Search
Search
About
Log in
Join
Experiences with
Organ transplant
Posts
Communities
3,316 public posts
Filter results
Looking for information
I had my kidney transplant April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
I had my kidney transplant April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
Ynnep
in
Kidney Transplant
2 years ago
Long time on wait list
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Talpa120
in
British Liver Trust
2 years ago
protecting against infection
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
ProudAmma
in
Kidney Transplant
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Preemptive kidney transplant experience and results
Everywhere I read, everyone agrees that a preemptive transplant from a living donor is the best you can hope for when you have stage 5 kidney failure. I would like to hear about your experience if you went through transplant before needing dyalisis. What were your GFR, your BUN and your creatinine
Everywhere I read, everyone agrees that a preemptive transplant from a living donor is the best you can hope for when you have stage 5 kidney failure. I would like to hear about your experience if you went through transplant before needing dyalisis. What were your GFR, your BUN and your creatinine
hope1419
in
Kidney Transplant
2 years ago
Sudden rise in Tacrolimus
I received a kidney transplant in July 2021. Everything has gone swimmingly. I caught a mild case of Covid at the end of July and received a multiclonal antibody infusion. When I went for my August bloodwork, my Tacrolimus trough, which had been running 5-7, was suddenly 9.6. When I did my bloodwork
I received a kidney transplant in July 2021. Everything has gone swimmingly. I caught a mild case of Covid at the end of July and received a multiclonal antibody infusion. When I went for my August bloodwork, my Tacrolimus trough, which had been running 5-7, was suddenly 9.6. When I did my bloodwork
ILMA54
in
Kidney Transplant
2 years ago
A Simple explanation of the inaccuracies of eGFR
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Blackknight1989
in
Kidney Disease
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
1 year ago
Amlodipine Side Effects, short and long term
I am on 10mg amlodipine (this dosage was prescribed right off the bat) several years ago, to be taken with 100mg labetalol twice a day. I felt terrible at first but better now, though frequently tired. I'm wondering if these meds are too much and the cause of my fatigue (I am 69 y.o.) I am also being
I am on 10mg amlodipine (this dosage was prescribed right off the bat) several years ago, to be taken with 100mg labetalol twice a day. I felt terrible at first but better now, though frequently tired. I'm wondering if these meds are too much and the cause of my fatigue (I am 69 y.o.) I am also being
Cats8019
in
High Blood Pressure Support
2 years ago
transplant and covid
hi all. My 23 year old son is currently awaiting a kidney transplant. His team as informed him that he has to have the Covid vaccine before his surgery. Has this happened to anyone? He is scared to get the vaccine ! Any input would be amazing!!
hi all. My 23 year old son is currently awaiting a kidney transplant. His team as informed him that he has to have the Covid vaccine before his surgery. Has this happened to anyone? He is scared to get the vaccine ! Any input would be amazing!!
Boymommm
in
Kidney Transplant
2 years ago
Transplant Journey outcomes/advice anyone?
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hi, I have had CKD for several years and declined dramatically over the last 6mths -1yr and was actually started urgently on dialysis in July when my GFR dropped to 3 and creatine was 12.43. I had already had a consult and was added to a wait list for kidney transplant in early February of this year.
Hawaiilover
in
Kidney Disease
2 years ago
Post-Transplant Arterial Line Bruise
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
frebusmaxwell
in
Kidney Transplant
2 years ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
1 year ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
KateyC_NKF
Partner
in
Kidney Transplant
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning about kidney transplant for your child? Check out our free, self-paced beginner’s guide to kidney transplant and getting on the waitlist. Get started on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
Are you interested in learning about kidney transplant for your child? Check out our free, self-paced beginner’s guide to kidney transplant and getting on the waitlist. Get started on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested on getting on the kidney transplant waitlist? View our free, self-paced beginner’s guide to kidney transplant through our new online resource. Take the first step on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
Are you interested on getting on the kidney transplant waitlist? View our free, self-paced beginner’s guide to kidney transplant through our new online resource. Take the first step on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
KateyC_NKF
Partner
in
Kidney Disease
2 years ago
Kidney transplant at 60 plus stories please
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
Chawal2
in
Kidney Transplant
2 years ago
Hypoxia, transplant dry runs and raising awareness of IPF
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Fibroscan
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
Chrisjohnsy
in
British Liver Trust
2 years ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
700 results
Lung Conditions Community Forum
458 results
Kidney Transplant
426 results
View top 10 communities
Sort by
Most Relevant
Newest