I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? Or maybe they just haven't got any research in their database yet?
Strikes me as a bit OTT - ME is usually triggered by a viral illness, most existing a/i disorders can be triggered by an illness amongst other things. Long Covid is the same, Why does it need special treatment? OTOH - hopefully the interest in it might help us but probably not in our lifetimes ...
There is a lot on Long Covid in the BMJ this week and I thought they have similar symptoms to me why are they allowed to make such a fuss and have special area in hospitals set up to look after anyone with Long Covid.
Probably because there are all of a sudden hundreds of thousands, probably millions, of people worldwide who have developed probably autoimmune condition from a novel virus. The rest of us have been quietly accumulating like a dripping tap, not a flood.
I'll probably get censored again so please just look on this as sharing a list of autoimmune conditions - did you know there were so many? - which was my intention.
I also read a really interesting item about how the medieval Plague caused genetic changes in the European population which made them more resistant to the Plague pathogen, but also gifted descendants with a greater tendency towards autoimmune conditions.
There are a number of sites which had articles on this research, October 2022. I read it on the NPR site someone shared on X formerly known as Twitter, but today the link I looked for didn't look right, so here is The Guardian:
The fuss that is made about Long Covid and provision of special clinics for them to be seen, funding for studies. special physio offers ... As you point out, there are millions of patients worldwide with autoimmune disease and we have been ignored or dismissed.
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