Pulmonary Hypertension

[mary1956]

I’ve just returned from a pre lung transplant check up at Harefield. Last seen in November when all was ok except pulmonary hypertension was noted. The pressure was 40 mm of mercury. Normal is 25. They weren’t too bothered as walking to the room could have raised it. However today I needed a wheel chair as I’m recovering from a nasty chest infection. The pressure has gone up to 80 mm. Medic will discuss this at a meeting tomorrow, but fears it means I would not survive surgery and will be removed from transplant list. When I was an inpatient at my local hospital I was told I would not survive Covid or any resuscitation intervention. My recent infection is not the cause. Very low oxygen levels are more likely the cause which continued despite being prescribed oxygen.

I will know Harefield decision on Friday. 22 months on transplant list and I was hoping for a better outcome. Still not quite the end, but edging close.

[CDPO16]

I'm sorry you've had this upsetting news Mary. Thinking of you as you await their decision. Carole xx

[sassy59]

Oh dear Mary, so sorry to hear this. Definitely not what you wanted is it. See what Friday brings and keeping everything crossed for you. 💜❤️

[Katinka46]

So sorry to hear about this. Thank you for telling us about it. Let us know how things develop. Love and virtual hugsKate xxx

[Bevvy]

But if you are recovering from a bad chest infection then that could raise it? When there were concerns about mine I had to do twice daily tests at home for 2 weeks which proved I don’t actually have an issue.

Let’s hope they make a constructive decision on Friday.

[mary1956 in reply to Bevvy]

What tests can you do for pulmonary hypertension

[Bevvy in reply to mary1956]

Sorry my mistake. I only 1/2 read Google information. I thought it was to do with high blood pressure. In which case you can monitoring it at home. However I still think you have reason to hope because when they tested you, you were still recovering from bad chest infection.

Hope decision goes well tomorrow.

[Oshgosh]

I’m thinking of you at this difficult time.

[Patk1]

Not news u were hoping for but all the best on Friday x

[Biofreak]

My husband had pulmonary hypertension every time he had an infection when he was waiting to go on the list. When the infections were treated the hypertension subsided but throughout he was on oxygen 24/7. He had IPF and was fortunate enough to still go on the list. I think there are several considerations not least your overall condition. Ultimately the doctors will take everything into consideration. I wish you well Mary and hope you get your wish.

[Izb1]

Fingers crossed the results will be different when your infection has cleared up Mary x

[Beachballs]

Thanks for sharing this , know how you feel as I have been in this position, but wishing you all the luck for the 22nd. Hope your chest infection clears up soon, I also have a chest infection and am on oxygen 24-7 10-12lts so can sympathise right now. Good luck 🙏🌷

[Thomac]

So sorry Mary

[mary1956]

Update. I’m off transplant list as I almost certainly wouldn’t survive surgery. All options now closed!

[HollyBoyd]

I am so sorry Mary, a very difficult decision to come to terms with. My thoughts are with you and I am sending love and hugs, take care xxx❤️🤗