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ED No More (the prequel)
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
Bangkok
in
Advanced Prostate Cancer
11 months ago
running
I would love to start running, however I have bad knees and the start of osteoarthritis. Do you think I could!!
I would love to start running, however I have bad knees and the start of osteoarthritis. Do you think I could!!
Supergran62
in
Couch to 5K
1 year ago
puzzled with Orgovyx
First of all my score was 7(3+4) 6.5 to 7 years ago. I was taking nutrients and vitamins to fight the cancer which was working great until I had kidney stone surgery. Psa shot up to 101 which is when I stopped my self medication and then started the casadex which then brought my PSA down to 3. I was
First of all my score was 7(3+4) 6.5 to 7 years ago. I was taking nutrients and vitamins to fight the cancer which was working great until I had kidney stone surgery. Psa shot up to 101 which is when I stopped my self medication and then started the casadex which then brought my PSA down to 3. I was
woppaginny
in
Advanced Prostate Cancer
11 months ago
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Thoughts on next steps
Hi all I’d appreciate thoughts/ input At 13 months of undetectable PSA from a multiple bone mets situation via 7 months of multi treatments I asked for a PSMA PET scan prior to considering an ADT holiday ( moving to Apalutamide as a monotherapy) I see my London onco on Monday but report in today has
Hi all I’d appreciate thoughts/ input At 13 months of undetectable PSA from a multiple bone mets situation via 7 months of multi treatments I asked for a PSMA PET scan prior to considering an ADT holiday ( moving to Apalutamide as a monotherapy) I see my London onco on Monday but report in today has
Brysonal
in
Fight Prostate Cancer
11 months ago
PSA Test less than four weeks post surgery
I am four post surgery today. I met with radiologist yesterday to discuss pathology report and future treatment. Pathology showed positive margins and 1 of 4 lump nodes positive. MRI, CT and Bone Scan were all negative prior to surgery. I think he is thinking Hormone asap with radiation as soon as
I am four post surgery today. I met with radiologist yesterday to discuss pathology report and future treatment. Pathology showed positive margins and 1 of 4 lump nodes positive. MRI, CT and Bone Scan were all negative prior to surgery. I think he is thinking Hormone asap with radiation as soon as
Stereo1
in
Advanced Prostate Cancer
11 months ago
Update on cabazitaxel
I started chemo with cabazitaxel on July 3 here in Nicosia, Cyprus, where I live. PSA at the start was 83. It fell to 61 after the first treatment, and way down to 20 after the second on July 24. The third treatment was yesterday, July 14. I had chemo with docetaxel in 2022, when PSA fell from
I started chemo with cabazitaxel on July 3 here in Nicosia, Cyprus, where I live. PSA at the start was 83. It fell to 61 after the first treatment, and way down to 20 after the second on July 24. The third treatment was yesterday, July 14. I had chemo with docetaxel in 2022, when PSA fell from
Arcticfox44
in
Advanced Prostate Cancer
11 months ago
Rash from RT?
My husband is on Radiation treatment 31 of 45. Diagnosed with Gleason 7 (4+3), PSA 4.9 with all indications that it is contained in the prostate, negative bone scan, etc;. My question is, he is getting an itchy rash and some puffiness in his pubic area just above his privates. Has anyone experienced
My husband is on Radiation treatment 31 of 45. Diagnosed with Gleason 7 (4+3), PSA 4.9 with all indications that it is contained in the prostate, negative bone scan, etc;. My question is, he is getting an itchy rash and some puffiness in his pubic area just above his privates. Has anyone experienced
USAFproudmom
in
Prostate Cancer Network
11 months ago
ED no more
My case is unusual in as much as I was diagnosed with stage 4 prostate cancer four years ago. A bone scan identified many areas where I had bone mets, even one between my shoulder blades on my spine that looked like structural surgery was inevitable. My PSA topped 1000 and I had zero treatments of any
My case is unusual in as much as I was diagnosed with stage 4 prostate cancer four years ago. A bone scan identified many areas where I had bone mets, even one between my shoulder blades on my spine that looked like structural surgery was inevitable. My PSA topped 1000 and I had zero treatments of any
Bangkok
in
Advanced Prostate Cancer
11 months ago
Fallin' (PSA) and Hot QoL in the Summertime
https://youtu.be/ZhTfqLze95k PSA down a bit to 3.4 from 3.89, any descent is welcomed💙 The 28 IMRTs seemed to be doing it's job It was 34 in March, 840.2 @ Dx in 12/14 How low can it go? 🤔🙏 https://youtu.be/1tCc--3xw10 Back down to Hollywood on Saturday, did a bit of the Hollywood Reservoir hike
https://youtu.be/ZhTfqLze95k PSA down a bit to 3.4 from 3.89, any descent is welcomed💙 The 28 IMRTs seemed to be doing it's job It was 34 in March, 840.2 @ Dx in 12/14 How low can it go? 🤔🙏 https://youtu.be/1tCc--3xw10 Back down to Hollywood on Saturday, did a bit of the Hollywood Reservoir hike
dockam
in
Advanced Prostate Cancer
11 months ago
MRI guided Stereotactic Body Radiotherapy (SBRT) for favorable intermediate recurrence?
65 years old. PSA below 3 then 4.35, 3.06, 4.93, and 4.52. Had MRI and then biopsy Diagnosed 19 months ago with PCa localized on left side with 3+4 on one core and 4+3 in second core, all confined to prostate. Joined NanoKnife (Irreversible Electroporation (IRE)) focal ablation clinical trial.
65 years old. PSA below 3 then 4.35, 3.06, 4.93, and 4.52. Had MRI and then biopsy Diagnosed 19 months ago with PCa localized on left side with 3+4 on one core and 4+3 in second core, all confined to prostate. Joined NanoKnife (Irreversible Electroporation (IRE)) focal ablation clinical trial.
Piano777
in
Prostate Cancer Network
11 months ago
Does kidney function get affected by this?
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
Hi all, Just got news for my dad that his Kidney is only 60% functioning.. super nervous and anxious to really research online what this means.. is this common after treatment.. is this a really bad sign.. I am super frantic right now and have no idea if this is releated to the prostate cancer, or
FormulaRob
in
Advanced Prostate Cancer
11 months ago
PSA rise soon after surgery!
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 50%) Ralp surgery robotic
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 50%) Ralp surgery robotic
Daddysgirl83
in
Advanced Prostate Cancer
11 months ago
Psa rise soon after surgery, help!
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 40%). Ralp surgery robotic
Writing regarding my dad. Worried and dont get any answers / just wait and see approach from medical team :( Dad 63 years old now, was diagnosed with prostate cancer october 2022. 2 small tumors 5x3 mm was shown on MR, no spread shown there. Biopsy showed gleason 3+4 ( 4 was 40%). Ralp surgery robotic
Daddysgirl83
in
Fight Prostate Cancer
11 months ago
PSA-ZERO , yet petscan showed tumor on left clavicle and neck
Hi ALL - I havent posted much on here but my wife Granica4848 has a few post about me - i was 53 when diagnosed with Gleason 9 all mets , prostate removed * radiation that area- had a bone scan 3 months later which found large tumor on my T9 , was so large i was like hunchback - radiation to that spot
Hi ALL - I havent posted much on here but my wife Granica4848 has a few post about me - i was 53 when diagnosed with Gleason 9 all mets , prostate removed * radiation that area- had a bone scan 3 months later which found large tumor on my T9 , was so large i was like hunchback - radiation to that spot
GMAN2667
in
Advanced Prostate Cancer
11 months ago
Is it a flare ?
Hi ,i was recently diagnosed with fibro after 40+ years of pain,i also have osteoarthritis and lipoedema which are also constant pain. For the last couple of weeks i have had what feels like the worst hangover without the night out! Is this a "flare"?.
Hi ,i was recently diagnosed with fibro after 40+ years of pain,i also have osteoarthritis and lipoedema which are also constant pain. For the last couple of weeks i have had what feels like the worst hangover without the night out! Is this a "flare"?.
Cabello
in
Fibromyalgia Action UK
1 year ago
ART How Should We Monitor Patients During Active Surveillance?
ART How Should We Monitor Patients During Surveillance? Summary; 6 years old but still representative of the low usage of multi parametric mpMRI in the detection of prostate cancer in lieu of traditional SOC methods, i.e., DRE and PSA. I was on AS (active surveillance) for 10 years before my treatment
ART How Should We Monitor Patients During Surveillance? Summary; 6 years old but still representative of the low usage of multi parametric mpMRI in the detection of prostate cancer in lieu of traditional SOC methods, i.e., DRE and PSA. I was on AS (active surveillance) for 10 years before my treatment
RMontana
in
Active Surveillance - Prostate Cancer
11 months ago
Hi All back again
Hope everyone is doing as well as can be expected
Hubby just had psa and testosterone test after being on Zoladex again this past nine months, this is his second round after having 6 weeks radiation and 2 years zoladex in 2013 inbetween 2015 and 2023 under control with watch and wait until
Hope everyone is doing as well as can be expected
Hubby just had psa and testosterone test after being on Zoladex again this past nine months, this is his second round after having 6 weeks radiation and 2 years zoladex in 2013 inbetween 2015 and 2023 under control with watch and wait until
Knittingque
in
Advanced Prostate Cancer
11 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
11 months ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
11 months ago
Hopeful
I was gleason 9. Psa 28 started zoledex last year and apalutimide I am currently on a break from treatment my own choice too try and see if RSO and other holistic therapy does better job will know if my PSA spikes at the end of the month.
I was gleason 9. Psa 28 started zoledex last year and apalutimide I am currently on a break from treatment my own choice too try and see if RSO and other holistic therapy does better job will know if my PSA spikes at the end of the month.
Lonewolf55
in
Advanced Prostate Cancer
11 months ago
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