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Mast cell activation syndrome (MCAS)
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Covid-19 and blood clots in ICU
Hi all, I’ve been reading a lot of your stories and I wish I could just hug you all. Thank you for sharing and my heart goes out to everyone suffering during this horrific time. I’m going through something similar to some of your experiences with my dad- not sure if anyone has had experience with
Hi all, I’ve been reading a lot of your stories and I wish I could just hug you all. Thank you for sharing and my heart goes out to everyone suffering during this horrific time. I’m going through something similar to some of your experiences with my dad- not sure if anyone has had experience with
Angelssavepoppy
in
ICUsteps
4 years ago
FeSo4 and Mg and Requip
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
My boyfriend was suffering with RLS for a while and about a week ago, he had little to no sleep for 3 days. I researched online, and reach to this forum. I was scared of Requip possible side effect and alot of posting about people want to/did come off of it. I was hesitant to recommend him to try, but
Yamama
in
Restless Legs Syndrome
4 years ago
Anomaly
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Hi guys, After being in mild augmentation and having been on Requip (0.25mg) for just over a month, I started getting symptoms early morning, every afternoon and atleast 3 breakthroughs at night. This is when I also took tramadol 20mg, Pregab 150mg. With such discomfort, I decided to try a drug holiday
Heatherlss
in
Restless Legs Syndrome
4 years ago
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Any ideas of changing patterns of RLS symptoms
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Hi there. Can anyone help. When trying to figure out coping with RLS and trying to eliminate what I believe may be potential triggers the pattern of symptoms changes. Recently found starts evening in legs. When this finally settles in small hours of the morning the sensation of crawling elevated
Debsamuels
in
Restless Legs Syndrome
4 years ago
Miscarriage
I did my ivf on24 February I did my blood test my beta hcg was 34,9 my doctor was very happy on 30 I had some blood doctor send me for blood test it was negative 😢I was very sad ...
I did my ivf on24 February I did my blood test my beta hcg was 34,9 my doctor was very happy on 30 I had some blood doctor send me for blood test it was negative 😢I was very sad ...
Hayet
in
Fertility Network UK
4 years ago
Desperate for support
Good morning, I recently was diagnosed with Rheumatoid Arthritis and im awaiting to see the consultant about Sjogrens symptoms. I suffer from dry mouth, eyes and fascial sweating which i believe is connected to the parotid. My face amd neck swell near my ears and i HATE it. Im currently undiagnosed
Good morning, I recently was diagnosed with Rheumatoid Arthritis and im awaiting to see the consultant about Sjogrens symptoms. I suffer from dry mouth, eyes and fascial sweating which i believe is connected to the parotid. My face amd neck swell near my ears and i HATE it. Im currently undiagnosed
Staywildmoonchild
in
The Australian Sjögren's Syndrome Association
4 years ago
B vitamins query
Somebody mentioned Marmite for B vitamins; is the B9 in it the best form? I e , folate, as opposed to folic acid?
Somebody mentioned Marmite for B vitamins; is the B9 in it the best form? I e , folate, as opposed to folic acid?
Noelnoel
in
Thyroid UK
4 years ago
YouTube video at drug / pain clinic
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
So I have this amazing drug that works buprenorphine however I have had a hard time accessing it in Australia also the pharmacies have refused to fill my prescriptions even after they speak to the doctor or doctors I should say. Lucky for me I brought back a years worth knowing I would need time to fight
Shumbah
in
Restless Legs Syndrome
4 years ago
Try Caffeine for RLS
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
I've had RLS since I was young. Of course I never knew what it was, or if it even had a name until I was in my 30s. I am now 56. I have used mirapex and lyrica with success, but they made me gain weight. About 12 years ago, by accident, I found that CAFFEINE was the answer. Yes, believe it or not, caffeine
Bftalbert
in
Restless Legs Syndrome
4 years ago
Calquence Headaches and Low Blood Counts?
Hello!! I am writing on behalf of my dad. He was diagnosed with Mantle Cell Lymphoma in October 2019, he is 76 years old. He went through 5 months of chemotherapy (R-DHAP) and was deemed to be in remission from a PET scan. He was about to prep for stem cell transplant... however, they found some more
Hello!! I am writing on behalf of my dad. He was diagnosed with Mantle Cell Lymphoma in October 2019, he is 76 years old. He went through 5 months of chemotherapy (R-DHAP) and was deemed to be in remission from a PET scan. He was about to prep for stem cell transplant... however, they found some more
stonefilly
in
Non Hodgkin's Lymphoma Friends
4 years ago
Alopecia Areata triggered by pregnancy
Hi All, I'm currently 6 months pregnant and when I was 2 months, my hairdresser noticed a bald spot on my head. That bald spot turned out to become alopecia areata - in the next few months I've lost almost all of my hair and I'm now starting to loose my eyebrows and eyelashes, assuming it will become
Hi All, I'm currently 6 months pregnant and when I was 2 months, my hairdresser noticed a bald spot on my head. That bald spot turned out to become alopecia areata - in the next few months I've lost almost all of my hair and I'm now starting to loose my eyebrows and eyelashes, assuming it will become
Flowerflower
in
Thyroid UK
4 years ago
EMAIL from Professor Richard P Allen John Hopkins
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Dear Mrs Howard I was sad hearing about your travails getting treatment for RLS. Yes buprenorphine is one of the opioids used for refractory RLS with reasonably good results. It tends to get used after methadone is tried, but it is very effective in many patients. We have long term experience
Shumbah
in
Restless Legs Syndrome
4 years ago
Rheumatology 2nd appointment
I had my first rheumatology appointment earlier this month and had several blood tests, saliva test and schirmer's test done.I havent had results yet but I've recieved another letter today for another rheumatology appointment in October at a different hospital but at musco skeletal department,will this
I had my first rheumatology appointment earlier this month and had several blood tests, saliva test and schirmer's test done.I havent had results yet but I've recieved another letter today for another rheumatology appointment in October at a different hospital but at musco skeletal department,will this
Kels1974
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
flecainide
For sometime now I have been able to keep my AFIB under control with Nebivolol but today I have had a very fast and irregular heart beat again, I have taken a flecainide given as a PIP could anyone tell me how long they usually take to slow ones heart down,? with everything going on I have not been
For sometime now I have been able to keep my AFIB under control with Nebivolol but today I have had a very fast and irregular heart beat again, I have taken a flecainide given as a PIP could anyone tell me how long they usually take to slow ones heart down,? with everything going on I have not been
Florenceamelia
in
AF Association
4 years ago
Advice and help please
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
NIKKibailie
in
My Ovacome
4 years ago
Advice for clinic mix up
Dear ladies, hoping to seek advice for a situation with our private clinic. Sorry if this ends up long winded to explain but I’ll try to be concise and wondering where we stand. We tried to have a baby naturally for 2 years before discovering my partner had sperm issues after starting ivf tests. It
Dear ladies, hoping to seek advice for a situation with our private clinic. Sorry if this ends up long winded to explain but I’ll try to be concise and wondering where we stand. We tried to have a baby naturally for 2 years before discovering my partner had sperm issues after starting ivf tests. It
BettyBe
in
Fertility Network UK
4 years ago
Anyone had a bfp but literally no symptoms?
Now 5dp5pt, still no symptoms. This was a bad sign in cycle 1. I understand every cycle and every pregnancy is different. Second cycle I had af pains 5dp5pt resulting in bfp despite leading to mmc. Anyone had a bfp but literally ZERO symptoms?
Now 5dp5pt, still no symptoms. This was a bad sign in cycle 1. I understand every cycle and every pregnancy is different. Second cycle I had af pains 5dp5pt resulting in bfp despite leading to mmc. Anyone had a bfp but literally ZERO symptoms?
Jessy1280
in
Fertility Network UK
4 years ago
Very itchy rash all over body - help please!
Reaching out for help for my daughter. She has a very itchy rash all over her body- including soles of feet and palms of hands! What can she do for relief? She is taking antihistamine.
Reaching out for help for my daughter. She has a very itchy rash all over her body- including soles of feet and palms of hands! What can she do for relief? She is taking antihistamine.
Moomin8
in
NRAS
4 years ago
Caffeine or not ?
Hi everyone.. I'm experiencing another "bout" or "attack" of rls... So not sleeping due to being woken up most nights with restless legs.. So now lack of sleep to add to everything.. I usually take an extra iron tablet and extra magnesium one and magnesium gel on both legs... Eventually going back to
Hi everyone.. I'm experiencing another "bout" or "attack" of rls... So not sleeping due to being woken up most nights with restless legs.. So now lack of sleep to add to everything.. I usually take an extra iron tablet and extra magnesium one and magnesium gel on both legs... Eventually going back to
janland
in
Restless Legs Syndrome
4 years ago
Supplemented and retest, Still severely sick. Help please?
Supplemented for 6 months and retested. I appreciate if I can get some advice? 3 years on and still severely sick. I had a lot of great info on here and I took the advise, please can I ask for guidance. I supplemented with a Iggenus b complex 2x a day , meythlfolate 400 mg , better than your vit d
Supplemented for 6 months and retested. I appreciate if I can get some advice? 3 years on and still severely sick. I had a lot of great info on here and I took the advise, please can I ask for guidance. I supplemented with a Iggenus b complex 2x a day , meythlfolate 400 mg , better than your vit d
Yennn
in
Thyroid UK
4 years ago
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