I've been on this 9 days had a blood test, told to come off it as my liver count was low (my bloods do do this on occasion and I told the nurse this!). have bloods taken this Tues call them (Rheumy helpline) wed (yesterday) as instructed, to be told that the would have to get a doctor to look at my bloods as my platelets are low! Doh that's what SLE does!!!! My bloods are notorious for not showing what I am feeling but the nurse wasn't interested in that at all.
Rant over - I'm not happy the hassle and stress of them not knowing anything on this Helpline. What's the point in a helpline if they cant help, don't listen or want to know? I realise nursing is hard work, poorly paid but I am a patient!!!!
Any other stories about this drug, the persons that should know and its usefulness or not ?
Someone make me smile..