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Unsure about symptoms
Before I contact my doctor I would appreciate some advice. Presently on 9mg prednisone for 2 months, three weeks in. Not feeling well, headache, nausea, aches upper body. Thought perhaps it was fatigue so rested for two days and felt better. I sleep well and eat well but seem to be losing weight slowly
Before I contact my doctor I would appreciate some advice. Presently on 9mg prednisone for 2 months, three weeks in. Not feeling well, headache, nausea, aches upper body. Thought perhaps it was fatigue so rested for two days and felt better. I sleep well and eat well but seem to be losing weight slowly
FreeWolf
in
PMRGCAuk
2 months ago
COVID
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
Paulagcl
in
PMRGCAuk
2 months ago
A question about exercise
I have a question for you all about exercise. I have read a lot of posts on the topic, and many people write that they exercise a lot. Today, someone wrote about doing cardio, yoga, and cycling while being on 9 mg of prednisone. I am wondering about this, as I am never in a condition to do that. I
I have a question for you all about exercise. I have read a lot of posts on the topic, and many people write that they exercise a lot. Today, someone wrote about doing cardio, yoga, and cycling while being on 9 mg of prednisone. I am wondering about this, as I am never in a condition to do that. I
krillemy
in
PMRGCAuk
2 months ago
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Moving to MTX after 9 years of prednisolone?
I would appreciate the expertise of the forum on my situation. I was diagnosed with PMR 9 years ago and have been on prednisolone since then. With a few flares, I’ve never been able to taper to below 4mg, usually taking between 5 - 7.5mg. The last year has been very stressful (bereavements, sepsis
I would appreciate the expertise of the forum on my situation. I was diagnosed with PMR 9 years ago and have been on prednisolone since then. With a few flares, I’ve never been able to taper to below 4mg, usually taking between 5 - 7.5mg. The last year has been very stressful (bereavements, sepsis
SQQQ
in
PMRGCAuk
7 months ago
No more prednisone.😕
My husband has been on watch and wait for the past three years. This year things changed after he’d been down with a cold flu in February. Two weeks ago we saw the oncologist and she put him on a two week period of prednisone, as he was so tired., as well as Calquence. In those two weeks he regained
My husband has been on watch and wait for the past three years. This year things changed after he’d been down with a cold flu in February. Two weeks ago we saw the oncologist and she put him on a two week period of prednisone, as he was so tired., as well as Calquence. In those two weeks he regained
janjuergen1
in
CLL Support
2 months ago
UTI and extra prednisone?
Hi, I’ve just been diagnosed with a UTI. I am currently at 3.75 mg of prednisone after reducing from 4 in the last week. I also just had a blood test and noticed that my C reactive protein count was at 11… slightly above normal values. Not sure if it is a reaction to the infection or that my inflammation
Hi, I’ve just been diagnosed with a UTI. I am currently at 3.75 mg of prednisone after reducing from 4 in the last week. I also just had a blood test and noticed that my C reactive protein count was at 11… slightly above normal values. Not sure if it is a reaction to the infection or that my inflammation
Fishtacoqueen
in
PMRGCAuk
2 months ago
headache update #2
I saw my primary Dr yesterday. He thinks the headaches are migraines. Current tally Instant Care: 2 visit 2 tension headache diagnosis ER: occipital neuralgia Primary Care: migraines Neutologist: has yet to respond My primary care did listen when I asked him how he knows it’s not occipital neuralgia
I saw my primary Dr yesterday. He thinks the headaches are migraines. Current tally Instant Care: 2 visit 2 tension headache diagnosis ER: occipital neuralgia Primary Care: migraines Neutologist: has yet to respond My primary care did listen when I asked him how he knows it’s not occipital neuralgia
StacyHayward
in
My MSAA Community
2 months ago
Aleve use for pain other than pmr
I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much
I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much
Linny3
in
PMRGCAuk
2 months ago
has anyone taken Kevzara for PMR
My Dr. wants me to start this medication for PMR and arthritis. I was surprised because I don't think there were any medications for pmr other than prednisone. As with all of these meds. the side effects listed are horrendous. If anyone knows anything about Kevzara please let me know. My last attempt
My Dr. wants me to start this medication for PMR and arthritis. I was surprised because I don't think there were any medications for pmr other than prednisone. As with all of these meds. the side effects listed are horrendous. If anyone knows anything about Kevzara please let me know. My last attempt
Linny3
in
PMRGCAuk
2 months ago
Exhausted
Hi everyone, after over a year of battling bilateral pleural/pericardial effusion’s that almost cleared up thanks to prednisone, it’s all came back only worse and with a nasty bacterial infection too. My doctor is fighting hard with antibiotics to keep me out of hospital and I’m awaiting the start of
Hi everyone, after over a year of battling bilateral pleural/pericardial effusion’s that almost cleared up thanks to prednisone, it’s all came back only worse and with a nasty bacterial infection too. My doctor is fighting hard with antibiotics to keep me out of hospital and I’m awaiting the start of
Numptybrain
in
Lung Conditions Community Forum
2 months ago
tapered recently from 3.5mg prednisone to 3. how long should i wait before going to 2.5?
This is going on year five. I've been between 3.5 and 2.5 mg over the past year. The last time I flared I went back up to 3.5 mg. At that level i have felt completely normal. I completed the slow taper two weeks ago to 3mg. I am experiencing some fatigue now but no pain. I sometimes wonder if I'm symptom
This is going on year five. I've been between 3.5 and 2.5 mg over the past year. The last time I flared I went back up to 3.5 mg. At that level i have felt completely normal. I completed the slow taper two weeks ago to 3mg. I am experiencing some fatigue now but no pain. I sometimes wonder if I'm symptom
Paperroses
in
PMRGCAuk
2 months ago
Cystitis
I started with Cystitis recently, after recovering from a cold a few weeks ago..and been diagnosed with umbilical hernia which I was advised by my my Gp not to have the operation This is since I reduced prednisone July 1st seen by GP today now on antibiotic for 3days The symptoms I an experiencing
I started with Cystitis recently, after recovering from a cold a few weeks ago..and been diagnosed with umbilical hernia which I was advised by my my Gp not to have the operation This is since I reduced prednisone July 1st seen by GP today now on antibiotic for 3days The symptoms I an experiencing
Bluemoon2023
in
PMRGCAuk
2 months ago
Amt. of calcium to take daily
How much Calcium shoud I be taking daily? I have PMR and GCA. I take prolia shot every 3 months and a shot of methotrexate once a week. I exercise daily which was recommended by my pysiotherapist. I am doing quite well. I walk with a cane as of yet but am getting much better. Have been taking these
How much Calcium shoud I be taking daily? I have PMR and GCA. I take prolia shot every 3 months and a shot of methotrexate once a week. I exercise daily which was recommended by my pysiotherapist. I am doing quite well. I walk with a cane as of yet but am getting much better. Have been taking these
ayoung
in
PMRGCAuk
2 months ago
prednisone burst
I am sick all the time—sore muscles, drippy nose, sneezing, red fingers, gi distress, weak, can’t breathe (although blood oxygen 100%), etc. went to er recently because I was sure I was having a stroke, they did blood work, all ok, didn’t examine me, said “don’t come back.” Saw gp this week who listened
I am sick all the time—sore muscles, drippy nose, sneezing, red fingers, gi distress, weak, can’t breathe (although blood oxygen 100%), etc. went to er recently because I was sure I was having a stroke, they did blood work, all ok, didn’t examine me, said “don’t come back.” Saw gp this week who listened
Twopies
in
PMRGCAuk
2 months ago
And ,now another type of pain........
Being diagnosed with PMR in about 2006 and using varying amounts of prednisolone ever since, my legacy is Adrenal Insuffiency plus the usual things like bruising, skin rips of easy etc...... But now some new type of pain.......... Last year my rheumy said you no longer have PMR, and wanted some tests
Being diagnosed with PMR in about 2006 and using varying amounts of prednisolone ever since, my legacy is Adrenal Insuffiency plus the usual things like bruising, skin rips of easy etc...... But now some new type of pain.......... Last year my rheumy said you no longer have PMR, and wanted some tests
billydownunder
in
PMRGCAuk
7 months ago
Over reactive 1st Obin Treatment.
First dose of 100 mcg July 8th and 900 mcg July 9th. After treatment never came back to feeling 90-100%. This past Tuesday returned for round 2. Never made it out of blood draw room due to high heart rate. Got admitted and higher than normal heart rate 120-130. Blood pressure dropped 89/40. Extreme
First dose of 100 mcg July 8th and 900 mcg July 9th. After treatment never came back to feeling 90-100%. This past Tuesday returned for round 2. Never made it out of blood draw room due to high heart rate. Got admitted and higher than normal heart rate 120-130. Blood pressure dropped 89/40. Extreme
DAmen
in
CLL Support
2 months ago
Update re: groin pain
A week or so ago I asked about left sided groin pain following a fall off a landing. It felt a lot like initial PMR pain but was not bilateral. On your advice, I returned to the hospital to get checked out. Further X-rays revealed a fracture of the pubic ramus which explains the groin pain. I am thankful
A week or so ago I asked about left sided groin pain following a fall off a landing. It felt a lot like initial PMR pain but was not bilateral. On your advice, I returned to the hospital to get checked out. Further X-rays revealed a fracture of the pubic ramus which explains the groin pain. I am thankful
proactive
in
PMRGCAuk
2 months ago
Definitive diagnosis of GCA after 7 years
I was first diagnosed with GCA after having painful headaches and high inflammatory markers. I had a negative biopsy and no jaw claudication nor effects to eyesight but scans of my kidneys showed hypo perfusion (slow blood flow) of blood. My rheumatologist said it was atypical GCA and he worked on symptoms
I was first diagnosed with GCA after having painful headaches and high inflammatory markers. I had a negative biopsy and no jaw claudication nor effects to eyesight but scans of my kidneys showed hypo perfusion (slow blood flow) of blood. My rheumatologist said it was atypical GCA and he worked on symptoms
Manihiki
in
PMRGCAuk
2 months ago
Something positive after a lot of bad
In the last 6 months I've lost my husband, sold our business, sold my house, had my car stolen, was hospitalized twice with pneumonia and broke my right ankle. (I think that's all). So what is my good news? After years of elevated sed rate and CRP, I just tested normal! The only thing I can guess is
In the last 6 months I've lost my husband, sold our business, sold my house, had my car stolen, was hospitalized twice with pneumonia and broke my right ankle. (I think that's all). So what is my good news? After years of elevated sed rate and CRP, I just tested normal! The only thing I can guess is
Amkoffee
in
PMRGCAuk
2 months ago
X ray
I have been on dupilmab for 18 months. I have not had steroids for 18 months and administer it myself. I have eosinophilic asthma.I had to go back to the asthma unit for a review. My spirometry was much better than last time but my FeNo remained high. Bloods done as well. I had a phone call a few days
I have been on dupilmab for 18 months. I have not had steroids for 18 months and administer it myself. I have eosinophilic asthma.I had to go back to the asthma unit for a review. My spirometry was much better than last time but my FeNo remained high. Bloods done as well. I had a phone call a few days
Madbiker1
in
Lung Conditions Community Forum
2 months ago
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