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Experiences with
Mycophenolate
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Corns on fingers
Unfortunately the combination of
mycophenolate
, a job surrounded by muck and mud, and Raynauds combine to make me very prone to infection, I've had to resort to antibiotics about 6 times in 3 years now, having been about 15 years since my last requirement!
Unfortunately the combination of
mycophenolate
, a job surrounded by muck and mud, and Raynauds combine to make me very prone to infection, I've had to resort to antibiotics about 6 times in 3 years now, having been about 15 years since my last requirement!
cowhide
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Mycophenolate: Working?
Hi all, I was prescribed
mycophenolate
for ILD in June(ish). While I initially felt better, I don't feel it is helping any more. I would like to know if anyone else has experienced this? Jayne
Hi all, I was prescribed
mycophenolate
for ILD in June(ish). While I initially felt better, I don't feel it is helping any more. I would like to know if anyone else has experienced this? Jayne
GingerCatJayne
in
Lung Conditions Community Forum
6 years ago
Mycophenolate mofetil
Hi, my consultant has taken me off methotrexate yesterday to start me on
mycophenolate
mofetil, am anxious as another one of my consultants tells me this drug can be quite unkind. Has anybody had experience of it please. Appreciate any honest feedback about side effects.
Hi, my consultant has taken me off methotrexate yesterday to start me on
mycophenolate
mofetil, am anxious as another one of my consultants tells me this drug can be quite unkind. Has anybody had experience of it please. Appreciate any honest feedback about side effects.
maalidog
in
LUPUS UK
6 years ago
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Treatments for C3G
These drugs include: o Glucocorticoids (corticosteroids, steroids) o Rituximab o Cyclophosphamide o
Mycophenolate
mofetil (MMF) o Tacrolimus o Sirolimus o Azathioprine
• Plasma exchange (plasmapheresis):
Plasma
These drugs include: o Glucocorticoids (corticosteroids, steroids) o Rituximab o Cyclophosphamide o
Mycophenolate
mofetil (MMF) o Tacrolimus o Sirolimus o Azathioprine
• Plasma exchange (plasmapheresis):
Plasma
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
Mycophenolate issues - help!
Has anyone been on
Mycophenolate
who can advise me on ‘normal’ side effects? I’m on my fourth week and now on full dose and have gone downhill over last 4 days. Last 2 in bed most of the time. Headaches, stomach cramps, fainting episodes, itching.
Has anyone been on
Mycophenolate
who can advise me on ‘normal’ side effects? I’m on my fourth week and now on full dose and have gone downhill over last 4 days. Last 2 in bed most of the time. Headaches, stomach cramps, fainting episodes, itching.
Tinksie
in
LUPUS UK
6 years ago
HRT for early onset menopause caused by meds. I have SLE & Lupus Nephritis. Is this a recipe for flares, flares, flares or ???
Also discovered that I am allergic to
Mycophenolate
so... ...two cycles of 3 months each of cyclophosphamide, 2 yrs on Tacrolimus and 5 months of methotrexate, Iand finally I am sort of in remission. I remain on Plaquinel and 5mg of Pred, with occasional pulse doses of methylprednisone.
Also discovered that I am allergic to
Mycophenolate
so... ...two cycles of 3 months each of cyclophosphamide, 2 yrs on Tacrolimus and 5 months of methotrexate, Iand finally I am sort of in remission. I remain on Plaquinel and 5mg of Pred, with occasional pulse doses of methylprednisone.
lil_darling
in
LUpus Patients Understanding and Support
6 years ago
mctd/pulmonary fibrosis
with so here goes mixed connective tissue disease/pulmonary fibrosis there iv said it ,its official bits and bats were mentioned before so now what do i do i scared for my future the dr cant tell me anything they dont know themselfs so for now theyv changed my meds and put me on immune suppressant
MYCOPHENOLATE
with so here goes mixed connective tissue disease/pulmonary fibrosis there iv said it ,its official bits and bats were mentioned before so now what do i do i scared for my future the dr cant tell me anything they dont know themselfs so for now theyv changed my meds and put me on immune suppressant
MYCOPHENOLATE
Dion3844o1
in
Lung Conditions Community Forum
6 years ago
Immune Suppressant Side Effects
This week I have been put on 500mg of
Mycophenolate
twice daily to help eventually lower my Ciclosporin dosage even further. Even after a couple of days my ears are ringing like crazy even more and my brain fog definitely seems worse.
This week I have been put on 500mg of
Mycophenolate
twice daily to help eventually lower my Ciclosporin dosage even further. Even after a couple of days my ears are ringing like crazy even more and my brain fog definitely seems worse.
AndyEssex
in
British Liver Trust
6 years ago
6months
work after 3months albeit on a phased back but I’ve been full time for last 5 weeks for me personally I’d say the hardest part of this journey has been the medication after as it really hit me hard but over time they lower in strength and the body gets used to them am on 4mg of Tacrolimus and 2g of
mycophenolate
work after 3months albeit on a phased back but I’ve been full time for last 5 weeks for me personally I’d say the hardest part of this journey has been the medication after as it really hit me hard but over time they lower in strength and the body gets used to them am on 4mg of Tacrolimus and 2g of
mycophenolate
1football
in
British Liver Trust
6 years ago
Mycophenolate
Hi, I'd really like to hear people's experiences with
mycophenolate
please? Thanks.
Hi, I'd really like to hear people's experiences with
mycophenolate
please? Thanks.
cathylou
in
LUPUS UK
6 years ago
I'm new here
I take
Mycophenolate
, Amlodipine, and yearly Iloprost Infusion. Also I recently finished taking Prednisolone.
I take
Mycophenolate
, Amlodipine, and yearly Iloprost Infusion. Also I recently finished taking Prednisolone.
Scooterboy63
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Does anyone have gene mutation ATP1a3?
My daughter who is now 12 years old and started high school in August, was prescribed
Mycophenolate
in 2014.
My daughter who is now 12 years old and started high school in August, was prescribed
Mycophenolate
in 2014.
Leona89
in
Ataxia UK
6 years ago
Wrong about my rheumatologist!
She said the hydroxy isn't working and when I become infection free she will start me on
mycophenolate
. She scared me with how seriously she took everything - grown accustomed to being ignored! She thinks the disease as she called it is progressing.
She said the hydroxy isn't working and when I become infection free she will start me on
mycophenolate
. She scared me with how seriously she took everything - grown accustomed to being ignored! She thinks the disease as she called it is progressing.
cathylou
in
LUPUS UK
6 years ago
The story so far lol
He also wants me to discontinue
mycophenolate
and begin azathioprine. His rationale being, that another immunosuppressant might suit me better and I may feel better with that treatment,. Also, he said that azathioprine works differently to
mycophenolate
.
He also wants me to discontinue
mycophenolate
and begin azathioprine. His rationale being, that another immunosuppressant might suit me better and I may feel better with that treatment,. Also, he said that azathioprine works differently to
mycophenolate
.
Suzycat
in
Vasculitis UK
6 years ago
Meds
Hi just wondering if anyone has been on
mycophenolate
and how did you find it ,x
Hi just wondering if anyone has been on
mycophenolate
and how did you find it ,x
Dion3844o1
in
Lung Conditions Community Forum
6 years ago
Mycophenolate mofetil prescribed for DLE
Hiya Just been prescribed
Mycophenolate
mofetil for DLE along with weekly blood tests to monitor something or other (brain freeze -apologies!). Has anyone with DLE seen an improvement in their condition using this drug and if so how long did this take?
Hiya Just been prescribed
Mycophenolate
mofetil for DLE along with weekly blood tests to monitor something or other (brain freeze -apologies!). Has anyone with DLE seen an improvement in their condition using this drug and if so how long did this take?
Biri
in
LUPUS UK
6 years ago
Having a flare
That didn't work so I started
Mycophenolate
250MG 2x's a day & Hydroxychloriqine at noon. I also have fibromyalgia & sjogrens disease. My Rumy increased my
mycophenolate
up to 500MG 2xs a day and I got a lump in my throat.
That didn't work so I started
Mycophenolate
250MG 2x's a day & Hydroxychloriqine at noon. I also have fibromyalgia & sjogrens disease. My Rumy increased my
mycophenolate
up to 500MG 2xs a day and I got a lump in my throat.
2sfamily
in
LUPUS UK
6 years ago
New Symptoms
I have previously been on Methotrexate,
Mycophenolate
and Azathiprine and nothing helped. I am currently on Hydroxychloroquine and Mepacrin but still having no luck. Has anyone found anything that helps prevent hair loss?
I have previously been on Methotrexate,
Mycophenolate
and Azathiprine and nothing helped. I am currently on Hydroxychloroquine and Mepacrin but still having no luck. Has anyone found anything that helps prevent hair loss?
Athens94
in
LUPUS UK
6 years ago
Reduced steroids finally but for how long!??!!!
Despite being on
mycophenolate
5 times a day and hydroxychloroquine twice daily!
Despite being on
mycophenolate
5 times a day and hydroxychloroquine twice daily!
Sara_A
in
LUPUS UK
6 years ago
Anyone else on Mycophenolate with no spleen?
Hi I had my spleen removed as part of the treatment for ITP and I take both penicillin and
mycophenolate
twice a day.
Mycophenolate
is an immunosuppresant. As a result I am a priority case for flu jabs each year. When i have a flu jab i am really unwell for a month.
Hi I had my spleen removed as part of the treatment for ITP and I take both penicillin and
mycophenolate
twice a day.
Mycophenolate
is an immunosuppresant. As a result I am a priority case for flu jabs each year. When i have a flu jab i am really unwell for a month.
NickyD
in
ITP Support Association
6 years ago
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