Experiences with

Opioid substitution treatment

They are a big complication for dental treatment options, because of how they can cause bone death in the jaw, limiting the types of procedures that dentists can safely do. But my dentist is working around them. And we are coping. So yay!

Currently waiting for dental treatment before the infusion.

If you need support with anything discussed in this post, please contact one of the organisations listed here - https://www.helpguide.org/find-help) I developed tinnitus after dental treatment. It's 24hrs and like torture. It's got louder and i'm having bad thoughts of ending it all.

I was unaware that this treatment comprises certain dental treatments, I know of extractions but uncertain if it applies to anything else. My problem is that I have a disintegrating tooth which has been patched but which the dentist said she can't do it again.

Had dental treatment 2 weeks ago and can't tolerate hot or cold due to my teeth suddenly very sensitive. I don't suspect GCA, my teeth often respond like this to dental treatment.

I've been taking pramipexole since the summer of 2020 to address severe RLS symptoms that started around the same time as the first Covid lockdown. Initially I was prescribed two 0.088 tablets but this was soon increased to four. Because I was aware of the augmentation problem I tried to stick to just

Well I met my consultant at a Glasgow hospital yesterday after about 2 years (I'm on the maintenance list now). I came armed with lots of paperwork to give him but didn't need to hand it out as he knew a lot. He was particularly pleased about the change to the NICE guidelines to drop the DAs and use

Hi guys, i havent posted on here for a while. Last year i eventually got off the horrible Ropinirole with no help from my GP. I was told to come straight off in which i did until i found this place where i started back and came down slowly. It was hell, body spasms, anxiety and depression, 4 hour nights

Hello every everyone I did I post before but not sure if it came up,as I'm not used to posting stuff. So I tell my story again. I've been on 0.125 pramipexole for about 14 yrs for RLS and noticed some time ago my legs got worse. So no and then I would add another half. Then noticed it was getting worse

Two weeks off requip.... gone on for a sleep study, no results yet. Contacted Dr. Andrew Berkowski. He can't see me until next week. Will cost close to 1000 $ but worth it if I get help. My symptoms have gotten worse. Legs start within 10 minutes of laying down. Mostly my left leg. Gone from just jerking

Have you seen this before? I just got my hubby to look this up (he’s a Dr) and send it to me as this is what my neurologist has mentioned in his letter as what he’s referring to. It was last updated Jan ‘24, but it’s interesting in some of its guidelines such as mentioning not using DA’s as first

It could be that the doctors don’t know about RLS and the change in the treatment protocol. This is what many here assume. But it could be something else as well.

I have been on Pregablin just over 3 weeks now after finally stopping the Neupro taper. My dose at present as of Monday is 150mg. I take this at 8pm. However around midnight the RLS kicks in.. not the diabolical stuff as with Neupro, nevertheless severe enough to keep me awake. Tonight I have taken 75

I've been taking 900mg of gabapentin with extremely limited success. I've not had any joy to date in getting opioids prescribed. My partner had some Codeine from a recent hospital stay and I've started taking this as a trial. To date (and it's early days) it seems to have been a game changer and I've

I was on pramiprexole for 15 years+. Gradually increasing until I discovered (me not my doctor who was clueless) the risks of augmentation. Started tapering down and was finally done with it about 6 weeks ago. The symptoms have been horrible. I started getting violent full-body convulsions when I try

Anyway...a clinical trial is soon to begin evaluating Pocenbrodib hydrochloride, a new investigational treatment for metastatic castration-resistant prostate cancer (mCRPC). Developed using advanced artificial intelligence, Pocenbrodib targets mechanisms not addressed by current therapies.

There’s a new book on the market on RLS, published last year. “Navigating Life with Restless Leg Syndrome,” by Dr. Andrew Spector. He’s a friend and colleague of Andrew Berkowski. https://www.amazon.com/Navigating-Restless-Syndrome-Brain-Books/dp/0197657001 You can watch an interview on YouTube….

I've been using Tapentadol for chronic nerve pain for the last 5 years. It has worked wonders for me, and helped eradicate any pain I had previously been experiencing. However, I guess as is standards with most pain meds, its efficacy has dropped quite dramatically over the last 6 months or so, meaning

hi for those of you on here that can’t get on with opioids due to side effects what do you take for rls? i’ve heard good things about pregabalin but is it effective? thanks

For anyone who missed posts by Joolsg and SueJohnson about AASM's drafting work last year, there is a new Clinical Practice Guideline from the AASM advising against the use of dopamine agonists for RLS except in some exceptional circumstances, strongly recommending iron therapy, and advising for gabapentinoids