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Experiences with
Medium chain acyl dehydrogenase deficiency
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Blood sodium levels
Stage 3b My last labs over the past year have had a decrease in my blood sodium levels. Last test was 131. Nephrologist said I need to start eating more protein as that helps to keep sodium in your bloodstream instead of getting out in your body tissue. I don’t have any edema and take a diuretic. Not
Stage 3b My last labs over the past year have had a decrease in my blood sodium levels. Last test was 131. Nephrologist said I need to start eating more protein as that helps to keep sodium in your bloodstream instead of getting out in your body tissue. I don’t have any edema and take a diuretic. Not
MGsolid
in
Kidney Disease
1 year ago
Help with bloods please
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
Licklemoose
in
Thyroid UK
1 year ago
serum iron
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
Elsie77
in
Restless Legs Syndrome
1 year ago
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Info re drug interactions with Paxlovid
https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/ritonavir-boosted-nirmatrelvir--paxlovid-/paxlovid-drug-drug-interactions/ Hi All - Inresponse to my two responses I found this from NIH which states that Prednisone and other drugs are safe with Paxlovid
https://www.covid19treatmentguidelines.nih.gov/therapies/antivirals-including-antibody-products/ritonavir-boosted-nirmatrelvir--paxlovid-/paxlovid-drug-drug-interactions/ Hi All - Inresponse to my two responses I found this from NIH which states that Prednisone and other drugs are safe with Paxlovid
bluegirl7
in
PMRGCAuk
1 year ago
Clarification of blood results
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hollybushroad
in
Thyroid UK
1 year ago
67 year old male with severe Osteoporosis from long term use of Nexium.
I am a 67 year old male, who used to be very active. My Gastroenterologist had me on Nexium for 20 years, as my body produces a lot of stomach acid. Three years ago, my vertebrae started to break. Bone Density Scan showed me with severe osteoporosis. I just had my ninth vertebrae fracture. With
I am a 67 year old male, who used to be very active. My Gastroenterologist had me on Nexium for 20 years, as my body produces a lot of stomach acid. Three years ago, my vertebrae started to break. Bone Density Scan showed me with severe osteoporosis. I just had my ninth vertebrae fracture. With
Bones4Me
in
Osteoporosis Support
1 year ago
venetoclax and nausea/acid reflux
Hi to the CLL community Has anyone experienced acid reflux/ gerd whilst taking Venetoclax? I am coming up to Cycle 4 of Obin which I tolerated very well , but have now been taking my 400mg of venetoclax for 3 weeks and have developed acid reflux/ gerd. not had anything like this before and was ok
Hi to the CLL community Has anyone experienced acid reflux/ gerd whilst taking Venetoclax? I am coming up to Cycle 4 of Obin which I tolerated very well , but have now been taking my 400mg of venetoclax for 3 weeks and have developed acid reflux/ gerd. not had anything like this before and was ok
puppy43
in
CLL Support
1 year ago
Talzenna approved by FDA
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
FDA Approves Talzenna for Metastatic, Castration-Resistant Prostate Cancer Significant radiographic progression-free survival seen for homologous recombination repair gene mutation, including with BRCA mutation HealthDay MONDAY, June 26, 2023 (HealthDay News) -- The U.S. Food and Drug Administration
Magnus1964
in
Prostate Cancer Network
1 year ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
1 year ago
potassium / lo salt / rampiril
also whilst NHS says avoid low sodium salt if on rampiril - as too much potassium but all other food ok - I have seen other sources saying avoid bananas and things - any info on that at all - thanks
also whilst NHS says avoid low sodium salt if on rampiril - as too much potassium but all other food ok - I have seen other sources saying avoid bananas and things - any info on that at all - thanks
Lowe1066
in
High Blood Pressure Support
1 year ago
Is this IBS bit of a weird one.
So since 10th February this year I started with diarrhea only really once a day after about 2 months (april) I made a doctor appointment where they felt my stomach and it was not hard or sore at all, he wanted to do a stool sample and blood sample which I did and it all came back as normal, still having
So since 10th February this year I started with diarrhea only really once a day after about 2 months (april) I made a doctor appointment where they felt my stomach and it was not hard or sore at all, he wanted to do a stool sample and blood sample which I did and it all came back as normal, still having
beachbabe40
in
IBS Network
1 year ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
Radium 223
I am interested in anyone's experience with radium-223. Thanks, EdinBaltimore
I am interested in anyone's experience with radium-223. Thanks, EdinBaltimore
EdinBmore
in
Advanced Prostate Cancer
10 months ago
Possible IBS but GP doesn’t know for sure…..
Hi. I’m really stuck with what’s going on with my body and movements. At the end of March I had what I thought was a standard tummy bug, I didn’t think much of it. After 4 days of diarrhoea and not eating (even water was going through) I tried eating a plain piece of bread. Needless to say that didn’
Hi. I’m really stuck with what’s going on with my body and movements. At the end of March I had what I thought was a standard tummy bug, I didn’t think much of it. After 4 days of diarrhoea and not eating (even water was going through) I tried eating a plain piece of bread. Needless to say that didn’
Steff5678
in
IBS Network
1 year ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
Are my eyes yellow?
I have anxiety and i am freaking out feeling i have damaged my liver. My mum told me my cousin's husband who is in his 60s his liver cirrhosis and i feel i am the same even though im 34. I drink occasionally but i have had epilepsy for a long time and was until recently on sodium valproate which can
I have anxiety and i am freaking out feeling i have damaged my liver. My mum told me my cousin's husband who is in his 60s his liver cirrhosis and i feel i am the same even though im 34. I drink occasionally but i have had epilepsy for a long time and was until recently on sodium valproate which can
Hidden
in
British Liver Trust
10 months ago
best foods to eat after ibs d flare
I’ve suffered from ibs for years and have been well controlled. Have never needed to do FODMAP as yet as know triggers. Anyway I’ve had the worst flare ever in last 5 days and no improvement. Constant diarrhoea. Everything just going straight through. Imodium helps but I need to start trying to eat
I’ve suffered from ibs for years and have been well controlled. Have never needed to do FODMAP as yet as know triggers. Anyway I’ve had the worst flare ever in last 5 days and no improvement. Constant diarrhoea. Everything just going straight through. Imodium helps but I need to start trying to eat
sarahaaronkayley
in
IBS Network
1 year ago
Iron Deficiency Without Anemia (IDWA)
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
Rexz
in
Pernicious Anaemia Society
1 year ago
Can to much B12 cause IBS? SI
Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just before I eat... but sometimes it doesn't work. 🤔 I've tried going without SI for a few days and the IBS does Improve but my fatigue comes back and
Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just before I eat... but sometimes it doesn't work. 🤔 I've tried going without SI for a few days and the IBS does Improve but my fatigue comes back and
Onlyme75
in
Pernicious Anaemia Society
1 year ago
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