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Jak2 now "Undetectable"
Hi I was diagnosed with Jak2 positive PV back in May 2019, after months of venesections I was put on Peginterferon in Nov 2019. The first year I was 0n 45mg which worked well, without the need for any venesections. Then my HCT started to creep up again. Over the coarse of 9-10 months they gradually
Hi I was diagnosed with Jak2 positive PV back in May 2019, after months of venesections I was put on Peginterferon in Nov 2019. The first year I was 0n 45mg which worked well, without the need for any venesections. Then my HCT started to creep up again. Over the coarse of 9-10 months they gradually
WindyGale
in
MPN Voice
10 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
6 months ago
Friend in need of help
A very close friend (82 years old) was admitted to the hospital on New Years eve with severe back and Chess pain. After tests, scans, MRI and blood tests he was diagnosed as follow: PSA 3882 up from 7.6 the prior year. stage 4 prostate CANCER (T3/T4) that has metastasized to his spine, lesions
A very close friend (82 years old) was admitted to the hospital on New Years eve with severe back and Chess pain. After tests, scans, MRI and blood tests he was diagnosed as follow: PSA 3882 up from 7.6 the prior year. stage 4 prostate CANCER (T3/T4) that has metastasized to his spine, lesions
old64horn
in
Advanced Prostate Cancer
6 months ago
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After bicalutimide and a high testosterone level is pre treatment T just guess work?
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
SimMartin
in
Prostate Cancer Network
6 months ago
PSA Rising
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
TheTopBanana
in
Advanced Prostate Cancer
6 months ago
Any Curative Treatments after RT as Sole Primary Treatment?
I see stories about RT as a treatment after RP with BCR, but don't see much when RT has been sole treatment. (See Bio-not even any ADT). PSMA-PET is clear currently, so no target for radiation. PSA has been rising, but not officially nadir plus 2, but the old 3 rises in a row has been reached. If there
I see stories about RT as a treatment after RP with BCR, but don't see much when RT has been sole treatment. (See Bio-not even any ADT). PSMA-PET is clear currently, so no target for radiation. PSA has been rising, but not officially nadir plus 2, but the old 3 rises in a row has been reached. If there
Researcher50
in
Advanced Prostate Cancer
6 months ago
MSK Consult Today
Thanks to everyone who has given me excellent advice regarding my husband’s pca recurrence. Today we met with an MSK uro oncologist for a second opinion. He completely agreed and supported the plan of radiating the high pelvic nodes (including the lower abdominal nodes along the bifurcation) and slightly
Thanks to everyone who has given me excellent advice regarding my husband’s pca recurrence. Today we met with an MSK uro oncologist for a second opinion. He completely agreed and supported the plan of radiating the high pelvic nodes (including the lower abdominal nodes along the bifurcation) and slightly
103532
in
Advanced Prostate Cancer
6 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
6 months ago
Do I need an Oncologist?
Originally had PSA test that came back 28+ and was referred to Urologist. I was not interested in Surgery so the Urologist referred me to a Radiation Oncologist. After the radiation treatments were over I went back to the Urologist to continue the Lupron treatments. My last visit with the Radiation Team
Originally had PSA test that came back 28+ and was referred to Urologist. I was not interested in Surgery so the Urologist referred me to a Radiation Oncologist. After the radiation treatments were over I went back to the Urologist to continue the Lupron treatments. My last visit with the Radiation Team
johnson2691
in
Advanced Prostate Cancer
6 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
10 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
6 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
6 months ago
How bad are these PSMA Pet Scan Results?
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
hiker75
in
Advanced Prostate Cancer
6 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
6 months ago
Positive clonus and lupus
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Sunshine634
in
LUPUS UK
10 months ago
omeperazole with methotrexate
I have RA and taking Sulfasalazine and Methotrexate (20 mg orally). I take Omeperazole too as a protector as was initially taking Celecoxib for pain relief before my symptoms were under control. I no longer require pain relief so I’m wondering if I need to continue with Omeperazole? Are others taking
I have RA and taking Sulfasalazine and Methotrexate (20 mg orally). I take Omeperazole too as a protector as was initially taking Celecoxib for pain relief before my symptoms were under control. I no longer require pain relief so I’m wondering if I need to continue with Omeperazole? Are others taking
MichMx
in
NRAS
10 months ago
PSA Rising and MRI Negative
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
Inquisitive_one
in
Advanced Prostate Cancer
6 months ago
Sudden increase of PSA...
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
Max24
in
Advanced Prostate Cancer
6 months ago
Amitiptyline
Hi All Hope you are all keeping well I just wondered if there is anyone on her taking Amitrptyline ? While taking Apixaban and Bisopolo. I’ve been proscribed it for arthritis pain Thanks in advance
Hi All Hope you are all keeping well I just wondered if there is anyone on her taking Amitrptyline ? While taking Apixaban and Bisopolo. I’ve been proscribed it for arthritis pain Thanks in advance
exmouth
in
Atrial Fibrillation Support
1 year ago
Update Castrate Resistant Metastatic Cancer
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
dac500
in
Advanced Prostate Cancer
7 months ago
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