Experiences with

Organ transplant

Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you

Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges

I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants

Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the

Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example

I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the

In need of Kidneys and Liver transplant, I reside in El Paso, TX. and need to travel to Dallas, TX. for treatment at Dallas Methodist Hospital. It's been rough these past two years, I thought I could do this alone. But I am wrong, lost all my friends, family is trying but it's not easy and cheap. I can

Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't

Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy

Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the

Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very

I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues

Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease

Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered

Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India

Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center! Have questions about kidney disease or kidney failure? Sign up for our NEW, self-paced education program to learn more about your kidneys and what

Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center! Have questions about kidney disease or kidney failure? Sign up for our NEW, self-paced education program to learn more about your kidneys and what

Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org

It’s been awhile for an update, here is the latest. I’m at Day plus 127 from my Bone Marrow Transplant. I saw my doctor (main specialist) on day+119. This was after a BMBiopsy +105 and colonoscopy +109! Those results revealed the great and not so good! There’s no sign of cancer in my BoneMarrow, and

Hello! This is my first post. Since my teen years, I know I've had some repetitive movements of my fingers, ticks/twitches of my eyebrows and face, and counting even and odd numbers, often imagining doing so on my front teeth (sounds a bit odd, but that's what it is!) It was manageable and possibly annoying