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microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
7 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
7 months ago
Macular Hole
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
doubtfully
in
PMRGCAuk
7 months ago
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Atorvastatin and Ibrutinib?
I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination. However, my Haematologist has advised and I quote: "There may be an interaction and should not be given to prevent high cholesterol and if your
I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination. However, my Haematologist has advised and I quote: "There may be an interaction and should not be given to prevent high cholesterol and if your
RobertCLL
in
CLL Support
7 months ago
Recurrant water infections
Hello everyone I keep getting water infections but there is no bacteria in my urine now my doctor is sending me for ultra sound on my kidneys iam so worried.
Hello everyone I keep getting water infections but there is no bacteria in my urine now my doctor is sending me for ultra sound on my kidneys iam so worried.
Tojack
in
Women's Health
4 months ago
What doesn't mix well with Coumadin?
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Corporal_Canada
in
Hughes Syndrome APS Forum
7 months ago
Tinnitus and Cochlear implants
Hello .. I’m just enquiring if there is anyone out there who has a cochlear implant and tinnitus. I’ve had a lot of operations on my ear , and onto my second cochlear implant. I’m in pain still after these operations and still have awful tinnitus. Just trying to get on with things!
Hello .. I’m just enquiring if there is anyone out there who has a cochlear implant and tinnitus. I’ve had a lot of operations on my ear , and onto my second cochlear implant. I’m in pain still after these operations and still have awful tinnitus. Just trying to get on with things!
1Dar
in
Tinnitus UK
7 months ago
The Dreaded MR
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
ArtfulLyricist
in
Fibromyalgia Action UK
7 months ago
Elmiron making nocturia worse?
Hello everyone, I have been prescribed Elmiron for Bladder Pain Syndrome as my cystoscopy showed glomurations and water fall bleeding. I've only been on it for 4 days and I'm now getting up every hour rather than 3 times a night. I'm so tired, I have a lot of other chronic pain conditions and 2 young
Hello everyone, I have been prescribed Elmiron for Bladder Pain Syndrome as my cystoscopy showed glomurations and water fall bleeding. I've only been on it for 4 days and I'm now getting up every hour rather than 3 times a night. I'm so tired, I have a lot of other chronic pain conditions and 2 young
Cat00
in
Bladder Health UK
7 months ago
Yellowish skin,
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Hi,i have yellows.skin for 3 years.now but my liver test come back normal,i had a really high.consume alcohol,i look yellowish but with.normal bilirubin test,i have take.billirubin test seven times now,all normal,albumin normal,inr,normal,alt normal,what can it be?
Okki49
in
British Liver Trust
7 months ago
New and struggling to cope.
This is going to be a bit of a muddle to read as I am struggling to concentrate. About 3-4 weeks I started to get a 'clicking' in my left ear but only in response to certain sounds happening around me, running a tap for example would trigger it. As soon as the external noise stopped so did the clicking
This is going to be a bit of a muddle to read as I am struggling to concentrate. About 3-4 weeks I started to get a 'clicking' in my left ear but only in response to certain sounds happening around me, running a tap for example would trigger it. As soon as the external noise stopped so did the clicking
Randy101
in
Tinnitus UK
7 months ago
Sinemet Plus 25mg/100mg tablets Side effects?
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
Sarah106
in
Cure Parkinson's
7 months ago
Needing some suggestions to sitting for hours in hospital
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
I am 26 and on warfarin for a mechanical aortic valve inserted in April 23. I need to be tested very regularly, normally every 2 weeks atleast. It must be a blood test as the pin prick tests proved unreliable in my case. I spend hours and hours waiting at St Barts for a blood test which is where I am
Pefki
in
Anticoagulation Support
7 months ago
Boron, an interesting article about supplement for T3 increase
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Found this article which I found interesting as a possible supplement to assist with T3 may consider after next blood test if no improvement. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/?fbclid=IwAR3dMJ-9rLLZ47g1qBU4LbMViJROk8gIbRNhijGMMW3giwHjVbsY06Huppk
Humphre
in
Thyroid UK
7 months ago
Trying to make the most of being chronically ill and unemployed 💕
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
x_emily_x
in
Endometriosis UK
7 months ago
being redundant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
spencoid2
in
Advanced Prostate Cancer
7 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
5 months ago
Recommendations for a rheumatologist in Merseyside area please.
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus (remission) so was discharged by my rheumatologist in January 21 My GP recently did some bloods. ESR 10 He told me to contact rheumatology department
Pennypip
in
PMRGCAuk
7 months ago
I'm back....!
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....😒🙄
Bricking it now....thoracoscopy due on Thursday morning and I'm terrified....has anyone here had it done? I just hate pain of any sort even though I know I'll have sedation - Fentanyl and Midazolam -I'm still really, really panicking....😒🙄
sue32
in
Lung Conditions Community Forum
7 months ago
Problems following microsuction
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
Hi everyone. After many issues with my ears over the years including tinnitus I finally got my appointment for the ENT and went in last week. I had a hearing test and it shows some hearing loss in both ears and alsoa pressure test that showed the pressure wasn't right in both ears as well, all the doctor
andy614
in
Tinnitus UK
7 months ago
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