Well I was wrong about my rheumatologist. She sent me straight to x Ray, did blood tests, and has ordered a ct scan and referred me to pulmonary.
She said the hydroxy isn't working and when I become infection free she will start me on mycophenolate.
She scared me with how seriously she took everything - grown accustomed to being ignored! She thinks the disease as she called it is progressing. I'm now back on antibiotics and 30mg steroids but my chest seems worse, not sure if that's a sign the antibiotics are working? Or should I consult someone?
Written by
cathylou
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