mctd/pulmonary fibrosis

[Dion3844o1]

hi all well after a long 2 and half year of well ,we think you could have ,or were not sure ,iv finally got the diagnosis of [rumathoyd arthritus]which has gone into my lungs so now iv got my head round it all its well oviously not what i want but im stuck with so here goes mixed connective tissue disease/pulmonary fibrosis there iv said it ,its official bits and bats were mentioned before so now what do i do i scared for my future the dr cant tell me anything they dont know themselfs so for now theyv changed my meds and put me on immune suppressant MYCOPHENOLATE just hope they work now fingers crossed so far iv lost my place in college had to much time off poorly,as anyone else got a similar experiences or knowledge id really appreate it thankyou all take care x

[AngieB72]

Hi

I was diagnosed with the same about 10 years ago when I was 36 so if I can be of any help just ask.

[Whitechinchilla]

So sorry to hear about your long drawn out experience and such a miserable outcome. I hope that someone here will be able to give you some advice etc. That’s devastating to lose your place at college on top of everything else you have had to deal with.

All I can offer is good wishes and hope that the new meds will work quickly so that you feel better in yourself. Do keep posting as everyone here will encourage you on your journey.

[Izb1]

Hi Dion3844o1, so sorry to hear your news, after such a long drawn out diagnosis. Did you know that you have rheumatoid arthritis or was this part of the diagnosis, I am asking as when I was first diagnosed my gp said she would keep her eye on my lungs, as this disease causes lung problems. I have bronchiectasis which is nothing to do with ra , but was treated for asthama for years before a ct scan showed up the bronch. I do hope the medication helps and wish you well. Irene x

[Dion3844o1]

Thank you all I did get diagnosed with ra before the pf x

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Fingers crossed for you xx