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NRAS BBC Radio 4 Appeal - This Sunday
NRAS is delighted to announce that we have been selected to take part in the BBC Radio 4 Appeal this month. Tune in to hear our charity appeal with Rheumatoid Arthritis (RA) advocate, Kirsty Young, on Sunday 10th September at 07:54 and 21:25 and on Thursday 14th Sept at 15:27. https://nras.org.uk/bbcappeal
NRAS is delighted to announce that we have been selected to take part in the BBC Radio 4 Appeal this month. Tune in to hear our charity appeal with Rheumatoid Arthritis (RA) advocate, Kirsty Young, on Sunday 10th September at 07:54 and 21:25 and on Thursday 14th Sept at 15:27. https://nras.org.uk/bbcappeal
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NRAS
10 months ago
Side effects from Xtandi monotherapy?
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
SViking
in
Advanced Prostate Cancer
3 months ago
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
3 months ago
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another undetectable
PSA in again at undetectable which I am assuming means my testosterone is not recovering . No T result yet but 0.5 last month! Still on Apalutamide as a monotherapy but coming off that too is bouncing around my head. Would love to go med free, still watching all developments and still no idea of the
PSA in again at undetectable which I am assuming means my testosterone is not recovering . No T result yet but 0.5 last month! Still on Apalutamide as a monotherapy but coming off that too is bouncing around my head. Would love to go med free, still watching all developments and still no idea of the
Brysonal
in
Fight Prostate Cancer
3 months ago
Opinions on my 2nd MRI results
Hello, I just received the results from 2nd MRI (results below and photos in reply), previous one was from Jan/2023 (results in bio). Having been on these forums for almost two years now, and in AS at UCLA, I highly value the opinion of those here that have similar experiences to my situation. Questions
Hello, I just received the results from 2nd MRI (results below and photos in reply), previous one was from Jan/2023 (results in bio). Having been on these forums for almost two years now, and in AS at UCLA, I highly value the opinion of those here that have similar experiences to my situation. Questions
Maximode
in
Prostate Cancer Network
3 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
3 months ago
When is PARP introduced?
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
positive-thinking
in
Advanced Prostate Cancer
3 months ago
herbicide and recurrence
I'm looking for scientific evidence on herbicide exposure and cancer recurrence. Background: My condo association wants to spray my lawn with herbicide. (2-4-d & dicamba; thankfully not glyphosate--at least not yet) I've asked them not to and suggested safer alternatives. They say I'm being a PIA
I'm looking for scientific evidence on herbicide exposure and cancer recurrence. Background: My condo association wants to spray my lawn with herbicide. (2-4-d & dicamba; thankfully not glyphosate--at least not yet) I've asked them not to and suggested safer alternatives. They say I'm being a PIA
mistersafety
in
Advanced Prostate Cancer
3 months ago
salvage radiation after surgery?
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Hi - Shouldn’t I be doing salvage radiation or chemotherapy now? I had my surgery February 25 and Doctor wants to wait for first PSA iat end of May. However surgical pathology showed negative margins but showed intraductal, cribriform, loss of PTEN. and PNI. Even though there was no EPE, no SVI, No LVI
Granolaberry
in
Prostate Cancer Network
3 months ago
stopping Abiratrerone
I was diagnosed with PC in Jan 2001 with Gleason of 4+ and a PSA that never got above 10. From a PSMA scan, I have bone metasteses in skull, ribs, backbone, hips, pelvic bone. WE believe that in my case PSA has never been a very useful measure. I have been taking Abiraterone, Prostap and prednisolone
I was diagnosed with PC in Jan 2001 with Gleason of 4+ and a PSA that never got above 10. From a PSMA scan, I have bone metasteses in skull, ribs, backbone, hips, pelvic bone. WE believe that in my case PSA has never been a very useful measure. I have been taking Abiraterone, Prostap and prednisolone
Stephen399b
in
Advanced Prostate Cancer
3 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
3 months ago
Cause for concern?
Would you please comment on the following article which may mean a new PET scan is required I'm my case? ( I Hope not!!) Extract from a recent article which is double Dutch to me!!! "...... Ignorant/lazy docs only take notice of the PSA, when it is widely known that at low PSA PSADT is equally, if not
Would you please comment on the following article which may mean a new PET scan is required I'm my case? ( I Hope not!!) Extract from a recent article which is double Dutch to me!!! "...... Ignorant/lazy docs only take notice of the PSA, when it is widely known that at low PSA PSADT is equally, if not
m1946
in
Prostate Cancer Network
3 months ago
Pluvicto+Xtandi Delays Progression Better than Xtandi-alone in mCRPC
Significant improvement in progression-free survival, PSA, and pain scores. Side effects were fatigue, nausea and dry mouth. https://www.prostatecancer.news/2024/04/pluvictoxtandi-delays-progression.html
Significant improvement in progression-free survival, PSA, and pain scores. Side effects were fatigue, nausea and dry mouth. https://www.prostatecancer.news/2024/04/pluvictoxtandi-delays-progression.html
Tall_Allen
in
Advanced Prostate Cancer
3 months ago
Calcinosis
I was diagnosed with scleroderma in 1998. I had been diagnosed with Raynauds before that and Rheumatoid Arthritis. Lucky me! My hands give me the most bother nowadays. Lots of pain and loss of dexterity. Does anyone have any tips to soften Calcinosis lumps? I have one on the inside of each thumb
I was diagnosed with scleroderma in 1998. I had been diagnosed with Raynauds before that and Rheumatoid Arthritis. Lucky me! My hands give me the most bother nowadays. Lots of pain and loss of dexterity. Does anyone have any tips to soften Calcinosis lumps? I have one on the inside of each thumb
SheenaC
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
worse discomfort on edoxaban
Hi , I'm new to forum and AF, I'm about 3 weeks into my first box og Edoxaban and I also have been wondering whether its causing my discomfort to be worse. I've had both osteoarthritis and inflammatory arthritis for more than 10 years and am feeling more uncomfortable, paticularly at night which
Hi , I'm new to forum and AF, I'm about 3 weeks into my first box og Edoxaban and I also have been wondering whether its causing my discomfort to be worse. I've had both osteoarthritis and inflammatory arthritis for more than 10 years and am feeling more uncomfortable, paticularly at night which
femalegannet
in
AF Association
11 months ago
Treatment
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
adam1967adam
in
Advanced Prostate Cancer
3 months ago
Expectations
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
Eadgbe
in
Advanced Prostate Cancer
3 months ago
Aquablation with APC
Hi there - does anyone here have experience with an aquablation procedure to improve urinary symptoms? My father is considering it. He has been on doublet therapy for 1.5 years, his PSA recently started to tick up a little. It's been difficult to get a clear answer on whether the procedure poses any
Hi there - does anyone here have experience with an aquablation procedure to improve urinary symptoms? My father is considering it. He has been on doublet therapy for 1.5 years, his PSA recently started to tick up a little. It's been difficult to get a clear answer on whether the procedure poses any
nyc_son
in
Advanced Prostate Cancer
3 months ago
xtandi beginning to fail?
Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a answer. March 11th PSA at my MO’s office PSA was < 0.1. MO was happy with that number. I get checked again the 25th of this month at my URO. I
Seven months ago my PSA was 0.06. Three months ago PSA at my URO’s office was 0.11. I asked him if xtandi was beginning to fail me, he would not give me a answer. March 11th PSA at my MO’s office PSA was < 0.1. MO was happy with that number. I get checked again the 25th of this month at my URO. I
Echotango51
in
Advanced Prostate Cancer
3 months ago
Looking for advice for my newly diagnosed dad
Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with urine retention. A Ct scan he had in hospital showed 2 small mets in pelvic area. He’s had a biopsy which showed Gleason 4 +5 and his PSA in hospital
Hello, I was wondering if you can offer some thoughts on my dad’s situation. He was diagnosed with prostate cancer in February after a week in hospital with urine retention. A Ct scan he had in hospital showed 2 small mets in pelvic area. He’s had a biopsy which showed Gleason 4 +5 and his PSA in hospital
Springsunshi
in
Advanced Prostate Cancer
3 months ago
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