Search
Search
About
Log in
Join
Experiences with
Non-specific urethritis
Posts
Communities
15,583 public posts
Filter results
Constipation is a known issue with the Orgovyx
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
NewPotatoCaboose
in
Advanced Prostate Cancer
1 month ago
Does this mark the beginning of castration resistance?
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Agh-2022
in
Advanced Prostate Cancer
1 month ago
Diet for ADT
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
Worked_the_World
in
Prostate Cancer Network
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Diet for duration of ADT?
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
Worked_the_World
in
Advanced Prostate Cancer
1 month ago
Cancer return alert without scan or PSA ?
I'm more curious than anything to hear if you knew the cancer had returned somehow before any scan or blood test really told you? Pain? Bladder issues? Other signs ??? I'm wondering how many really knew somehow or sensed it and it was later confirmed ? Most people are very in-tuned to their own body
I'm more curious than anything to hear if you knew the cancer had returned somehow before any scan or blood test really told you? Pain? Bladder issues? Other signs ??? I'm wondering how many really knew somehow or sensed it and it was later confirmed ? Most people are very in-tuned to their own body
positive-thinking
in
Advanced Prostate Cancer
1 month ago
drug interaction
I have persistant AF treated with Apixaban , Digoxin and Losartan. I also have Rheumatoid arthritis . I have had problems with RA biologic drugs, Am on no arthritis drugs at moment. But, following a blood test for R A flare up my GP ( never met him) prescribed Cochicine over the phone. Uric acid levels
I have persistant AF treated with Apixaban , Digoxin and Losartan. I also have Rheumatoid arthritis . I have had problems with RA biologic drugs, Am on no arthritis drugs at moment. But, following a blood test for R A flare up my GP ( never met him) prescribed Cochicine over the phone. Uric acid levels
Luludean
in
AF Association
10 months ago
Protein discovery could help solve prostate cancer drug resistance Date:January 22, 2024 Source:Washington State University
I found this information while researching my husband's PSA rising issues. Found it interesting and want to share. Click on link to read the entire article https://www.sciencedaily.com/ Protein discovery could help solve prostate cancer drug resistance Date: January 22, 2024 Source: Washington
I found this information while researching my husband's PSA rising issues. Found it interesting and want to share. Click on link to read the entire article https://www.sciencedaily.com/ Protein discovery could help solve prostate cancer drug resistance Date: January 22, 2024 Source: Washington
MsHope
in
Advanced Prostate Cancer
1 month ago
Any enzalutamide for chemo?
Tall Allen recently posted about a trial in which taking enzalutamide during docetaxel chemotherapy might help get the PSA down. Abiraterone failed for me recently and I’m re-challenging with docetaxel. I’m based in the UK, and NHS protocol doesn’t allow this. Should I go off -piste and take enzalutimde
Tall Allen recently posted about a trial in which taking enzalutamide during docetaxel chemotherapy might help get the PSA down. Abiraterone failed for me recently and I’m re-challenging with docetaxel. I’m based in the UK, and NHS protocol doesn’t allow this. Should I go off -piste and take enzalutimde
Tonyliv
in
Advanced Prostate Cancer
1 month ago
Radiation at low PSA levels
I saw an article or a feed somewhere for starting radiation for recurrence after RP that salvage radiation at around 0.05 level provides a higher potential for cure vs. waiting until it rises to 0.20+. Has anyone seen this article or statistic? Tx
I saw an article or a feed somewhere for starting radiation for recurrence after RP that salvage radiation at around 0.05 level provides a higher potential for cure vs. waiting until it rises to 0.20+. Has anyone seen this article or statistic? Tx
Peppertree602
in
Advanced Prostate Cancer
2 months ago
Is anyone familiar with the GUN trial?
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
EvFC
in
Advanced Prostate Cancer
2 months ago
ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
2 months ago
Expanded label sought for 177Lu-PSMA-617 in prostate cancer: about time
I have already done the taxane part and I would like to see how 177Lu performs as first line...but this is also interesting, it seems more effective than a change in ARPI in castration resistant setting "Data also showed that a PSA decline of at least 50% was more than 2.5 times more frequent with 177Lu-PSMA
I have already done the taxane part and I would like to see how 177Lu performs as first line...but this is also interesting, it seems more effective than a change in ARPI in castration resistant setting "Data also showed that a PSA decline of at least 50% was more than 2.5 times more frequent with 177Lu-PSMA
Maxone73
in
Advanced Prostate Cancer
2 months ago
Anti thyroglobulin Antibody High
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
I'd a mole removed from my right shoulder blade last November that was initially feared to be cancerous, but thankfully wasn't so. Since then I have an annoying pain in my right upper abdomen. Have had an endoscopy( am awaiting report but consultant didn't seem overly concerned) had a cystoscopy which
TOTTY1
in
Thyroid UK
2 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
2 months ago
Update May 15, 2024
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
MsHope
in
Advanced Prostate Cancer
2 months ago
Pluvicto damaging salivary glands?
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Kayakbob
in
Advanced Prostate Cancer
2 months ago
High Gleason score + .2 PSA
Want to share this link about when to start salvage radiation after surgery. Only a few years ago, the cutoff PSA for starting radiation was .5 Now, my doc and others want to start before it gets to .2 (I'm at .11, and I have a "risk factor" due to Gleason 9 score) https://www.cancernetwork.com/view
Want to share this link about when to start salvage radiation after surgery. Only a few years ago, the cutoff PSA for starting radiation was .5 Now, my doc and others want to start before it gets to .2 (I'm at .11, and I have a "risk factor" due to Gleason 9 score) https://www.cancernetwork.com/view
SarcoPenyaJr
in
Prostate Cancer And Gay Men
2 months ago
Reference Library of Papers about Dutasteride for Treating Prostate Cancer
Here is a library of 20 papers about using Dutasteride to treat prostate cancer. In one study, Dutasteride monotherapy reduces PSA by 50%, reduces prostate volume by 25%, and reduces tumor volume by 30%, after 6 months of treatment, compared to placebo (Moore, 2017). https://pubmed.ncbi.nlm.nih.gov
Here is a library of 20 papers about using Dutasteride to treat prostate cancer. In one study, Dutasteride monotherapy reduces PSA by 50%, reduces prostate volume by 25%, and reduces tumor volume by 30%, after 6 months of treatment, compared to placebo (Moore, 2017). https://pubmed.ncbi.nlm.nih.gov
janebob99
in
Advanced Prostate Cancer
2 months ago
2018 still kicking
Good morning, Brothers. I was diagnosed on February 27th, 2018, and just got my most recent report. PSA is still 0.1 bone mets, which are still multiple but stable, either no uptake or diminished some. My only treatments have been Zytiga and Prendisone with Eligard injection every six months. I also
Good morning, Brothers. I was diagnosed on February 27th, 2018, and just got my most recent report. PSA is still 0.1 bone mets, which are still multiple but stable, either no uptake or diminished some. My only treatments have been Zytiga and Prendisone with Eligard injection every six months. I also
leo2634
in
Advanced Prostate Cancer
2 months ago
Rectitis caring
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Karmaji
in
Advanced Prostate Cancer
2 months ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
8734 results
NRAS
2047 results
Prostate Cancer Network
1053 results
View top 10 communities
Sort by
Most Relevant
Newest