Exhausted

[Numptybrain]

Hi everyone, after over a year of battling bilateral pleural/pericardial effusion’s that almost cleared up thanks to prednisone, it’s all came back only worse and with a nasty bacterial infection too. My doctor is fighting hard with antibiotics to keep me out of hospital and I’m awaiting the start of immune suppressants hoping they might give me some reprieve from all of this. It’s been a rollercoaster of infections, hospitals and feeling absolutely dreadful. No sleep for 3 nights now so I’m shattered so hopefully morphine might kick in this afternoon and I’ll just nod off. All of my years of having brittle asthma I never thought I’d end up like this, it’s so debilitating.

take care

Wendy xx

[sassy59]

Sorry to hear you’re so poorly Wendy and l really hope something helps and soon. Thinking of you and hoping you can get some rest. Take care xxx❤️

[Numptybrain in reply to sassy59]

Thanks Sassy xx

[Alberta56]

That's so sad to read. I hope the antibiotics will help. Very best wishes. Chris xxxx

[Numptybrain in reply to Alberta56]

Thanks Chris xx

[helenlw7]

Sorry to hear you’re so poorly, and you were so near to being sorted, then for it all to start again. Thinking of you.

[Numptybrain in reply to helenlw7]

Thanks Helen xx

[Ern007]

Sorry late reply - Really bad that after near clear from bilateral pleural/pericardial effusion’s -it just came back.

I hope you get sorted and get some sleep. lack off is terrible. Morphine does help, if you can nod of will be a decent sleep. x

[Numptybrain in reply to Ern007]

Thanks Ern xx

[peege]

I'm just so sorry that you're feeling so awful Numpty 😥, three nights without sleep is too horrible. Thinking of you and sincerely hoping you're asleep now 🤗

[Numptybrain in reply to peege]

Thanks, no sleep yet. Still struggling with pain but so exhausted xx

[peege in reply to Numptybrain]

😥 ×××

[Caspiana]

I'm sorry to hear this Wendy. I really hope things improve very soon. It makes things worse when one can't sleep. Please keep us updated if you feel up to it. xx 🌻

[Numptybrain in reply to Caspiana]

Thank you, I managed to sleep a couple of hours last night sitting up xx

[garshe]

Sorry to hear this Wendy. Hope you recover soon and can enjoy the rest of the Summer that's if we have one xx.Sheila 💕

[Numptybrain in reply to garshe]

Thanks Sheila, I know my eldest daughter and grandson are off to North Yorkshire on holiday on Sunday for a week on holiday so really hoping the weather is nice for them. Xx

[garshe in reply to Numptybrain]

Here in Wales we haven't had our Summer yet. It is quite warm just cloudy and rain Hope your family have a lovely holiday.

Sadly I haven't been on holiday for a couple of years but I did enjoy my time overseas for 38yrs when my hubby was working there..

We spent many happy years in the Middle and Far East .mostly in Dubai. Also lived in a Doha , Oman, Sri Lanka India and even a short stay in Yemen

I'm disappointed I am unable to fly now but am grateful for the wonderful life when I was younger and my health was good..

Hope your health improves ,this growing old is not what I expected. I am fortunate as have my family near me and many don't get the privilege of old age so grateful for that

Take care sending Welsh cwtches (hugs)xx.Sheila 💕👍

[Numptybrain in reply to garshe]

How lovely you have those fantastic memories and yes you are correct some are not fortunate to reach getting old. It’s nice having your family nearby, I’m lucky like that too, 2 girls and a boy all grown up and I have 4 grandchildren. I just wish I was well enough to enjoy my children and grandchildren more and do the things I used to do with them, maybe one day.

Take care and thanks

Wendy xx

[garshe in reply to Numptybrain]

Same here Wendy xx👍🙏💕😘

[B0xermad]

How awful for you .I really hope the doctors can make you better soon

[Numptybrain in reply to B0xermad]

Thanks xx

[Rosydays]

Dear Wendy you must be so fed up of all of this. I hope you can manage to get some sleep and that the treatment starts to kick in to make you more comfortable.

[Numptybrain in reply to Rosydays]

I managed 2 hours sleep last night, still groggy today so hopefully that’s a good sign.

Thanks

Wendy xx

[Willow7733]

I am so sorry, I can't imagine not being able to sleep for three days. I hope they can figure out a way to get things cleared up as soon as possible.

[Numptybrain in reply to Willow7733]

I rang clinic and because my consultant is off the only thing they suggested was urgent care to get X-ray and possible drainage but whilst I’ve got this infection my GP doesn’t want me near a hospital if she can help it, hopefully the antibiotics do their magic.

Thank you

Wendy xx

[Izb1]

So sorry to hear you are struggling with this Wendy. After being on high dose steroids for a couple of weeks I know what it's like not sleeping and can sympathise with you. Fingers crossed your doctor can get you back on track and the morphine helps x

[Numptybrain in reply to Izb1]

It didn’t seem to be helping with pain at all but then I managed a couple of hours sleep sitting up last night which has helped. Thanks xx

[Ergendl]

So sorry to hear how unwell you are at present. Hoping you manage to get some sleep soon as the morphine takes effect.

Big virtual ((((hugs))))

[Numptybrain in reply to Ergendl]

I managed a couple of hours sitting up, thank you xx

[sunshineday]

So sorry to hear how poorly you are after having felt your health was improving. Hope that you can improve without having to go in hospital, and that you can have some calming sleep and rest. xx Joy

[Numptybrain in reply to sunshineday]

Fingers crossed and thanks xx

[Shirleyj]

Just want to wish you well and send you gentle hugs (((❤️))) x

[Numptybrain in reply to Shirleyj]

Thanks Shirley xx

[Musicalways]

So sorry your are fighting this but it sounds you are not such an easy push over. I think it is the good memories that keeps us motivated. Sending virtual hugs also this morning Wendy 🤗

[Numptybrain in reply to Musicalways]

Thanks xx

[JJ_7]

Oh no Wendy...how awful for you. So sorry to hear of this ordeal. I have had many sleepless nights mainly due to prednisolone. I was offered Zopiclone but still could not get a full night's sleep. I hope you will be on the mend soon. 🤞❤️❤️❤️

[Numptybrain in reply to JJ_7]

Thanks JJ xx

[Mooka]

I hope they find something to help you soon. I hope you’re taking the prednisone first thing in the morning to give you some chance of sleep.

[Numptybrain in reply to Mooka]

I always do, down to 10mg now so hoping rheumatology nurse will be in touch to start immune suppressant xx

[helen1946]

So sorry have said a prayer for you.may your god carry you through into complete recovery.

[Numptybrain in reply to helen1946]

Thank you Helen xx

[Thinkhealthy]

hope you start to feel some relief soon and this passes. I feel for you x

[Numptybrain in reply to Thinkhealthy]

Thank you xx

[Patk1]

Get well soon Wendy xx

[Numptybrain in reply to Patk1]

Thanks Pat xx

[Nula2]

Hi Wendy, pleased you had at least two hours sleep. I know because I wake every two hours or so every night but lack of any sleep is far worse. Hopefully you'll get more sleep tonight🤞🤞❤️xxx