I think I'm not well but not sure what to do. I do have lupus nephritis and recently had rituximab treatment. Unfortunately I had lots of pain during my second infusion. I got upset and the treatment was stopped. I was sent home with no guidance on my next steps in treatment. I did receive a letter from my consultant saying I wasn't allergic to rituximab so could possibly have it in the future.
As I then started getting joint pain, fluid retention and fatigue I decided to go back on my mycophenolate and 10 mg of pred. But I'm still struggling to function. I'm sweating horrifically, getting intermittent sweating throughout the day and getting fluid retention not just in my ankles but also my face.
What does this mean. I'm scared my kidneys are getting worse but surely one infusion of rituximab would have some impact.
To add another problem I'm going on holiday to the Caribbean in a couple of weeks and really don't want to go and be ill.
I've been sent an appointment from my consultant but couldn't make it as my school had Ofsted and as the Deputy I had to be there.
What to do???