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Mast cell activation syndrome (MCAS)
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Supplemented and retest, Still severely sick. Help please?
Supplemented for 6 months and retested. I appreciate if I can get some advice? 3 years on and still severely sick. I had a lot of great info on here and I took the advise, please can I ask for guidance. I supplemented with a Iggenus b complex 2x a day , meythlfolate 400 mg , better than your vit d
Supplemented for 6 months and retested. I appreciate if I can get some advice? 3 years on and still severely sick. I had a lot of great info on here and I took the advise, please can I ask for guidance. I supplemented with a Iggenus b complex 2x a day , meythlfolate 400 mg , better than your vit d
Yennn
in
Thyroid UK
4 years ago
Aluminium in Hydroxocobalamin?
Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It doesn't say in the ingrediens lidt, but does anyone know if there could be a hidden aluminium salt despite this? Thanks!
Hello all, I have a sky high aluminium level, and worry if my B12 Hydroxocobalamin injections contribute to this. I buy from Germany, Hevert 1 mg ampuls. It doesn't say in the ingrediens lidt, but does anyone know if there could be a hidden aluminium salt despite this? Thanks!
indywindy
in
Pernicious Anaemia Society
4 years ago
More advice would be wonderful
A while back I posted on here about my journey coming off Neupro patches and transferring to a Gabapentin and had some truly great advice. I am now taking 900mg, split into 300 at around 5 o’clock and 600 around 8 o’clock. It occasionally helps and I do believe that the restless legs are not quite
A while back I posted on here about my journey coming off Neupro patches and transferring to a Gabapentin and had some truly great advice. I am now taking 900mg, split into 300 at around 5 o’clock and 600 around 8 o’clock. It occasionally helps and I do believe that the restless legs are not quite
Mulberry100
in
Restless Legs Syndrome
4 years ago
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VITAMIN SCARE
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
BENGAL1000
in
Restless Legs Syndrome
4 years ago
Stopping Ropinirole
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
sudokufan
in
Restless Legs Syndrome
4 years ago
Anyone On Dymista?
Hi! So, I am currently taking Dymista spray due to severe hay fever and eustachian tube dysfunction, I was prescribed this a year ago but was previously on Avamys. As my hay fever has kicked in I happened to check the patient leaflet to see if I was on maximum dosage (I work in a nursery and with all
Hi! So, I am currently taking Dymista spray due to severe hay fever and eustachian tube dysfunction, I was prescribed this a year ago but was previously on Avamys. As my hay fever has kicked in I happened to check the patient leaflet to see if I was on maximum dosage (I work in a nursery and with all
Hidden
in
Asthma Community Forum
4 years ago
Lupus/Sjogrens or not ...
I posted the other day as I had an appointment booked with a specialist Lupus clinic tom am. I was so glad to get this appointment in a recommended Centre of Excellence, as I have been trying for years to get properly considered for Lupus and Sjogrens. Basically my reoccurring symptoms have just been
I posted the other day as I had an appointment booked with a specialist Lupus clinic tom am. I was so glad to get this appointment in a recommended Centre of Excellence, as I have been trying for years to get properly considered for Lupus and Sjogrens. Basically my reoccurring symptoms have just been
UrsaP
in
LUPUS UK
4 years ago
Heat helps with RLS
Tonight I got up at 0245 with my typical pain after my medicine wore off. And I decided to try another natural remedy for pain called "capsaicin" in the form of a patch. I've had some luck with applying heat pads to my quads in the past but nowhere near complete relief. I would get the chemical pads
Tonight I got up at 0245 with my typical pain after my medicine wore off. And I decided to try another natural remedy for pain called "capsaicin" in the form of a patch. I've had some luck with applying heat pads to my quads in the past but nowhere near complete relief. I would get the chemical pads
intermk
in
Restless Legs Syndrome
4 years ago
Buprenorphine Update and new story
Hi everyone I am prompted to send you an update after receiving an email from a member . Yes buprenorphine still works perfectly 100 percent peaceful No break through , memory crystal clear, fabulous mood , sleep like a baby, cuddle up in my husbands arms until I have a hot flush LOL I now know of
Hi everyone I am prompted to send you an update after receiving an email from a member . Yes buprenorphine still works perfectly 100 percent peaceful No break through , memory crystal clear, fabulous mood , sleep like a baby, cuddle up in my husbands arms until I have a hot flush LOL I now know of
Shumbah
in
Restless Legs Syndrome
4 years ago
Tramadol
Been on two tramadol a day for around two months now and now with the biological meds working well I thought i would finish the course and come off them , my doc told me that two a day would not be addictive, well I don’t know if I’m addictive to them but I didn’t sleep a wink last night I was so restless
Been on two tramadol a day for around two months now and now with the biological meds working well I thought i would finish the course and come off them , my doc told me that two a day would not be addictive, well I don’t know if I’m addictive to them but I didn’t sleep a wink last night I was so restless
Buckybri
in
NRAS
4 years ago
Ended up having transfer💞🤞🏽
The clinic warned me it may not happen but they did a scan and showed hardly any fluid left and were happy to proceed! I couldn’t believe it they had to get my in three times as I just couldn’t get my bladder full 🤦🏽♀️ I also suffer from vaginismus and I just kept crying the ladies were amazing and
The clinic warned me it may not happen but they did a scan and showed hardly any fluid left and were happy to proceed! I couldn’t believe it they had to get my in three times as I just couldn’t get my bladder full 🤦🏽♀️ I also suffer from vaginismus and I just kept crying the ladies were amazing and
Sorax
in
Fertility Network UK
4 years ago
Scaremongering or Truth?
Like most people in the UK of late I tend to look at what the press is saying about the Covid19 pandemic. Firstly, let me say that I was horrified by Boris’s initial attitude of “all we need to do is wash our hands for 20 to 30 seconds”, whilst the administration in Hunan were spraying the streets with
Like most people in the UK of late I tend to look at what the press is saying about the Covid19 pandemic. Firstly, let me say that I was horrified by Boris’s initial attitude of “all we need to do is wash our hands for 20 to 30 seconds”, whilst the administration in Hunan were spraying the streets with
Geordie-Y
in
LUPUS UK
4 years ago
Arnica/Dalterparin interactions?
Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica interacts with warfarin but struggling to find out how or if theres any specific interaction with dalterparin. Does anyone have experience or any pointers
Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica interacts with warfarin but struggling to find out how or if theres any specific interaction with dalterparin. Does anyone have experience or any pointers
Jensgoldenpig
in
Hughes Syndrome APS Forum
4 years ago
Sickle cell and endometriosis
Hi, I have been recently diagnosed with endometriosis and I have been slightly worried.... is there anyone in here that has sickle cell and endometriosis.... I have sickle cell trait from both of my parents. Thank you in advance for your answers and time.
Hi, I have been recently diagnosed with endometriosis and I have been slightly worried.... is there anyone in here that has sickle cell and endometriosis.... I have sickle cell trait from both of my parents. Thank you in advance for your answers and time.
Gabyp
in
Sickle Cell Society
4 years ago
Phase 2 Trial - Exenatide Treatment in Parkinson's Disease
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
Farooqji
in
Cure Parkinson's
4 years ago
Best painkillers
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Charlie_25
in
LUPUS UK
4 years ago
MIRAPEXIN PROLONGED RELEASE
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Felicity21
in
Restless Legs Syndrome
4 years ago
STILL NEED HELP
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
sweetiepye
in
Restless Legs Syndrome
4 years ago
A stopgap measure to treat respiratory distress.
Repurposing a drug used for blood clots may help Covid-19 patients in danger of respiratory failure, researchers suggest.
Researchers at MIT and the University of Colorado at Denver have proposed a stopgap measure that they believe could help Covid-19 patients who are in acute respiratory distress
Repurposing a drug used for blood clots may help Covid-19 patients in danger of respiratory failure, researchers suggest.
Researchers at MIT and the University of Colorado at Denver have proposed a stopgap measure that they believe could help Covid-19 patients who are in acute respiratory distress
2greys
in
Lung Conditions Community Forum
4 years ago
Blurred vision - alternatives to Tocilizumab
One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids
One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids
Skinnyjonny
in
PMRGCAuk
4 years ago
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