Exhausted : Hi everyone, after over a... - Lung Conditions C...

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Exhausted

Numptybrain profile image
53 Replies

Hi everyone, after over a year of battling bilateral pleural/pericardial effusion’s that almost cleared up thanks to prednisone, it’s all came back only worse and with a nasty bacterial infection too. My doctor is fighting hard with antibiotics to keep me out of hospital and I’m awaiting the start of immune suppressants hoping they might give me some reprieve from all of this. It’s been a rollercoaster of infections, hospitals and feeling absolutely dreadful. No sleep for 3 nights now so I’m shattered so hopefully morphine might kick in this afternoon and I’ll just nod off. All of my years of having brittle asthma I never thought I’d end up like this, it’s so debilitating.

take care

Wendy xx

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Numptybrain
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53 Replies
sassy59 profile image
sassy59

Sorry to hear you’re so poorly Wendy and l really hope something helps and soon. Thinking of you and hoping you can get some rest. Take care xxx❤️

Numptybrain profile image
Numptybrain in reply tosassy59

Thanks Sassy xx

Alberta56 profile image
Alberta56

That's so sad to read. I hope the antibiotics will help. Very best wishes. Chris xxxx

Numptybrain profile image
Numptybrain in reply toAlberta56

Thanks Chris xx

helenlw7 profile image
helenlw7

Sorry to hear you’re so poorly, and you were so near to being sorted, then for it all to start again. Thinking of you.

Numptybrain profile image
Numptybrain in reply tohelenlw7

Thanks Helen xx

Ern007 profile image
Ern007

Sorry late reply - Really bad that after near clear from bilateral pleural/pericardial effusion’s -it just came back.

I hope you get sorted and get some sleep. lack off is terrible. Morphine does help, if you can nod of will be a decent sleep. x

Numptybrain profile image
Numptybrain in reply toErn007

Thanks Ern xx

peege profile image
peege

I'm just so sorry that you're feeling so awful Numpty 😥, three nights without sleep is too horrible. Thinking of you and sincerely hoping you're asleep now 🤗

Numptybrain profile image
Numptybrain in reply topeege

Thanks, no sleep yet. Still struggling with pain but so exhausted xx

peege profile image
peege in reply toNumptybrain

😥 ×××

Caspiana profile image
Caspiana

I'm sorry to hear this Wendy. I really hope things improve very soon. It makes things worse when one can't sleep. Please keep us updated if you feel up to it. xx 🌻

Numptybrain profile image
Numptybrain in reply toCaspiana

Thank you, I managed to sleep a couple of hours last night sitting up xx

garshe profile image
garshe

Sorry to hear this Wendy. Hope you recover soon and can enjoy the rest of the Summer that's if we have one xx.Sheila 💕

Numptybrain profile image
Numptybrain in reply togarshe

Thanks Sheila, I know my eldest daughter and grandson are off to North Yorkshire on holiday on Sunday for a week on holiday so really hoping the weather is nice for them. Xx

garshe profile image
garshe in reply toNumptybrain

Here in Wales we haven't had our Summer yet. It is quite warm just cloudy and rain Hope your family have a lovely holiday.

Sadly I haven't been on holiday for a couple of years but I did enjoy my time overseas for 38yrs when my hubby was working there..

We spent many happy years in the Middle and Far East .mostly in Dubai. Also lived in a Doha , Oman, Sri Lanka India and even a short stay in Yemen

I'm disappointed I am unable to fly now but am grateful for the wonderful life when I was younger and my health was good..

Hope your health improves ,this growing old is not what I expected. I am fortunate as have my family near me and many don't get the privilege of old age so grateful for that

Take care sending Welsh cwtches (hugs)xx.Sheila 💕👍

Numptybrain profile image
Numptybrain in reply togarshe

How lovely you have those fantastic memories and yes you are correct some are not fortunate to reach getting old. It’s nice having your family nearby, I’m lucky like that too, 2 girls and a boy all grown up and I have 4 grandchildren. I just wish I was well enough to enjoy my children and grandchildren more and do the things I used to do with them, maybe one day.

Take care and thanks

Wendy xx

garshe profile image
garshe in reply toNumptybrain

Same here Wendy xx👍🙏💕😘

garshe profile image
garshe in reply toNumptybrain

Reading your Bio I also love the crime series. Especially the American Law and Order and Special victims Unit. (SVU). Mariska Hargitay who plays Olivia Benson is the daughter of Jayne Mansfield, who tragically died in a car crash when she was 2. I just love her acting she's a natural and so beautiful. I am hooked but horrified at the True Crime series to see how many horrific crimes go unsolved in the States. Hope you are feeling a little better today . xx.Sheila 💕

Numptybrain profile image
Numptybrain in reply togarshe

Very true and the crimes, even though they probably have a lot more police there than in the UK. My left side feels worse and the pain is there, in my chest too, very breathless just moving around, I’m still at home so so far so good.

Thanks Sheila

Take care

Wendy xx

B0xermad profile image
B0xermad

How awful for you .I really hope the doctors can make you better soon

Numptybrain profile image
Numptybrain in reply toB0xermad

Thanks xx

Rosydays profile image
Rosydays

Dear Wendy you must be so fed up of all of this. I hope you can manage to get some sleep and that the treatment starts to kick in to make you more comfortable.

Numptybrain profile image
Numptybrain in reply toRosydays

I managed 2 hours sleep last night, still groggy today so hopefully that’s a good sign.

Thanks

Wendy xx

Willow7733 profile image
Willow7733

I am so sorry, I can't imagine not being able to sleep for three days. I hope they can figure out a way to get things cleared up as soon as possible.

Numptybrain profile image
Numptybrain in reply toWillow7733

I rang clinic and because my consultant is off the only thing they suggested was urgent care to get X-ray and possible drainage but whilst I’ve got this infection my GP doesn’t want me near a hospital if she can help it, hopefully the antibiotics do their magic.

Thank you

Wendy xx

Izb1 profile image
Izb1

So sorry to hear you are struggling with this Wendy. After being on high dose steroids for a couple of weeks I know what it's like not sleeping and can sympathise with you. Fingers crossed your doctor can get you back on track and the morphine helps x

Numptybrain profile image
Numptybrain in reply toIzb1

It didn’t seem to be helping with pain at all but then I managed a couple of hours sleep sitting up last night which has helped. Thanks xx

Ergendl profile image
Ergendl

So sorry to hear how unwell you are at present. Hoping you manage to get some sleep soon as the morphine takes effect.

Big virtual ((((hugs))))

Numptybrain profile image
Numptybrain in reply toErgendl

I managed a couple of hours sitting up, thank you xx

sunshineday profile image
sunshineday

So sorry to hear how poorly you are after having felt your health was improving. Hope that you can improve without having to go in hospital, and that you can have some calming sleep and rest. xx Joy

Numptybrain profile image
Numptybrain in reply tosunshineday

Fingers crossed and thanks xx

Shirleyj profile image
Shirleyj

Just want to wish you well and send you gentle hugs (((❤️))) x

Numptybrain profile image
Numptybrain in reply toShirleyj

Thanks Shirley xx

Musicalways profile image
Musicalways

So sorry your are fighting this but it sounds you are not such an easy push over. I think it is the good memories that keeps us motivated. Sending virtual hugs also this morning Wendy 🤗

Numptybrain profile image
Numptybrain in reply toMusicalways

Thanks xx

JJ_7 profile image
JJ_7

Oh no Wendy...how awful for you. So sorry to hear of this ordeal. I have had many sleepless nights mainly due to prednisolone. I was offered Zopiclone but still could not get a full night's sleep. I hope you will be on the mend soon. 🤞❤️❤️❤️

Numptybrain profile image
Numptybrain in reply toJJ_7

Thanks JJ xx

Mooka profile image
Mooka

I hope they find something to help you soon. I hope you’re taking the prednisone first thing in the morning to give you some chance of sleep.

Numptybrain profile image
Numptybrain in reply toMooka

I always do, down to 10mg now so hoping rheumatology nurse will be in touch to start immune suppressant xx

helen1946 profile image
helen1946

So sorry have said a prayer for you.may your god carry you through into complete recovery.

Numptybrain profile image
Numptybrain in reply tohelen1946

Thank you Helen xx

Thinkhealthy profile image
Thinkhealthy

hope you start to feel some relief soon and this passes. I feel for you x

Numptybrain profile image
Numptybrain in reply toThinkhealthy

Thank you xx

Patk1 profile image
Patk1

Get well soon Wendy xx

Numptybrain profile image
Numptybrain in reply toPatk1

Thanks Pat xx

Nula2 profile image
Nula2

Hi Wendy, pleased you had at least two hours sleep. I know because I wake every two hours or so every night but lack of any sleep is far worse. Hopefully you'll get more sleep tonight🤞🤞❤️xxx

Chinadoll81 profile image
Chinadoll81

Sad for you love.. know what your going through as I have ongoing health issues also. Pray you will feel better soon. Blessings and love xx

Numptybrain profile image
Numptybrain in reply toChinadoll81

Thanks and same to you xx

Oshgosh profile image
Oshgosh

I hope when you get on the immunosuppressants they will help you.when I started on immunosuppressants it made a positive difference to me.

It sounds as though you’ve got a good GP.its too hot and stuffy on the wards,especially in this hot weather. If you’re struggling to sleep,try naps on the settee with a boring programme or a boring book.

When I’m struggling and unwell I always make a chart so that I can keep up with the medication.when they give you the immunosuppressants ask what you need to stop if you’re unwell and on antibiotics.

Nobody told me about this when I started on immunosuppressants,the respiratory physiotherapist told me about it.it’s been a bit of a journey of exploration all in all.

I hope your antibiotics help.

Take care xx

Numptybrain profile image
Numptybrain in reply toOshgosh

Thanks, I’ll definitely make a note of this.

Take care

Wendy xx

Oshgosh profile image
Oshgosh in reply toNumptybrain

Xx

pepparuby1 profile image
pepparuby1

oh goodness - I really hope the meds can help you x

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