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Comments needed to Center for Disease Control
Hi all. I just received the following from RLS.ORG: "... a Call to Action that is due on Thursday, March 31. The Centers for Disease Control and Prevention (CDC) is revising its 2016 Opioid Prescribing Guidelines, and this is an opportunity for the RLS community to raise our voices about the appropriate
Hi all. I just received the following from RLS.ORG: "... a Call to Action that is due on Thursday, March 31. The Centers for Disease Control and Prevention (CDC) is revising its 2016 Opioid Prescribing Guidelines, and this is an opportunity for the RLS community to raise our voices about the appropriate
Dougg
in
Restless Legs Syndrome
2 years ago
Update: pleural effusion, ER, Completion of SBRT and thank you for previous heartwarming posts
So first of all I want to thank all of you who took the time to respond to my post about my brother and positive visualizations. I couldn’t respond to everyone but I read each and every post with gratefulness Bob ended up back in Boston in the ER with plural effusion. 3 pounds of fluid in his right
So first of all I want to thank all of you who took the time to respond to my post about my brother and positive visualizations. I couldn’t respond to everyone but I read each and every post with gratefulness Bob ended up back in Boston in the ER with plural effusion. 3 pounds of fluid in his right
Faith1111
in
Advanced Prostate Cancer
2 years ago
finding a doctor who prescribes opioid for RLS
Hi, I have been very fortunate to live in Los Angles, USA and have had Dr Buchfuhrer as my doctor who prescribes opioid for my RLS. Lately after I have been reading some of our members who have difficulties finding a doctor willing to prescribe opioid for them, I am concerned about finding a doctor
Hi, I have been very fortunate to live in Los Angles, USA and have had Dr Buchfuhrer as my doctor who prescribes opioid for my RLS. Lately after I have been reading some of our members who have difficulties finding a doctor willing to prescribe opioid for them, I am concerned about finding a doctor
halperinchen
in
Restless Legs Syndrome
2 years ago
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CBD and RLS
Like so many of us, I am ALSO weaning off of pramipexole. I have been taking a "low" 0.375 or 1.5 of the 0.25 mg tablet (with 600 mg Gabapentin) at 1030 pm (prior to a 12 am bedtime) for the dreaded RLS onset at 130-2 am, which would then last for 1 to 3 hours. It was working but I was feeling the
Like so many of us, I am ALSO weaning off of pramipexole. I have been taking a "low" 0.375 or 1.5 of the 0.25 mg tablet (with 600 mg Gabapentin) at 1030 pm (prior to a 12 am bedtime) for the dreaded RLS onset at 130-2 am, which would then last for 1 to 3 hours. It was working but I was feeling the
Crazilegs
in
Restless Legs Syndrome
2 years ago
Covid antiviral treatment
I’ve got a positive PCR (lft was negative fri, positive Sunday, didn’t test sat), specialist nurse has said I am entitled to have the antiviral infusion but it’s up to me. I’m day 1 and have til day 5 to have it. Although I’ve felt like I’ve had illness coming on for nearly a week. Symptoms are mild
I’ve got a positive PCR (lft was negative fri, positive Sunday, didn’t test sat), specialist nurse has said I am entitled to have the antiviral infusion but it’s up to me. I’m day 1 and have til day 5 to have it. Although I’ve felt like I’ve had illness coming on for nearly a week. Symptoms are mild
peejay74
in
NRAS
2 years ago
New approach to pain management
Hi all - recently I have been investigating alternative methods of pain relief and have been directed towards Sound Frequency Healing. Let me say first off, I am very much a down-to-earth, practical person (and naturally skeptical) but I am also a musician and I know first hand how certain frequencies
Hi all - recently I have been investigating alternative methods of pain relief and have been directed towards Sound Frequency Healing. Let me say first off, I am very much a down-to-earth, practical person (and naturally skeptical) but I am also a musician and I know first hand how certain frequencies
BiteyDelano
in
PMRGCAuk
2 years ago
Important SARS-CoV-2 and Covid-19 information for Chronic Lymphocytic Leukaemia/CLL patients
This post, prepared in collaboration with AussieNeil , draws together some earlier posts relating to SARS-CoV-2 infection and CLL.
COVID-19 RISK FOR CLL PATIENTS
Due to their impaired humoral and cellular immune function,
CLL patients are at particular risk for infection
, including
This post, prepared in collaboration with AussieNeil , draws together some earlier posts relating to SARS-CoV-2 infection and CLL.
COVID-19 RISK FOR CLL PATIENTS
Due to their impaired humoral and cellular immune function,
CLL patients are at particular risk for infection
, including
CLLerinOz
Administrator
in
CLL Support
2 years ago
Covid Antivirals Clarification.
Firstly I’d like to say sorry if I’ve caused any alarm. Apparently Scotland and England are working from the same guidelines. From an early post you will find I asked for some clarification regarding the differences between some wording between Scotland and Englands guidance. The reply I got: In terms
Firstly I’d like to say sorry if I’ve caused any alarm. Apparently Scotland and England are working from the same guidelines. From an early post you will find I asked for some clarification regarding the differences between some wording between Scotland and Englands guidance. The reply I got: In terms
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
Chronic pain university study
Have you suffered from chronic pain and have been prescribed long-term opioid medication as a result of this? I’m conducting a research project at the University of Derby, which is exploring the experiences of individuals who have been on opioid medication for at least six months or longer due to
Have you suffered from chronic pain and have been prescribed long-term opioid medication as a result of this? I’m conducting a research project at the University of Derby, which is exploring the experiences of individuals who have been on opioid medication for at least six months or longer due to
katherine1801
in
Pain Concern
2 years ago
DRUG REPURPOSING - DOES IT WORK? by Dr. Simon Stott
"The answer to the question in the title of this post is “Yes, drug repurposing does work” and in this short blog we shall discuss examples of its utility in Parkinson’s. But first it would be wise to explain the drug development process and why drug repurposing is an exciting area of research that is
"The answer to the question in the title of this post is “Yes, drug repurposing does work” and in this short blog we shall discuss examples of its utility in Parkinson’s. But first it would be wise to explain the drug development process and why drug repurposing is an exciting area of research that is
Hidden
in
Cure Parkinson's
2 years ago
My ongoing RLS battle
This is a follow up to my post “Life After Ropinirole”. Shortly after I posted my body decided it had had too many opioiods and I became more sick than I had ever gotten on opioids before. It came on suddenly without warning. No chance to make any changes to prevent it. The nausea was so very intense
This is a follow up to my post “Life After Ropinirole”. Shortly after I posted my body decided it had had too many opioiods and I became more sick than I had ever gotten on opioids before. It came on suddenly without warning. No chance to make any changes to prevent it. The nausea was so very intense
Birdland
in
Restless Legs Syndrome
2 years ago
From pramipexole and buprenorphine to what?
Hello, I am looking for any advice on withdrawing in my unique circumstance, i.e. how to drop more pramipexole and what to take when buprenorphine is withdrawn in two months time. 10 years RLS with massive augmentation, been at the point of wanting to top myself prior to trialing Targin (oxycodone with
Hello, I am looking for any advice on withdrawing in my unique circumstance, i.e. how to drop more pramipexole and what to take when buprenorphine is withdrawn in two months time. 10 years RLS with massive augmentation, been at the point of wanting to top myself prior to trialing Targin (oxycodone with
ChickenTwisty
in
Restless Legs Syndrome
2 years ago
Gabapentin and CKD
I have CKD stage 3A. I am 57. I will be having surgery to relieve a horrible, pinched nerve in my neck. (Spinal stenosis) It is extremely painful. I don't want to take opioids for many reasons and because I have kidney disease, I only take Tylenol which is like taking air when going up against this level
I have CKD stage 3A. I am 57. I will be having surgery to relieve a horrible, pinched nerve in my neck. (Spinal stenosis) It is extremely painful. I don't want to take opioids for many reasons and because I have kidney disease, I only take Tylenol which is like taking air when going up against this level
Decembersong
in
Kidney Disease
2 years ago
University study
*REPOST* Have you suffered from chronic pain and have been prescribed long-term opioid medication as a result of this? I’m conducting a research project at the University of Derby, which is exploring the experiences of individuals who have been on opioid medication for at least 6 months or longer due
*REPOST* Have you suffered from chronic pain and have been prescribed long-term opioid medication as a result of this? I’m conducting a research project at the University of Derby, which is exploring the experiences of individuals who have been on opioid medication for at least 6 months or longer due
katherine1801
in
Pain Concern
2 years ago
Educating my Canadian Dr on opioids and RLS
I have suffered with RKS for about 10 years.I believe mine is caused by a dopamine deficiency.I live in Canada and I’m not sure my Dr woukd prescribe an opioid .. my guess is he wouldn’t.Is there any kind of literature or study that I can refer too to perhaps ask him to educate himself on RLS, as I can
I have suffered with RKS for about 10 years.I believe mine is caused by a dopamine deficiency.I live in Canada and I’m not sure my Dr woukd prescribe an opioid .. my guess is he wouldn’t.Is there any kind of literature or study that I can refer too to perhaps ask him to educate himself on RLS, as I can
Knittingasweater
in
Restless Legs Syndrome
2 years ago
Update - ADT with Zytiga Failure (Castration Resistant) after 6 Months (PSA 90.3); Firmagon still Working; PSMA PET Scan Ordered
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
diamondrn
in
Advanced Prostate Cancer
2 years ago
Tramadol and the covid booster.
Hi. I have my booster covid vaccine coming up in early January, but between now and then I will have several days of taking Tramadol (orodispersible Zamadol) for endo pain. Does anyone know how many days there should be, in between taking opioids and getting the vaccine? I'm keen to find out as I know
Hi. I have my booster covid vaccine coming up in early January, but between now and then I will have several days of taking Tramadol (orodispersible Zamadol) for endo pain. Does anyone know how many days there should be, in between taking opioids and getting the vaccine? I'm keen to find out as I know
Washington1
in
Endometriosis UK
3 years ago
New guy with old RLS
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
OudisCool
in
Restless Legs Syndrome
3 years ago
Lamictal & dental treatment
I am new here so please do bear with me. I'm starting much needed dental as my teeth are crumbling & falling out. I've been on Lamictal since my first seizure in 2013 and now on 500mg (300am/200pm) Concerned about local used to freeze - There is data everywhere but only for GA. I'm having trouble
I am new here so please do bear with me. I'm starting much needed dental as my teeth are crumbling & falling out. I've been on Lamictal since my first seizure in 2013 and now on 500mg (300am/200pm) Concerned about local used to freeze - There is data everywhere but only for GA. I'm having trouble
Alsoginger
in
Epilepsy Action
3 years ago
Chronic pain university study
Have you suffered from chronic pain and have been prescribed long-term opioid medication as a result of this? I’m conducting a research project at the University of Derby, which is exploring the experiences of individuals who have been on opioid medication for at least six months or longer due to chronic
Have you suffered from chronic pain and have been prescribed long-term opioid medication as a result of this? I’m conducting a research project at the University of Derby, which is exploring the experiences of individuals who have been on opioid medication for at least six months or longer due to chronic
katherine1801
in
Pain Concern
3 years ago
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