Experiences with

Organ transplant

I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly

I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder

had radiotherapy in the last 6 months had an organ transplant a severe liver condition (such as cirrhosis) a rare condition affecting the brain or nerves (multiple sclerosis, motor neurone disease, Huntington’s disease or myasthenia gravis) certain autoimmune or inflammatory conditions (such as rheumatoid

Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews

Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials

Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think

Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing

Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with

I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.

As anyone ever said ‘no’ turned down a kidney transplant? Why?

I am 2 1/2 years post kidney transplant. Before the transplant, I was extremely healthy and fit, ate all the right foods, (nothing processed), worked out daily, was a regular bike rider and hiker, etc. After my transplant, I went through 2 grueling years of rejection treatments which included lots

My spouse had his transplant 3.5 yrs ago and we both received our covid19 vaccination/booster shots afterwards. If you got covid19, what were your symptoms and outcome. If you know how you got it, please share. We have been living very isolated for 3.5 yrs. We do not go into anyone's house or allow them

Hello, what must be the things we need to consider to take insurance in US for post transplantation patients. ? I had my kidney transplantation successfully 16 months ago and I'm trying to move to US. So pls help me here.

How long after a kidney transplant before you can drive?

Hi Friends, I had my first visit with my new local doctor. He is Associate Head of Stem Cell Transplant Dept with Ochsner in Louisiana. He does not treat any cancers other than blood. He listened and verbalized understanding that my previous Dr’s were not a fit for me. He reviewed my BMB from Vanderbilt

I am scheduled for a kidney transplant from my sister on July 6, 2022. I've been eating plant-based foods for a few months (suggestion from my nephrologist). I plan to continue the same, only adding some fish and maybe chicken. My question: Are there any diet restrictions during the period of recovery

Hello,I’m New here! I’m about to have a Kidney transplant on. June 27th, My sister is my donor. My Coordinator is not easy to get a hold of. What should I expect after surgery?

Hi My husband had a liver transplant in 2019 and has started to feel unwell again. He had a fibroscan today and his results were 4.4 but am unsure what that means. He is having major breathing problems due to COPD, emphysema and suspected asbestosis so had to take steroids for a while which has caused

Hello everyone. I am around here for 2 months now. I must say, it has been a horrible 2 months. Lots of nightmares, unnecessary operations... But today here I am again, writing to you from Copenhagen. I actually moved despite every negative development regarding my disease. I would like to start with

Hi can anyone help and share their Covid experience , symptoms /duration and treatment anytime after kidney transplant ? Be much appreciated Thank you