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What is my best treatment option?
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
davidw777
in
Advanced Prostate Cancer
6 months ago
Help, bad Decipher results, this changes everything, please advise (NE WI area but will travel)
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
AliceinW57
in
Prostate Cancer Network
6 months ago
Surgery vs SBRT Cyberknife
I posted this in the Advanced PC group and shouldn't have, as my Hubs is not in an advanced stage. Posting here in hopes of more input! I apologize if you are in the other group and have already seen this! Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first
I posted this in the Advanced PC group and shouldn't have, as my Hubs is not in an advanced stage. Posting here in hopes of more input! I apologize if you are in the other group and have already seen this! Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first
Pride123
in
Prostate Cancer Network
6 months ago
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2 or 3 yrs ADT
I was diagnosed im Jan 2022 with Gleason 9. PSA was 5.68. Prostatectomy in April 2022. The post surgical pathology showed 1 of 9 lymph nodes was positive, positive margins and one seminal vesical positive. Started Eligard in June 22 and abiraterone with predisone in July 2022. Radiation (34 days, 68
I was diagnosed im Jan 2022 with Gleason 9. PSA was 5.68. Prostatectomy in April 2022. The post surgical pathology showed 1 of 9 lymph nodes was positive, positive margins and one seminal vesical positive. Started Eligard in June 22 and abiraterone with predisone in July 2022. Radiation (34 days, 68
snugrose
in
Advanced Prostate Cancer
6 months ago
Blood in stool..
Sorry for the Poo talk but here goes.. About a week and a half ago, i was wiping and noticed pink on the paper. When i was done i got the flashlight on and saw a red blood streak along the turd. On the outside of it. It went away so i thought it’s a one-off. then the last couple days three more
Sorry for the Poo talk but here goes.. About a week and a half ago, i was wiping and noticed pink on the paper. When i was done i got the flashlight on and saw a red blood streak along the turd. On the outside of it. It went away so i thought it’s a one-off. then the last couple days three more
groundhogy
in
Advanced Prostate Cancer
6 months ago
biopsy - fragmented cores and progression risk
I had 3 biopsies from January 2020 to July 2022. The first two almost identical being Gleason 3+4 with <10% 4. However 6 months post HIFU it was Gleason 9 with 4+5 with 10% 5 and 70% 5 (see below). I am curious as the cores are fragmented and so it’s hard to know what this means and if it makes any
I had 3 biopsies from January 2020 to July 2022. The first two almost identical being Gleason 3+4 with <10% 4. However 6 months post HIFU it was Gleason 9 with 4+5 with 10% 5 and 70% 5 (see below). I am curious as the cores are fragmented and so it’s hard to know what this means and if it makes any
SimMartin
in
Advanced Prostate Cancer
6 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
6 months ago
new to methotrexate: will my MTX fatigue fade or continue?
I'm just a beginner here, having received an RA diagnosis in December on the basis of blood tests (I have no joint pain or problems, but my blood markers agree with the RA diagnosis; elevated RA and anti-CCP). I also have three other diagnoses: PSA (psoriatic arthritis), PMR (polymyalgia rheumatica),
I'm just a beginner here, having received an RA diagnosis in December on the basis of blood tests (I have no joint pain or problems, but my blood markers agree with the RA diagnosis; elevated RA and anti-CCP). I also have three other diagnoses: PSA (psoriatic arthritis), PMR (polymyalgia rheumatica),
benhemp
in
NRAS
6 months ago
Pluvicto (lutetium Lu 177
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
anonymoose2
in
Advanced Prostate Cancer
6 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
6 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
6 months ago
Radium 223 offered
Hi everyone Husband diagnosed nearly 51/2 years ago. Stage 4 with mets to spine and hip (4 in total) none to organs etc. Had Chemo five years ago ,Zytiga +Pred for 2 1/2 years (now failing ) as PSA is up to 37. We are in UK as some of you know, and Clint has been offered Radium 223 for his bone mets
Hi everyone Husband diagnosed nearly 51/2 years ago. Stage 4 with mets to spine and hip (4 in total) none to organs etc. Had Chemo five years ago ,Zytiga +Pred for 2 1/2 years (now failing ) as PSA is up to 37. We are in UK as some of you know, and Clint has been offered Radium 223 for his bone mets
16starsky
in
Advanced Prostate Cancer
6 months ago
Firmagon seems to have stopped suppressing testosterone
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
Hi everyone I have been taking firmagon adt treatment for 6 years for stage 4 cancer last 2 blood tests have one a month showed increase in testosterone 0.76 in December then January test 1.76 this last test also showed a rise in psa has anyone had this problem I'm getting the shot regularly
johnscats
in
Advanced Prostate Cancer
6 months ago
Surgery vs SBRT Cyberknife
Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first, "slow growing, non aggressive" he believes is contained by looking at margins and pathology. Met with Radiology Oncologist, "favorable intermediate risk, non aggressive" he believes it is contained. Both
Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first, "slow growing, non aggressive" he believes is contained by looking at margins and pathology. Met with Radiology Oncologist, "favorable intermediate risk, non aggressive" he believes it is contained. Both
Pride123
in
Advanced Prostate Cancer
6 months ago
PSA Gone Up
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
I had RP in January of 2023, started ADT in May of 2023 and went through 38 session of SRT between July and August. In am currently on my second six month dose of Eligard and it should be done in May of this year. In November 2023, I had my first PSA test since SRT and it was .008 ng/mL. I just got
toyman79912
in
Advanced Prostate Cancer
6 months ago
PSA holding low after all!!
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
As I complained a couple of months ago that PSA could be increasing, today the PSA moved a bit down from 0.03 3 months ago to 0.01 today :-), so I needed to write a few words here about my feelings. With a warm-hearted attitude, somehow enthusiastic but foolish too, as these things are never static,
Paulo1968
in
Advanced Prostate Cancer
6 months ago
3 month PSA post RT/ADT, low enough?
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
51, diagnosed at age 50 (Pirad 5 w/ ECE, 3+4 (20%), PSA 10.1, negative PSMA, Decipher high 0.84). I received SBRT treatment at UCLA in late October, 2023 (finished 10/25). I’ve been on ADT since October 16, 2023 and am scheduled to end ADT this March. I had my first follow up PSA test on 1/19 and it
sptill72
in
Prostate Cancer Network
6 months ago
Post triple therapy options?
This past summer, I wrote because my husband's PSA numbers started doubling very quickly. (see quick recap below) By the time we got the PSMA PET scan a few weeks later, there were too many tumors in the bones to count. We jumped into triple therapy: Eligard, Nubeqa, and chemo. David's last chemo (6
This past summer, I wrote because my husband's PSA numbers started doubling very quickly. (see quick recap below) By the time we got the PSMA PET scan a few weeks later, there were too many tumors in the bones to count. We jumped into triple therapy: Eligard, Nubeqa, and chemo. David's last chemo (6
TK934
in
Advanced Prostate Cancer
6 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
6 months ago
My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
6 months ago
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