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Experiences with
Mast cell activation syndrome (MCAS)
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Supplement to restore joint health
I’ve been buying this for my dog for quite a while for his joints and the webpage says it is for humans too so I thought I would try it. https://wedeliver.nz/products/efac I have been taking it at 3 per day for a while and I swear it is helping. So if you have sore achy body it might be worth a try
I’ve been buying this for my dog for quite a while for his joints and the webpage says it is for humans too so I thought I would try it. https://wedeliver.nz/products/efac I have been taking it at 3 per day for a while and I swear it is helping. So if you have sore achy body it might be worth a try
LAJ12345
in
Cure Parkinson's
3 years ago
Systemic sclerosis and vein
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Meds and rls
Was on pramipexole for over 15 years was up to 3mg. Have slowly tapered off of it and switched to a lower dose of requip hopefully don't have to deal with as many side effects mostly hypersexuality. My rls symptoms seem to be starting earlier in the day by 3 in the afternoon. Is it worth it to start
Was on pramipexole for over 15 years was up to 3mg. Have slowly tapered off of it and switched to a lower dose of requip hopefully don't have to deal with as many side effects mostly hypersexuality. My rls symptoms seem to be starting earlier in the day by 3 in the afternoon. Is it worth it to start
Usedtocook
in
Restless Legs Syndrome
3 years ago
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Hyperreflexia
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
Bellmore2089
in
Pernicious Anaemia Society
3 years ago
Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Ozark
in
PMRGCAuk
3 years ago
Getting there….🏃♀️
After dealing with cancer, radiotherapy , chemotherapy , a stem cell transplant & a total hip replacement less then 10mts ago - I have just completed week 6 & Run 2! The thought of catching COVID because of my health issues has kept me locked away for nearly 2yrs - getting back out there to run has helped
After dealing with cancer, radiotherapy , chemotherapy , a stem cell transplant & a total hip replacement less then 10mts ago - I have just completed week 6 & Run 2! The thought of catching COVID because of my health issues has kept me locked away for nearly 2yrs - getting back out there to run has helped
SunShineRae
in
Couch to 5K
3 years ago
Gabapentin not working as yet
Hi Ive been on gabapentin for 5 weeks now. I previously posted saying my doctor had prescribed 100mgs 3 times daily. I was advised on forum as I thought, that this dose was useless, and I'd be better taking at night and upping dose gradually. So I'm now to to 900mgs at night but still not seeing
Hi Ive been on gabapentin for 5 weeks now. I previously posted saying my doctor had prescribed 100mgs 3 times daily. I was advised on forum as I thought, that this dose was useless, and I'd be better taking at night and upping dose gradually. So I'm now to to 900mgs at night but still not seeing
Lizzybuz27
in
Restless Legs Syndrome
3 years ago
Transvaginal ultrasound scan
Hello, I had a transvaginal ultrasound scan today to look at my lining, general health and follicles today in preparation for my next ivf cycle. I had the scan on day 2, when the report has come back the report states multiple follicles! The ivf Centre want to know the amount and cannot believe it wasn
Hello, I had a transvaginal ultrasound scan today to look at my lining, general health and follicles today in preparation for my next ivf cycle. I had the scan on day 2, when the report has come back the report states multiple follicles! The ivf Centre want to know the amount and cannot believe it wasn
Tilly8135
in
Fertility Network UK
3 years ago
Moving from lyrica/clonazapam to methadone
I have had RLS for 25 years. In a couple weeks I will be transitioning from 400mg lyrica (at 4pm) and .5mg clonazapam (night time) to 5mg methadone. It took me over 6 months to get off 6mg er after 7 years of usage (2 years of this period I had nightly augmentation). Lyrica/clonazapam makes me walk like
I have had RLS for 25 years. In a couple weeks I will be transitioning from 400mg lyrica (at 4pm) and .5mg clonazapam (night time) to 5mg methadone. It took me over 6 months to get off 6mg er after 7 years of usage (2 years of this period I had nightly augmentation). Lyrica/clonazapam makes me walk like
Steino
in
Restless Legs Syndrome
3 years ago
Tocilizumab
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
MavisEllen
in
PMRGCAuk
3 years ago
Tocilizumab & Covid vaccine
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
Bachblues
in
PMRGCAuk
3 years ago
Buprenorphine Tablets
Regarding the request about knowledge of Buprenorphine tablets in India, I cannot help with that since I’m in the USA; however, I have two or three years of experience with Buprenorphine pain patches in the strengths of 5 mcg and 7.5 mcg per hour. Unfortunately, I have not found it useful in reducing
Regarding the request about knowledge of Buprenorphine tablets in India, I cannot help with that since I’m in the USA; however, I have two or three years of experience with Buprenorphine pain patches in the strengths of 5 mcg and 7.5 mcg per hour. Unfortunately, I have not found it useful in reducing
Pepper2012
in
Restless Legs Syndrome
3 years ago
Vaccines and CLL/SLL plus
Can people with CLL and an active SLL but also with other chronic conditions like
Mast
Cell
activation
syndrome
,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ?
Can people with CLL and an active SLL but also with other chronic conditions like
Mast
Cell
activation
syndrome
,CFS and Hashimoto take the Pfizer vaccine, along with multiple allergies to foods and medicines, could take the vaccine ?
CarmenLuisa
in
CLL Support
3 years ago
Senolytic combo Dasatinib + Quercetin
Nalakrats has in two major posts shared fascinating insights on senescence and senolytics, drugs that selectively clear senescent cells. I am most grateful to him for this, which set me off on a journey the results of which I sum up in this post. Senescence has also recently been well reported on by
Nalakrats has in two major posts shared fascinating insights on senescence and senolytics, drugs that selectively clear senescent cells. I am most grateful to him for this, which set me off on a journey the results of which I sum up in this post. Senescence has also recently been well reported on by
Purple-Bike
in
Advanced Prostate Cancer
3 years ago
Beta Hcg slow?
I stupidly went to have 2 blood tests after my positive hcg at A&E and now worried! It was 81 hours between the last 2 and the number doubled in 57.5 hours. Is that slow??? I will not go for more! 05/08 – 23:30 – 8pt (A&E): 181 10/08 – 8:30 – 13pt (private lab): 756 13/08 – 17:30 – 16pt (private lab
I stupidly went to have 2 blood tests after my positive hcg at A&E and now worried! It was 81 hours between the last 2 and the number doubled in 57.5 hours. Is that slow??? I will not go for more! 05/08 – 23:30 – 8pt (A&E): 181 10/08 – 8:30 – 13pt (private lab): 756 13/08 – 17:30 – 16pt (private lab
FrancyItaly
in
Fertility Network UK
3 years ago
31 year old facing AML fight.
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
NathaN89
in
Leukaemia Support
3 years ago
Advice dealing with chronic GVHD in the eyes and skin while trying to withdraw steroids
Hello everyone! I had a stem cell transplant last year and I am dealing with very uncomfortable Graft Versus Host Disease in my eyes and skin. The one in the eyes is the worse! I need to have drops every 10mins. Punctal ducts were helpful for three weeks only. I am waiting for some stem cell eye drops
Hello everyone! I had a stem cell transplant last year and I am dealing with very uncomfortable Graft Versus Host Disease in my eyes and skin. The one in the eyes is the worse! I need to have drops every 10mins. Punctal ducts were helpful for three weeks only. I am waiting for some stem cell eye drops
lifeafterSCT
in
MPN Voice
3 years ago
pregabalin for RLS and libido
Hi All I'm new here so first post so please forgive if I've not done this right and I hope I can post about this topic. I did try and search but can find limited information about the issue I am experiencing. I've recently started taking pregabalin after I tried ropinirole, for some reason ropinirole
Hi All I'm new here so first post so please forgive if I've not done this right and I hope I can post about this topic. I did try and search but can find limited information about the issue I am experiencing. I've recently started taking pregabalin after I tried ropinirole, for some reason ropinirole
Birdjross
in
Restless Legs Syndrome
3 years ago
Twin pregnancy
Hi everyone, so I found out a week ago that I'm having identical twins. It's looking as though they will be identical and share a placenta and sac. Last night the sickness went up a few levels. Any tips on twin pregnancies? How did you deal with the risks that you get bombarded with?
Hi everyone, so I found out a week ago that I'm having identical twins. It's looking as though they will be identical and share a placenta and sac. Last night the sickness went up a few levels. Any tips on twin pregnancies? How did you deal with the risks that you get bombarded with?
ashcar
in
Fertility Network UK
3 years ago
Beta HCG
Hi lovely people I have a question which answer you guys might have 😋 Iam 4 week 5 days pregnant with ivf frozen cycle I had my Beta HCG done on 14DPO and it came back 241 Second Beta was 18DPO which came back 1622 Iam a first time mom to be 🤞🏻 Was wondering if iam in the safe zone and could it
Hi lovely people I have a question which answer you guys might have 😋 Iam 4 week 5 days pregnant with ivf frozen cycle I had my Beta HCG done on 14DPO and it came back 241 Second Beta was 18DPO which came back 1622 Iam a first time mom to be 🤞🏻 Was wondering if iam in the safe zone and could it
hope_94
in
Pregnancy and Parenting Support
3 years ago
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