After years on steroids (off them now since April'15) and a recent decrease in MF to 1000mgs/day and off statins (could not stand side effects hurting muscles/joints) also had to come off Ramipromil for BP as allergic reaction needing A/E intervention and IV Steroids/antihistamine infusion.... but BP fine now as off steroids.
I am feeling so much better and grateful that WG is no longer 'ruling my life'. I absolutely understand that this could be short lived but I am so hopeful that the MF (Mycophenolate Mofetil) has suppressed this disease. I know I am one of the lucky ones that did not go on to develop full blown WG, I do have blood/protein constantly in my urine but the blood tests are currently OK. (ANCA negative 5 months ago)
I have had such lovely and helpful support from this group especially from John and Susan Mills, they are truly outstanding. I don't often post but I truly wish you all well with the ongoing battle with auto-immune diseases. xxx Sheila