 members
Welcome to the National Kidney Foundation's Transplant Community! Whether you have had a transplant, are waiting for a transplant, or are a family/friend/caregiver, here you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
National Foundation for Transplants
300 members
At the National Foundation for Transplants, our goal is to ensure that transplant patients are given every opportunity to fully enjoy the gift of life. Since 1983, NFT has offered fundraising support and expertise to transplant patients across the country. In that time, we have helped generate nearly $65 million to assist patients in need.
Kidney Transplant Patient Support
1,314 members
Welcome to our community! We are a group of people all affected by kidney transplants looking to share information and support.
PBCers Organization
1,383 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
MyDirectives: Make your medical wishes known!
65 members
MyDirectives is the first completely digital emergency, critical and advance care planning service that is secure, easy to understand, and free to consumers to use. Apple iPhone users can also download MyDirectives MOBILE for free in the Apple App Store. MyDirectives and MyDirectives MOBILE are services offered by ADVault, Inc., a privately owned U.S. corporation dedicated to ensuring that emergency first responders, doctors, nurses and caregivers always have access to the most important voice in healthcare - yours. MyDirectives helps consumers record their medical treatment wishes, preferences regarding palliative and hospice care, organ donation, and autopsy, and other critical personal information both on the device, and in the format, that is most convenient and comfortable for them. We then work with healthcare providers and payers, to make the directives available.
Nutrition and Yoga for Health
1,346 members
Holistic health pioneer, yoga teacher and author, Ciara Jean Robert brings you this community. Her wish is to share with you helpful tools on your own unique journey. With a previous background in credit risk, banking, Ciara understands the stresses that can partner corporate life, She successfully transitioned 10 years ago to running her own business, Wholly Aligned. That transition was prompted by her precious first kidney transplant beginning to move through a rejection process and eventual failure. Using nutrition, yoga and inspiring story she has gathered through her own lived experience with her kidneys, she wishes to help you awaken your inner physician. Dwell in all possibilities. Ciara received the gift of a second kidney transplant in October 2019. And is currently embarked inward writing Book 2. Weaving in the incredible experiences of healing and integration, from the impact our words carry, to the influence the quality of breath has on how we feel, to hw a deeply embodied sense of being, is truly what opens up one's mind to the magic of life. Being alive. In sacred recalibration. She is a qualified Naturopathic Nutritional Therapist, a highly experienced yoga professional and writer. And also a big hearted human with an absolute love of life. Live your life each and every day. Dream big, live hopefully. Sign up to her mailing list and learn more on her website in the contact detail section.
Kidney Donation
1,123 members
Welcome to the National Kidney Foundation's Living Donation Community! In this community you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Whether you have donated a kidney or are thinking about donating a kidney this community is for you! Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
Liver4Life
1,942 members
Liver4Life is run by a few individuals passionate about liver health. We all have extensive backgrounds of working in the health and charity sector and most importantly in the liver community. The team are all working on a purely voluntary basis, while we undertake some fundraising to get the key services together. L4L is a new and modern charity dedicated to supporting any person affected by a liver condition in the UK. • L4L offers support, education and campaigns on behalf of people with a liver condition to improve their care, their treatment and their support services. • L4L recognises the importance of preventing liver disease and the early detection of a liver condition, liver disease and liver cancer in the UK. • Our absolute priority is supporting liver patients in the UK
LIVErNORTH
414 members
We are a adult liver patient support group based at the Freeman Hospital in Newcastle upon Tyne, England. Whatever kind of liver disease you may have, we are here to support you. Whilst we will endeavour to assist you with any queries relating to liver disease it would be inappropraite for us to comment on liver function blood test as there are too many variables involved to generalise. Your hepatologist is the appropriate person to ask for advice in this instance.
British Liver Trust
36,241 members
The British Liver Trust helps everyone affected by any liver condition, providing support, information and guidance, and lobbying for improved services across the country. Liver Disease is the only cause of death on the increase and affects an estimated 20% of the population. Only by increasing awareness of the risks, campaigning and funding research will we reduce the impact of liver disease in the future.
Lung Conditions Community Forum
55,060 members
Welcome to Asthma + Lung UK's Lung conditions community forum which is a place for you to share your experience and hear from other people to support you with whatever question you have about lung conditions. There are over 50,000 members on the forum so chances are, someone has been where you are.
Kidney Health New Zealand
427 members
We support patients and their families living in New Zealand who have been impacted by kidney disease.
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