Experiences with

Organ transplant

Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?

I'm almost a year from my kidney transplant, and have begun to have headaches and dizzy spells, especially after sleeping a while. Will this get better? I feel like someone that's had too much to drink when the dizzy spells start.

Renal transplant since 2007. Question about getting medical people to help with a "minor problem". Dr. And nurses (including my wife) seem to ignore my questions about a yeast skin infection I've have had for years. No, that's not an exageration. How do I get them to pay attention? I'm pretty close to

My current gfr is 14. I am searching the possibility of being able to receive the kidney transplantation in the States, as I heard the States has a certain allocation number of kidney transplantation to foreign citizens every year.

Today is the day! I am meeting with my Lung Transplant team for the very first time. I have Bronchiolitis Obliterans. My only expectation is that they will give me a list of things to accomplish. If they don't, then I will know that there is no transplant ahead in my future. I am 63 years old. I am so

Hi, I wanted to share my long journey into parenthood. I was born with Biliary Atresia as an infant and eventually needed two separate liver transplants to recover as an adult (my husband first donated half his liver which saved my life, but the connection wasn’t good, and I eventually needed a cadaver

Hi, my name is Christine and I want to share my long journey into parenthood. I was born with Biliary Atresia as an infant and had a successful Kasai Procedure that prolonged my liver until I was 25. I eventually needed two separate liver transplants to recover as an adult (my husband first donated

Hi, I want to share my long journey into parenthood. I was born with Biliary Atresia as an infant and eventually needed two separate liver transplants to recover as an adult (my husband first donated half his liver which saved my life, but the connection wasn’t good, and I eventually needed a cadaver

I'm three weeks post transplant, everything looks good and I'm feeling good, no obvious side effects from medication. However this morning, I was told they found BK virus in my urine with 5 log/ml. If this keeps increasing it make eventually leak into the kidney and hurt it, and there is no effective

My sister in-law has RA but was diagnosed with pulmonary fibrosis this past September. Has anyone else experienced this and what course of action was taken. My SIL is on oxygen 24/7 and is on a lung transplant list. Anyone have similar issues?

I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,

Hi. As some of you will know, last week I formed a Facebook group to try to locate all possible Ricther and tell us your case. With your permission, I want to share keeping your story anonymous. For anyone who wants to locate them, just contact the Facebook group. In this group, everyone identifies with

Hi,I Im almost a year into my kidney transplant, and am on the usual meds like Prednisone, etc. Ive noticed over the past 2 months that my sense of taste isn't what it use to be, with almost no taste at the front of my tounge. Can this be a med side effect? I did have some dosages changed. Thanks

I’m new to this forum. My husband was diagnosed with non-alcoholic fatty liver disease cirrhosis and HCC liver cancer in July 2018. He will require a liver transplant to survive and our surgeon told us he would not make it to a deceased donor. Our wonderful radiologist has kept him alive thus far. We

Hi this is Ralph’s daughter Ashley who joined up for help with my dad, how do you cope with the constant nausea feeling in between getting drained every 2 weeks the sickness tablets don’t seem to be helping

My kidney transplant was Dec. 7 1992, 27yrs this month.. I am blessed of how long it has lasted. Thanking the Lord it will keep on going...

Hi. I had a kidney transplant in 2015. It’s my 3rd transplant. It was a perfect match. Other than I get sick in the winter and my Cholesterol is high it’s doing good.

I have final stage heart failure. Had a hole in heart repaired when I was 4 years old and a valve replacement in 1993 at 14 years old. Been ok from that time to a few years ago. Since Sept 2017 my heart has been deteriorating and I’ve been in out of hospital a good 8-10 times. September 2019 I had a

I came to this site about 6 months ago. I was diagnosed with Bronchiolitis Obliterans in 2017. I follow at Temple Lung Institute. I am just returning to this group after the usual medical adventures. It has been a whirlwind of a year. I can't wait to see the back of 2019. I am exhausted. This is my time

REVIEW ARTICLE Year : 2018 | Volume : 11 | Issue : 4 | Page : 169-174 Hughes syndrome antiphospholipid syndrome Graham Robert Vivian Hughes The London Lupus Centre, London Bridge Hospital, London, England, UK Date of Web Publication9-Nov-2018 Correspondence Address: Prof. Graham Robert Vivian