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right knee replacement
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
kreg001
in
Advanced Prostate Cancer
8 months ago
Complementary Therapies - Your Experience?
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
32Percenter
in
Advanced Prostate Cancer
8 months ago
4 Consecutive Rises in PSA. Still low but perhaps time to move on? HELP, I'm only 59
DX 4 1/2 years ago. Been on Lupron and Deraludimide for 4 1/2 years. PSA has risen from .014 to .037 in 4 months. 4 consecutive rises. I test every 30 days. I had bone mets and lymph node involvement. Any thoughts on next treatment? Try Xandi? Move to Pluvicto? Help i have 3 young kids.
DX 4 1/2 years ago. Been on Lupron and Deraludimide for 4 1/2 years. PSA has risen from .014 to .037 in 4 months. 4 consecutive rises. I test every 30 days. I had bone mets and lymph node involvement. Any thoughts on next treatment? Try Xandi? Move to Pluvicto? Help i have 3 young kids.
Longterm101
in
Advanced Prostate Cancer
8 months ago
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PSA 0.5, 6 yrs after prostatectomy
Hi all, My father's PSA has risen to 0.5 today. He had the prostate removal 6.5 yrs back in 2017. His gleason score was 8, PSA around 20 at the time of surgery. However post surgery, it was indicated that seminal vesicles were clean and no occurence in lymph nodes so it was indeed a localized tumor
Hi all, My father's PSA has risen to 0.5 today. He had the prostate removal 6.5 yrs back in 2017. His gleason score was 8, PSA around 20 at the time of surgery. However post surgery, it was indicated that seminal vesicles were clean and no occurence in lymph nodes so it was indeed a localized tumor
VikPa
in
Prostate Cancer Network
8 months ago
declining psa
I’m 8 years post RP and my PSA has gradually been going up over the past 6 years. When it hit 0.1 I saw a radiation oncologist to discuss options. He said I had a biochemical recurrence but is happy to monitor things and would only consider recommending salvage radiation when I get closer to 0.2. However
I’m 8 years post RP and my PSA has gradually been going up over the past 6 years. When it hit 0.1 I saw a radiation oncologist to discuss options. He said I had a biochemical recurrence but is happy to monitor things and would only consider recommending salvage radiation when I get closer to 0.2. However
Fransella
in
Active Surveillance - Prostate Cancer
8 months ago
Attendance Allowance for PA Sufferer's
Hi everyone Has anyone with Palindromic Arthritis submitted a claim fro Attendance Allowance? I am in two minds as I need help when PA strikes at various joints and then living a normal life until it returns again Any thoughts welcome
Hi everyone Has anyone with Palindromic Arthritis submitted a claim fro Attendance Allowance? I am in two minds as I need help when PA strikes at various joints and then living a normal life until it returns again Any thoughts welcome
35395
in
NRAS
1 year ago
ADT + darolutamide + docetaxel (ARASENS trial) has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Maxone73
in
Advanced Prostate Cancer
8 months ago
PSA Tests
Every 6 months, I get a standard PSA test (following surgery and radiation four years ago) and it is "undetectable". Under what conditions is an ultrasensitive PSA test useful?
Every 6 months, I get a standard PSA test (following surgery and radiation four years ago) and it is "undetectable". Under what conditions is an ultrasensitive PSA test useful?
Polaris1
in
Advanced Prostate Cancer
8 months ago
"Pluvicto"
Has anyone doing the six stages of Pluvicto, or finished the set, found that it has dropped their PSA ?? I will be taking my third infusion but have not done any blood work yet for PSA. Curious............................
Has anyone doing the six stages of Pluvicto, or finished the set, found that it has dropped their PSA ?? I will be taking my third infusion but have not done any blood work yet for PSA. Curious............................
Kian28
in
Advanced Prostate Cancer
8 months ago
Patient-Initiated Follow-Up appointments survey
NHS England are currently transforming the way outpatient services are delivered across all health areas and as part of this, have suggested that people with stable inflammatory arthritis should not continue to have regular annual or six-monthly appointments to see their rheumatology-team but only see
NHS England are currently transforming the way outpatient services are delivered across all health areas and as part of this, have suggested that people with stable inflammatory arthritis should not continue to have regular annual or six-monthly appointments to see their rheumatology-team but only see
Hidden
Partner
in
NRAS
1 year ago
Pain in top of both feet
Hi. I have fibo and arthritis. I have just had methotrexate increased to 17.5 each week by pen jag. I have recently started having pain across top of my feet walking or sitting still. Usually one at a time. I am not sure if this caused by my fibo. Has anyone any experience of this type of pain. Thanks
Hi. I have fibo and arthritis. I have just had methotrexate increased to 17.5 each week by pen jag. I have recently started having pain across top of my feet walking or sitting still. Usually one at a time. I am not sure if this caused by my fibo. Has anyone any experience of this type of pain. Thanks
Jonn9
in
Fibromyalgia Action UK
1 year ago
from undetectable to 0.02
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
Peppertree602
in
Advanced Prostate Cancer
8 months ago
Aspirin trials
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
Runner1957
in
Prostate Cancer Network
8 months ago
Abiraterone SE when added to Lupron?
I am a PSA =2, low volume, oligometastic HSPC. I got my first Lupron shot 4 weeks ago. I started to get a couple hot flashes per day in the last week from the Lupron and of course I expect fatigue to kick in over the next six weeks. What additional side effects might I expect by adding the abiraterone
I am a PSA =2, low volume, oligometastic HSPC. I got my first Lupron shot 4 weeks ago. I started to get a couple hot flashes per day in the last week from the Lupron and of course I expect fatigue to kick in over the next six weeks. What additional side effects might I expect by adding the abiraterone
jackwfrench
in
Advanced Prostate Cancer
8 months ago
Finished 8 Rounds of Docetaxel
Hi Fellow Warriors, Four weeks ago I finished up 8 rounds of Docetaxel. This year has been a medical shit show: 2 UTIs, pneumonia, Covid, sepsis, sinus infection which became chronic sinusitis, numerous falls with the last fall resulting in a dislocated hip. The good news! Before starting Docetaxel
Hi Fellow Warriors, Four weeks ago I finished up 8 rounds of Docetaxel. This year has been a medical shit show: 2 UTIs, pneumonia, Covid, sepsis, sinus infection which became chronic sinusitis, numerous falls with the last fall resulting in a dislocated hip. The good news! Before starting Docetaxel
MJCA
in
Advanced Prostate Cancer
8 months ago
Sounds like a plan, start 10/2.
IMPRESSION: Seventy-four-year-old male with unfavorable intermediate risk prostatic adenocarcinoma, PSA 6.8 ng/mL and Gleason 7 (4+3). RECOMMENDATION: He wishes to proceed with definitive EBRT to the prostate & SV. Total dose will be 81 Gy/45 fractions on TrueBeam using RapidArc VMAT with daily CBCT
IMPRESSION: Seventy-four-year-old male with unfavorable intermediate risk prostatic adenocarcinoma, PSA 6.8 ng/mL and Gleason 7 (4+3). RECOMMENDATION: He wishes to proceed with definitive EBRT to the prostate & SV. Total dose will be 81 Gy/45 fractions on TrueBeam using RapidArc VMAT with daily CBCT
Hobie14
in
Prostate Cancer Network
8 months ago
Tumor Mutation Burden
Last genetic test has shwon TMB 10.86 and the orevious one (in March, 2023) showed the value of 8.68. Will increased TMB require the addition of PARP inhibitors to my current therapy consisting of Loupron and Abiraterone? Anyone has similar experience? My history can be seen under bio. Just to add that
Last genetic test has shwon TMB 10.86 and the orevious one (in March, 2023) showed the value of 8.68. Will increased TMB require the addition of PARP inhibitors to my current therapy consisting of Loupron and Abiraterone? Anyone has similar experience? My history can be seen under bio. Just to add that
venecia1983
in
Advanced Prostate Cancer
8 months ago
Wood-burning stoves may raise risk of arthritis
Article in the Times https://www.thetimes.co.uk/article/7cfc70ba-eea0-11ed-b02d-cefaa3091195?shareToken=8cef518770ce3d9f551ad9573e62126b
Article in the Times https://www.thetimes.co.uk/article/7cfc70ba-eea0-11ed-b02d-cefaa3091195?shareToken=8cef518770ce3d9f551ad9573e62126b
Bookworm55
in
NRAS
1 year ago
ART NIH Predicting the Outcome of Salvage Radiation Therapy for Recurrent Prostate Cancer After Radical Prostatectomy
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
Summary: Patients in this audience have had both radical prostatectomies (RP) and salvage radiation treatment (sRT) and want to know their chances of having recurrent prostate cancer. This study developed a predictive model called a nomogram that predicts the 6-year progression-free probability (PFP
RMontana
in
Active Surveillance - Prostate Cancer
8 months ago
Fibromyalgia related?
Not really sure I can explain this properly but I have a weird sensation mainly in my back like tingling although I sometimes feel it's like something crawling under my skin to. I have fibro arthritis hypothyroidism and going through menopause I also have angina
Not really sure I can explain this properly but I have a weird sensation mainly in my back like tingling although I sometimes feel it's like something crawling under my skin to. I have fibro arthritis hypothyroidism and going through menopause I also have angina
jojotom
in
Fibromyalgia Action UK
1 year ago
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