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Mast cell activation syndrome (MCAS)
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I’ve got a conditions called IgaNethropathy which is leading to a low Kidney Function, Ido suffer now with restless legs I’d say it’s my constant companion! I’ve been treated with 2x.5mg Ropinirole which does help but of course I can only take these i the evening but Restless Legs can strike any time
I’ve got a conditions called IgaNethropathy which is leading to a low Kidney Function, Ido suffer now with restless legs I’d say it’s my constant companion! I’ve been treated with 2x.5mg Ropinirole which does help but of course I can only take these i the evening but Restless Legs can strike any time
Signmaker1969
in
Restless Legs Syndrome
8 months ago
RLS Absence and Clarification
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
I have had RLS for over 25+ years, used and exhausted all the RLS medications, when neurologist prescribed methadone, five months ago. I am at 20 mg, twice nightly. About 3-4 weeks ago, the symptoms disappeared, and I am trying to figure it out, possibly the Group can help. I began taking the magnesium
vikkitennis
in
Restless Legs Syndrome
8 months ago
Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
3 months ago
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Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
3 months ago
Sapphire Clinics
Just arranged my first consultation with sapphire clinics tomorrow (Thursday) but starting to wonder if I've done the right thing. I've never actually read anywhere that THC /cannabis oil has helped anybody with their restless legs. At £50 for the consultation and £70-£100 for the oil it's money that
Just arranged my first consultation with sapphire clinics tomorrow (Thursday) but starting to wonder if I've done the right thing. I've never actually read anywhere that THC /cannabis oil has helped anybody with their restless legs. At £50 for the consultation and £70-£100 for the oil it's money that
Jezee
in
Restless Legs Syndrome
8 months ago
Tirosint
Its been 10.5 months since my thyroidectomy. I was at .69 TSH on levothyroxine 100 mgs a day with mega side effects. Doctors just switched me Tirosint 88 mgs a day. Am I to expect more serious changes, again. I lost my voice, got chubby, lost hair, aged, and more. Its been a life-changing experience
Its been 10.5 months since my thyroidectomy. I was at .69 TSH on levothyroxine 100 mgs a day with mega side effects. Doctors just switched me Tirosint 88 mgs a day. Am I to expect more serious changes, again. I lost my voice, got chubby, lost hair, aged, and more. Its been a life-changing experience
AuthorJAR
in
Thyroid UK
8 months ago
Making a new start.
You know the situation: it’s five in the morning and there’s no chance of sleep. I can’t be the only person who ends up writing for help because there is nothing else to do while waiting for the dawn. The story so far: initially, like many of you I took Pramipexole, which allowed me to sleep, although
You know the situation: it’s five in the morning and there’s no chance of sleep. I can’t be the only person who ends up writing for help because there is nothing else to do while waiting for the dawn. The story so far: initially, like many of you I took Pramipexole, which allowed me to sleep, although
Lineker
in
Restless Legs Syndrome
8 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
6 months ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
3 months ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
4 months ago
taking collagen
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
Curry55
in
My Ovacome
6 months ago
Biotin and ESR/CRP Testing
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Burroughs123
in
PMRGCAuk
8 months ago
Travel and Ibrance
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
I was diagnosed with MBC in June, 2023. I am on Ibrance and letrozole. My medical history is complicated by having had a donor stem cell transplant in 2018 for T cell lymphoma. My immune system was compromised from that but now with Ibrance I'm not sure what to expect in terms of traveling and
Artesa
in
SHARE Metastatic Breast Cancer
4 months ago
stem cell for et?
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
4 months ago
Heat pads
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
After getting rid of pramipexole using kratom, I continued on kratom as it turned out to be quite effective keeping the jittering down. I don't know if it is the cold weather or tolerance to kratom, but RLS is rearing it's ugly head again. The symptoms are disruptive but nothing like the horror I experienced
sigurdur
in
Restless Legs Syndrome
8 months ago
Newly Diagnosed with RSL and trying to get my head around it!
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
In the space of a week I have gone from a sane and active older lady to a sleep deprived zombie, unable to grasp how this diagnosis, which sounds relatively innocuous, is about to disrupt and change my life and I'm struggling to come terms with the prospect of living with what I can only describe as
Lettucenotforget
in
Restless Legs Syndrome
8 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
4 months ago
SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
4 months ago
Some good news
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Just to keep you all up to date. I have been on 50mg daily of Agomelatine, for depression, foe the padt month. I feel the best I have felt in years!. Severe restless legs are 75% better. Some nights I have no rls at all. Always good to have a good news story - especially for me after the last 6 months
Trish8433
in
Restless Legs Syndrome
8 months ago
Dry mouth and throat
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
veggiefan70
in
Fibromyalgia Action UK
8 months ago
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