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Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
3 months ago
IAM having a moan,so I'm sorry.
My sister who has very bad arthritis, and was on methotrexate for years was taken off it, has had such a bad time having had sepsis and deep vein thrombosis and always in pain, hate to say even with my PMR I feel lucky I know what a comment to make as we all hate this illness. She had to fight to see
My sister who has very bad arthritis, and was on methotrexate for years was taken off it, has had such a bad time having had sepsis and deep vein thrombosis and always in pain, hate to say even with my PMR I feel lucky I know what a comment to make as we all hate this illness. She had to fight to see
Harrywogan
in
PMRGCAuk
6 months ago
piles and edoxoban
My poor hubby doesn’t seem to be able to catch a break at the moment, if you’ve read some of my previous posts concerning his stroke and AF. For the last five days he has bled after every bowel movement , he has had piles in the past but has not bled as much , I would say as much as a nosebleed ,
My poor hubby doesn’t seem to be able to catch a break at the moment, if you’ve read some of my previous posts concerning his stroke and AF. For the last five days he has bled after every bowel movement , he has had piles in the past but has not bled as much , I would say as much as a nosebleed ,
Jackiesmith7777
in
AF Association
6 months ago
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Antibiotics for UTI symptoms
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
Mint_all_day
in
Endometriosis UK
1 month ago
Post op sleeping position
Hi everyone my husband is nearly 9 months post oesophagectomy with 2/3 of his stomach removed. He was diagnosed T4aN1M0 in September last year, had the op in March and is overall recovering really well. We’re so grateful that generally he’s sleeping well but currently using an OPA wedge but slipping
Hi everyone my husband is nearly 9 months post oesophagectomy with 2/3 of his stomach removed. He was diagnosed T4aN1M0 in September last year, had the op in March and is overall recovering really well. We’re so grateful that generally he’s sleeping well but currently using an OPA wedge but slipping
Tighan
in
Oesophageal & Gastric Cancer
6 months ago
Stopping Actemra
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
phebamom
in
PMRGCAuk
6 months ago
Very noisy ears and pressure
Hi - I have been diagnosed with TMJD - I have Tinnitus mostly in the right ear, but every so often I have ghastly whooshing in both ears very noisy and a feeling of pressure , is this possibly stress anxiety related? Or the TMJD effecting the ETs - I know it's a highly complex area, I have had this T
Hi - I have been diagnosed with TMJD - I have Tinnitus mostly in the right ear, but every so often I have ghastly whooshing in both ears very noisy and a feeling of pressure , is this possibly stress anxiety related? Or the TMJD effecting the ETs - I know it's a highly complex area, I have had this T
Seabob
in
Tinnitus UK
6 months ago
Waiting PMR Diagnosis
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Grandmaziggy
in
PMRGCAuk
6 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
6 months ago
Blepharitis
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
Golden87
in
Glaucoma UK
6 months ago
GCA flares and eyesight
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Gladys911
in
PMRGCAuk
6 months ago
Anyone opted for private Cataract surgery?
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Chann
in
NRAS
6 months ago
Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
6 months ago
My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
6 months ago
central sensitivity syndrome
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Has anyone heard of CSS. My dr said this can cause restless legs and stems from childhood trauma. Sort of crappy to think that yes, my childhood was super traumatic and potentially from that I still need to suffer.
Jenevewill
in
Restless Legs Syndrome
6 months ago
Hi all. I have had concussion since August, after a fall when I banged my head. Although improving, I have a problem with bright light/glare
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
Braininfo
in
Headway
6 months ago
Interesting info
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
My husband had a dvt event a few weeks ago and had the usual response of heparin injections for 4 days,and put on apixaban. I commented to him that Apixaban will sort out the clot in his femoral vein .The AC nurse stopped me and said,no, Apixaban does not work on actual clots it prevents further ones
wilsond
in
AF Association
6 months ago
PA COVID vaccine and atherosclerosis
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
hi sweet people. I had pa diagnosis 3 month ago and severe atherosclerosis in legs and abdominal vessels. Probably also cardiac vessels All of that started a year ago with 4th COVID vaccine. Had stent surgery in femoral arteries and mesenteric artery. But my abdominal pains don’t improve. Can all
Sissiotto
in
Pernicious Anaemia Society
6 months ago
Weight loss with Felodipine anyone ?
I have now been on Felodipine 2.5mg for 10 days I have reduced appetite and have lost 4 pounds. I am usually 7st 10lbs and really don't want to lose any weight at all. I have IBS and had a bad flare up with diahorrea but didn't notice any weight loss at that point. Have an appointment with GP 26th but
I have now been on Felodipine 2.5mg for 10 days I have reduced appetite and have lost 4 pounds. I am usually 7st 10lbs and really don't want to lose any weight at all. I have IBS and had a bad flare up with diahorrea but didn't notice any weight loss at that point. Have an appointment with GP 26th but
BobbyCollins
in
High Blood Pressure Support
3 months ago
I have some questions that maybe someone can help me with.
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Hi! I have recently had some bloodwork and some new things popped up - and I was wondering if it is lupus related, or something entirely on its own. I am currently on Coumadin (Warfarin) for several pulmonary embolisms, and now my hemoglobin is high and my erythrocytes are high. Also, I am now
Willow7733
in
LUPUS UK
6 months ago
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