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Experiences with
Medium chain acyl dehydrogenase deficiency
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Struggling to cope...
Hi, I first got tinnitus about 8 years ago, seen a ENT specialist and after getting hearing aids, combined with a sound unit at my bedside it lessened to having no impact on my life. In fact I used to explain to folk if they ever get it, their brain would habituate to it over time. Hopefully still true
Hi, I first got tinnitus about 8 years ago, seen a ENT specialist and after getting hearing aids, combined with a sound unit at my bedside it lessened to having no impact on my life. In fact I used to explain to folk if they ever get it, their brain would habituate to it over time. Hopefully still true
Help11
in
British Tinnitus Association
2 years ago
Thyroid hormone synthesis
I found this interesting and informative image the other day. You can view the full image by following the link - but, depending on whether you are using a phone, a tablet, a computer, you might get different options and sizes of image, etc. https://commons.wikimedia.org/wiki/File:Thyroid_hormone_synthesis.png
I found this interesting and informative image the other day. You can view the full image by following the link - but, depending on whether you are using a phone, a tablet, a computer, you might get different options and sizes of image, etc. https://commons.wikimedia.org/wiki/File:Thyroid_hormone_synthesis.png
helvella
Thyroid UK
in
Thyroid UK
2 years ago
A new T3 derivative shows promise in treatment with T3 and smaller FT3 spikes after taking it
Ths paper and abstract is downloadable. It demonstrates that the new T3 derivative has a good display of less vigorous FT3 spikes after taking it. This means that combination users and T3-only users have a better and more stable response. However, this compound will be patented and sold as rather high
Ths paper and abstract is downloadable. It demonstrates that the new T3 derivative has a good display of less vigorous FT3 spikes after taking it. This means that combination users and T3-only users have a better and more stable response. However, this compound will be patented and sold as rather high
diogenes
in
Thyroid UK
2 years ago
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High ferritin levels
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Doraflora
in
PMRGCAuk
3 years ago
Actinium/Keytruda/Xtandi trial update after 24 weeks.
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
HopingForTheBest1
in
Advanced Prostate Cancer
2 years ago
Low iron first time in years despite supps
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Incoguto
in
Thyroid UK
3 years ago
Prostate Cancer & Brugada Syndrome
Almost 3 years ago, while being prepped for surgery for a small bowel obstruction, my ECG showed I was having a 'heart attack' that wasn't. Instead I was later diagnosed with Brugada Syndrome (BrS), a genetic defect of the Sodium channels in the heart that can trigger a Sudden Cardiac Arrest (SCA). This
Almost 3 years ago, while being prepped for surgery for a small bowel obstruction, my ECG showed I was having a 'heart attack' that wasn't. Instead I was later diagnosed with Brugada Syndrome (BrS), a genetic defect of the Sodium channels in the heart that can trigger a Sudden Cardiac Arrest (SCA). This
Vynbal
in
Prostate Cancer Network
2 years ago
Cramps and low sodium
I have advanced msa with all the normal sign and suptoms including dystonia leading to curling of the toes amongst a whole host of other issues. Recently I have had big problems with critically low sodium on blood tests (121mg)) . Initially I was admitted to hosspital and was dropped with salt solution
I have advanced msa with all the normal sign and suptoms including dystonia leading to curling of the toes amongst a whole host of other issues. Recently I have had big problems with critically low sodium on blood tests (121mg)) . Initially I was admitted to hosspital and was dropped with salt solution
Orla789
in
Multiple System Atrophy Trust
3 years ago
Radium 223
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Omc64
in
Advanced Prostate Cancer
2 years ago
Understanding your blood test
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Quercus53
in
MPN Voice
3 years ago
Sodium Butyrate is healing me!
I’ve suffered with IBD for 24 years and at last I have my symptoms under control, in fact I am recovering. After such a long time it is life changing for me. My recovery started with eating LoFodmap foods which gave my digestion a much needed rest, then after considerable research I stumbled across Sodium
I’ve suffered with IBD for 24 years and at last I have my symptoms under control, in fact I am recovering. After such a long time it is life changing for me. My recovery started with eating LoFodmap foods which gave my digestion a much needed rest, then after considerable research I stumbled across Sodium
Happy-hacker
in
Crohn's and Colitis Support
3 years ago
Iron Supplements for those very sensitive to gluten
Hi, I'm being prescribed iron supplement (ferrous sulphate). GP assures me it is gluten free but GPs and Pharmacists don't understand gluten in ingredients. The pharmacy is not answering their phone when I call to find out the brands they have so I can do my own check. Any pharmacy prescribed brands
Hi, I'm being prescribed iron supplement (ferrous sulphate). GP assures me it is gluten free but GPs and Pharmacists don't understand gluten in ingredients. The pharmacy is not answering their phone when I call to find out the brands they have so I can do my own check. Any pharmacy prescribed brands
Hidden
in
Gluten Free Guerrillas
3 years ago
Brothers Keeper
I’ve been reading posts here for quite a while and find the advice and comfort given very helpful. I just dropped my older brother (42) at the hospital once again. He’s was extremely Jaundice and showing significant signs of HE. Unfortunately due to COVID I am unable to visit him or his doctors so
I’ve been reading posts here for quite a while and find the advice and comfort given very helpful. I just dropped my older brother (42) at the hospital once again. He’s was extremely Jaundice and showing significant signs of HE. Unfortunately due to COVID I am unable to visit him or his doctors so
Jag9380
in
British Liver Trust
3 years ago
The strangest place this 5 and 1/2 year journey has taken me to date.
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Your thoughts, please
I'm going in for labs this week. My main concern is high Potassium & proteinuria. I've been watching my protein, somewhat and potassium a lot. Potassium has been dangerously high in the past. I also have edema, it's better but am on a diueretic, so have been watching sodium and cut back on water.
I'm going in for labs this week. My main concern is high Potassium & proteinuria. I've been watching my protein, somewhat and potassium a lot. Potassium has been dangerously high in the past. I also have edema, it's better but am on a diueretic, so have been watching sodium and cut back on water.
jodaer
in
Kidney Disease
3 years ago
General question
Hello All, Sorry to disturb you. Have few questions; appreciate if someone has suggestions/advise. I have pain when I pee some times, few bubbles and as well back pain. Did ultrasound and found 2 very small non obstructing stones, this is beginning of Jan 2021. From them I always felt I was tired ,
Hello All, Sorry to disturb you. Have few questions; appreciate if someone has suggestions/advise. I have pain when I pee some times, few bubbles and as well back pain. Did ultrasound and found 2 very small non obstructing stones, this is beginning of Jan 2021. From them I always felt I was tired ,
Anxoiusguy
in
Early CKD Support
3 years ago
I'd been feeling weary so had bloods done at doctor's. My iron was low so GP prescribed iron tablets.
I'd been feeling weary so had bloods done at doctor's. My iron was low; it has been for years; (I think it's always been low, even when I ate meat. I was told by a doctor 30 years ago that I was slightly anaemic; I think at the time I was hypo but it wasn't diagnosed) so GP has prescribed iron tablets
I'd been feeling weary so had bloods done at doctor's. My iron was low; it has been for years; (I think it's always been low, even when I ate meat. I was told by a doctor 30 years ago that I was slightly anaemic; I think at the time I was hypo but it wasn't diagnosed) so GP has prescribed iron tablets
AnneEvo
in
Thyroid UK
3 years ago
Imodium IBS relief
Has anyone tried the new IBS relief Imodium.I find them much better than normal ones,they don’t give me stomach cramps or bung me up as badly.
Has anyone tried the new IBS relief Imodium.I find them much better than normal ones,they don’t give me stomach cramps or bung me up as badly.
Poorlypatient
in
IBS Network
2 years ago
Mitochondria?
This is from Longecity and has been floating around in my laptop the past 5 years or so. Mitochondrial Regulation by PINK1-Parkin Signaling http://www.hindawi.c...rn/2012/926160/ Enhancing nucleotide metabolism protects against mitochondrial dysfunction and neurodegeneration in a PINK1 model
This is from Longecity and has been floating around in my laptop the past 5 years or so. Mitochondrial Regulation by PINK1-Parkin Signaling http://www.hindawi.c...rn/2012/926160/ Enhancing nucleotide metabolism protects against mitochondrial dysfunction and neurodegeneration in a PINK1 model
kaypeeoh
in
Cure Parkinson's
3 years ago
Update - ADT with Zytiga Failure (Castration Resistant) after 6 Months (PSA 90.3); Firmagon still Working; PSMA PET Scan Ordered
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
diamondrn
in
Advanced Prostate Cancer
2 years ago
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