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Mast cell activation syndrome (MCAS)
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Oxycodone OR Bupenerole
I have RLS and have been taking the hell tablet Pramipexole for over 20 years. I am now down to 2.5 tablets a day 0.088mg at night. I also take 20mg Oxycodone, one in the morning and one at night. My biggest problem at present is that at certain times of the day, I am fatigued to the point where I cannot
I have RLS and have been taking the hell tablet Pramipexole for over 20 years. I am now down to 2.5 tablets a day 0.088mg at night. I also take 20mg Oxycodone, one in the morning and one at night. My biggest problem at present is that at certain times of the day, I am fatigued to the point where I cannot
JoeR
in
Restless Legs Syndrome
8 months ago
Ferritin level
Hi all. I am a 74 year old man and I have had RLS for about 30 years. Resently it has become quite severe. I take .5mg of ropinirole at 7am, 12 noon, 5pm along with 480mg magnesium and at 8pm I take 1mg ropinirole along with 200 mg of gabapentin. I am having issues controling RLS and am unable to get
Hi all. I am a 74 year old man and I have had RLS for about 30 years. Resently it has become quite severe. I take .5mg of ropinirole at 7am, 12 noon, 5pm along with 480mg magnesium and at 8pm I take 1mg ropinirole along with 200 mg of gabapentin. I am having issues controling RLS and am unable to get
Hotrodder
in
Restless Legs Syndrome
8 months ago
Restless legs.
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
Trish8433
in
Restless Legs Syndrome
8 months ago
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Gum Restore Plus
Since taking Suboxone I have been reading a lot of articles concerning the damaging effects on tooth and gum. To say the least, I am worried about the toothless future in my old age. Fortunately I stumbled upon a product, Gum Restore Plus by Tierra Essential, It seems to address the problems relating
Since taking Suboxone I have been reading a lot of articles concerning the damaging effects on tooth and gum. To say the least, I am worried about the toothless future in my old age. Fortunately I stumbled upon a product, Gum Restore Plus by Tierra Essential, It seems to address the problems relating
halperinchen
in
Restless Legs Syndrome
8 months ago
How to use the prone position more efficiently
In a post on HealthUnlocked https://healthunlocked.com/rlsuk/posts/150167349/could-this-be-why-some-of-us-have-less-rls-while-sleeping-in-the-prone-position?responses=150181979&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response , it's mentioned that the prone position is
In a post on HealthUnlocked https://healthunlocked.com/rlsuk/posts/150167349/could-this-be-why-some-of-us-have-less-rls-while-sleeping-in-the-prone-position?responses=150181979&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response , it's mentioned that the prone position is
VladimirF
in
Restless Legs Syndrome
8 months ago
New member - Post ET MF (Australia)
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
I'm 42, married with six children, and I live in Australia. In 2013, I was diagnosed with CAL-R positive ET. I started taking aspirin and managed pretty well. After a spontaneous bleed in my right quadricep, it was discovered that I also had a genetic bleeding disorder, dysfibrinogenemia. After that
Hatchie
in
MPN Voice
2 months ago
Stem cell transplant (SCT) 15 months on
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
I'm now 15 months after my SCT and in my my recent review my figures are improving:WBC 4.0 HB 139 Neut 2.3, lymph1.12 and platelets 106 ( highest for a couple of years). I also had my CD4 lymphocytes measured and can now come off Acyclovir and pentamidine. Hooray! I hated those nebulisers. This leaves
Scaredy_cat
in
MPN Voice
2 months ago
stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
2 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
3 months ago
BUPROPION
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
Josana13
in
Restless Legs Syndrome
10 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
3 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
7 months ago
4 months post TT
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
Rfranzoni
in
Thyroid UK
8 months ago
Alternating cannabis and pramipexole
I've been prescribed pramipexole by sleep specialist and my doctor. They're following the Mayo algorithm so I have to do this before they'll consider opioids. I've tried pregabalin, etc without success. Starting pramipexole on .125mg, up to max .75mg. I'm too scared to take them due to potential augmentation
I've been prescribed pramipexole by sleep specialist and my doctor. They're following the Mayo algorithm so I have to do this before they'll consider opioids. I've tried pregabalin, etc without success. Starting pramipexole on .125mg, up to max .75mg. I'm too scared to take them due to potential augmentation
Rayme
in
Restless Legs Syndrome
8 months ago
Drug Holidays
I’m among the relatively fortunately RLS sufferers that along with gabapentin can get decent relief from a 5mg dose of oxycodone immediate release. However, I am very concerned about limiting my dependence to this drug due to its power and am determined to avoid having this dosage increased. I believe
I’m among the relatively fortunately RLS sufferers that along with gabapentin can get decent relief from a 5mg dose of oxycodone immediate release. However, I am very concerned about limiting my dependence to this drug due to its power and am determined to avoid having this dosage increased. I believe
Nikos64
in
Restless Legs Syndrome
8 months ago
looking for advice for RLS
Hi everyone, I am new here. Hoping to find relief for my RLS. I am located in the US. A bit of history, I’ve had RLS since about 2017. Started off moderate and was using cannabis for relief. Over time, symptoms got worse and smoking cannabis wasn’t working well. I then tried Kratom and got good relief
Hi everyone, I am new here. Hoping to find relief for my RLS. I am located in the US. A bit of history, I’ve had RLS since about 2017. Started off moderate and was using cannabis for relief. Over time, symptoms got worse and smoking cannabis wasn’t working well. I then tried Kratom and got good relief
Tbone87
in
Restless Legs Syndrome
8 months ago
Suboxone and Colonoscopy
Hi, I have been taking Suboxone (Buprenorphine and Naloxone) for almost 5 weeks now, but I am going to have colonoscopy on 14 of December. Does Suboxone interfere with anesthetics and narcotic given during the procedure? Do I need to stop taking it and how many days do I stop taking before the procedure
Hi, I have been taking Suboxone (Buprenorphine and Naloxone) for almost 5 weeks now, but I am going to have colonoscopy on 14 of December. Does Suboxone interfere with anesthetics and narcotic given during the procedure? Do I need to stop taking it and how many days do I stop taking before the procedure
halperinchen
in
Restless Legs Syndrome
8 months ago
Sitagliptin
Has anyone ever been prescribed sitagliptin for recurrent implantation failure? I had a biopsy in Coventry (Dr Brosens) as we’ve had 3 failed transfers with top embryos and it has shown results which are more in keeping with recurrent miscarriages (which I’ve never had, never had a positive test) rather
Has anyone ever been prescribed sitagliptin for recurrent implantation failure? I had a biopsy in Coventry (Dr Brosens) as we’ve had 3 failed transfers with top embryos and it has shown results which are more in keeping with recurrent miscarriages (which I’ve never had, never had a positive test) rather
Am93
in
Fertility Network UK
10 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
3 months ago
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