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Fingers
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
Hi I have been diagnosed with PMR a couple of months ago, I'm 45 Currently striking the balance with Pred and Methotrexate Hoping the Meth will allow me to wean of the Pred One thing my Rummy told me was non of his patients suffer with pain in the fingers I suffer greatly, especially the first few
evzi75
in
PMRGCAuk
4 years ago
blood in stool 18 months after IMRT
need some guidance regarding some blood in stool after 18 months of IMRT 20 sessions...some days ok some days blood. No pain or no irritation so far...veg diet...lot of exercise.... I will appreciate any suggestions...thanks
need some guidance regarding some blood in stool after 18 months of IMRT 20 sessions...some days ok some days blood. No pain or no irritation so far...veg diet...lot of exercise.... I will appreciate any suggestions...thanks
Karmaji
in
Advanced Prostate Cancer
4 years ago
Prednisolone together with Leflunomide
I was diagnosed GCA in April 2018 (confirmed by biopsy) and have been reducing from 60mg. pred. since then. Each time I reach 7 - 5mg I have a flare and have to increase the dose again (now on 9mg). My Rheumy has just prescribed leflunomide (20mg) hoping it will help me to reduce the pred. I understand
I was diagnosed GCA in April 2018 (confirmed by biopsy) and have been reducing from 60mg. pred. since then. Each time I reach 7 - 5mg I have a flare and have to increase the dose again (now on 9mg). My Rheumy has just prescribed leflunomide (20mg) hoping it will help me to reduce the pred. I understand
membership
in
PMRGCAuk
4 years ago
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Tinnitus from Cisplatin chemotherapy
Hello Ovacome community, Has anyone experience of tinnitus as a result of receiving Cisplatin, or another chemo ( seems to be side affect of platinum chemos). This hissing started last Thursday, it’s loud and distressing causing hearing impairment. It’s constant. I had cycle 2 of Cisplatin & Etoposide
Hello Ovacome community, Has anyone experience of tinnitus as a result of receiving Cisplatin, or another chemo ( seems to be side affect of platinum chemos). This hissing started last Thursday, it’s loud and distressing causing hearing impairment. It’s constant. I had cycle 2 of Cisplatin & Etoposide
greenpink
in
My Ovacome
4 years ago
Neuropathy
I’ve had numbness in my feet for quite awhile, but recently I’ve had hot & cold feet as well as swelling. Note: this occurs in one foot or the other (switching from left to right and back). I just read that this is part of neuropathy too. This is a new item on my list of strange occurrences that MS has
I’ve had numbness in my feet for quite awhile, but recently I’ve had hot & cold feet as well as swelling. Note: this occurs in one foot or the other (switching from left to right and back). I just read that this is part of neuropathy too. This is a new item on my list of strange occurrences that MS has
robster1
in
My MSAA Community
4 years ago
Methotrexate v. Leflunomide
I have been on Pred (currently at 5mg) plus Methotrexate since May this year. I stopped the Metho two weeks ago to see if it was the medication causing me so much dreadful fatigue. I have felt much better since. Is there anyone who has changed from Metho. to Leflunomide and if so has it been beneficial
I have been on Pred (currently at 5mg) plus Methotrexate since May this year. I stopped the Metho two weeks ago to see if it was the medication causing me so much dreadful fatigue. I have felt much better since. Is there anyone who has changed from Metho. to Leflunomide and if so has it been beneficial
Francesbarbara
in
PMRGCAuk
4 years ago
Leflunomide
I’ve posted this a reply to head girl but thought I would also add as a separate post saw Dr Hughes yesterday for a catch up. I was diagnosed with PMR Dec 2019 and have been having difficulties decreasing the Prednisolone dose. Hence Dr Hughes suggested adding in 20mg of Leflunomide which I have been
I’ve posted this a reply to head girl but thought I would also add as a separate post saw Dr Hughes yesterday for a catch up. I was diagnosed with PMR Dec 2019 and have been having difficulties decreasing the Prednisolone dose. Hence Dr Hughes suggested adding in 20mg of Leflunomide which I have been
SurreyFlower
in
PMRGCAuk
4 years ago
Plant based ALA [alpha-lipoic acid] can weaken COVID-19 infection and maybe even prevent it.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427590/#!po=9.45946 ALA can increase human defenses against SARS-CoV-2 by increasing intracellular pH. ALA is a potent antioxidant and reduces oxidative stress and inhibits activation of nuclear factor-kappa B (NF-kB) and can play a vital role in the treatment
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7427590/#!po=9.45946 ALA can increase human defenses against SARS-CoV-2 by increasing intracellular pH. ALA is a potent antioxidant and reduces oxidative stress and inhibits activation of nuclear factor-kappa B (NF-kB) and can play a vital role in the treatment
SilentEchoes
in
Cure Parkinson's
4 years ago
Tingling in muscles
Hi. I have developed a tingling in muscles around inside knees. Started with left but now on right too. It started a few weeks ago and initially thought it was a trapped nerve, but now that other leg is affected, I’m not so sure. I think I’ve had read something about this but have forgotten it’s name
Hi. I have developed a tingling in muscles around inside knees. Started with left but now on right too. It started a few weeks ago and initially thought it was a trapped nerve, but now that other leg is affected, I’m not so sure. I think I’ve had read something about this but have forgotten it’s name
Suedeshayes
in
PMRGCAuk
4 years ago
EVENING PRIMROSE OIL AND HYPOTHYROIDISM
I have lost my hair, eyebrows and lashes due to hypothyroidism. I am taking biotin and collagen to help. Someone recommended Evening Primrose Oil. I would like to know if it is safe to take it
I have lost my hair, eyebrows and lashes due to hypothyroidism. I am taking biotin and collagen to help. Someone recommended Evening Primrose Oil. I would like to know if it is safe to take it
Siames
in
Thyroid UK
4 years ago
My First Photography Trip
20 years ago, I went on a out-of-state photography trip. No family reunion, no wedding of a family member, or to meet up with friends. I had recently lost my dog, Peanut, to cancer, and I couldn't sleep for weeks. My family doctor had diagnosed me with depression and put me on an antidipressant
20 years ago, I went on a out-of-state photography trip. No family reunion, no wedding of a family member, or to meet up with friends. I had recently lost my dog, Peanut, to cancer, and I couldn't sleep for weeks. My family doctor had diagnosed me with depression and put me on an antidipressant
CrazyCatWom
in
My MSAA Community
4 years ago
Does anyone use Kemadrin for stiffness
Does anyone use Kemadrin for stiffness or to counteract the agitation effect of other drugs? It sounds good but it is an anticholergenic so is it harmful?
Does anyone use Kemadrin for stiffness or to counteract the agitation effect of other drugs? It sounds good but it is an anticholergenic so is it harmful?
LAJ12345
in
Cure Parkinson's
4 years ago
I Crossed Over into Adult Cerebral ALD
Hi folks, Update to my previous post "Brain Inflammation". I went to my last MIN-102 follow up and had an extended visit for a battery of tests and to view my MRI (just a year later from previous) and ask questions. The study neurologist will be the consulting physician going forward and the MRI was
Hi folks, Update to my previous post "Brain Inflammation". I went to my last MIN-102 follow up and had an extended visit for a battery of tests and to view my MRI (just a year later from previous) and ask questions. The study neurologist will be the consulting physician going forward and the MRI was
SongStream
in
AMN EASIER
4 years ago
Which magnesium supplement?
I have recently started on flecainide (50mg am and 100mg at night) and dipping in and out of AF. Dr Gupta recommended I try Magnesium glycinate as this has the least negative effects on the bowel and worth trying. Would appreciate your thoughts as to what you take and what brands. Will start of with
I have recently started on flecainide (50mg am and 100mg at night) and dipping in and out of AF. Dr Gupta recommended I try Magnesium glycinate as this has the least negative effects on the bowel and worth trying. Would appreciate your thoughts as to what you take and what brands. Will start of with
Reena09
in
AF Association
4 years ago
Terribly painful & drastic peeling feet
Hi all, I hope you've all enjoyed the sunshine today & decent temperature. I wrote a number of weeks ago about my feet & you kind members replied. I caught a programme 3 wks ago whilst channel changing which was describing what I experience. They had called it Epidermolysis Bullosa (E.B) but my GP said
Hi all, I hope you've all enjoyed the sunshine today & decent temperature. I wrote a number of weeks ago about my feet & you kind members replied. I caught a programme 3 wks ago whilst channel changing which was describing what I experience. They had called it Epidermolysis Bullosa (E.B) but my GP said
TK256116E
in
Fibromyalgia Action UK
4 years ago
Blindness
Morning all tazmoe here Just a quick one I’m still have my symptomatic vasculitis after 5 yrs off various treatments ahh but seem to ok to a certain degree, still medicated but it’s staysAway in its harshest form, but still get little flares Every now and then but I now seem to get side effects now
Morning all tazmoe here Just a quick one I’m still have my symptomatic vasculitis after 5 yrs off various treatments ahh but seem to ok to a certain degree, still medicated but it’s staysAway in its harshest form, but still get little flares Every now and then but I now seem to get side effects now
tazmoe
in
Vasculitis UK
4 years ago
New Airing Pain podcast - #124: Diabetic Neuropathy - OUT NOW!
Visit https://painconcern.org.uk/airing-pain-programme-124-diabetic-neuropathy/ to listen, or download from wherever you get your podcasts. According to the most recent Scottish Diabetes Survey in 2018, there are an estimated 304,000 people living with a diagnosis of diabetes in Scotland, around 5%
Visit https://painconcern.org.uk/airing-pain-programme-124-diabetic-neuropathy/ to listen, or download from wherever you get your podcasts. According to the most recent Scottish Diabetes Survey in 2018, there are an estimated 304,000 people living with a diagnosis of diabetes in Scotland, around 5%
PainConcernProjects
Pain Concern
in
Pain Concern
4 years ago
Neuropathy
I am new here. I am Irish and lived in Ireland till I retired 20 years ago to live in Thailand. About 7 years ago Non Diabetic Neuropathy was confirmed. Symptoms not severe in my feet. I was prescribed Neurontin 600 mg 3 times daily. This drug is a blessing. I do not understand why I have never heard
I am new here. I am Irish and lived in Ireland till I retired 20 years ago to live in Thailand. About 7 years ago Non Diabetic Neuropathy was confirmed. Symptoms not severe in my feet. I was prescribed Neurontin 600 mg 3 times daily. This drug is a blessing. I do not understand why I have never heard
Sam765
in
Foggy's "Invisible Illness" Support
4 years ago
Thank you!
I don't say a lot but I try to view this sight briefly most days. I have to say you all are an inspiration and a true support group. My past experiences were rather depressing, always negative thoughts and comments. I have worked hard to remove drama and negativity from my world, what is happening in
I don't say a lot but I try to view this sight briefly most days. I have to say you all are an inspiration and a true support group. My past experiences were rather depressing, always negative thoughts and comments. I have worked hard to remove drama and negativity from my world, what is happening in
Smithnova
in
My MSAA Community
4 years ago
What’s been happening with me
I have successfully been doing my injections without any education on it except YouTube. Shared solutions won’t send a nurse out with Covid and I had minimal guidance from drs office. So far I have not had any bad reactions other that injection site discomfort and burning, which seems to be normal from
I have successfully been doing my injections without any education on it except YouTube. Shared solutions won’t send a nurse out with Covid and I had minimal guidance from drs office. So far I have not had any bad reactions other that injection site discomfort and burning, which seems to be normal from
Tulip77
in
My MSAA Community
4 years ago
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