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Experiences with
Mantle cell lymphoma (MCL)
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Welcome to our new community!
Hi I'm Kate Gilbert and I'm the Chair of PMRGCAuk. We are delighted to be collaborating with HealthUnlocked on this new community This charity has only been going for a couple of years, but we are already making a difference to the lives of people with polymyalgia rheumatica and giant cell arteritis
Hi I'm Kate Gilbert and I'm the Chair of PMRGCAuk. We are delighted to be collaborating with HealthUnlocked on this new community This charity has only been going for a couple of years, but we are already making a difference to the lives of people with polymyalgia rheumatica and giant cell arteritis
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
Being treated for Splenic Lymphoma but positive for APS antibodies could it really be APS?
I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been diagnosed with Marginal Zone Splenic Lymphoma with strange infarcs (blood clots) on a giant spleen. Bone marrow biopsy reflected abnormal B-cells
I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been diagnosed with Marginal Zone Splenic Lymphoma with strange infarcs (blood clots) on a giant spleen. Bone marrow biopsy reflected abnormal B-cells
MerrittM
in
Hughes Syndrome APS Forum
13 years ago
home neb machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
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in
Asthma Community Forum
16 years ago
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Bone Marrow Transplants
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
Hidden
in
Asthma Community Forum
16 years ago
Is it life changing?........
Cancer has touched a number of family members throughout my life - not that long at 44, but it really affected me most when my Mother was diagnosed at 50 and died at 51. I must admit, it had a pretty profound affect on me and my family and although it was over 15 years ago it still remains with
Cancer has touched a number of family members throughout my life - not that long at 44, but it really affected me most when my Mother was diagnosed at 50 and died at 51. I must admit, it had a pretty profound affect on me and my family and although it was over 15 years ago it still remains with
PeterThomas
in
Tenovus
13 years ago
Hi.I have had WG for just over 4 years now. I have been on Rhituximab for just
over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information would be greatly appreciated. Thanks.
over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information would be greatly appreciated. Thanks.
jimny
in
Vasculitis UK
13 years ago
The role of gluten in baking
Understanding the role gluten plays is often the key to finding ways of overcoming it's absence. For example in a cookie- the role of gluten is to keep the cookie from falling apart, but it also adds texture. Those crispy edges in a chocolate chip cookie and the snap in a ginger snap, come from gluten
Understanding the role gluten plays is often the key to finding ways of overcoming it's absence. For example in a cookie- the role of gluten is to keep the cookie from falling apart, but it also adds texture. Those crispy edges in a chocolate chip cookie and the snap in a ginger snap, come from gluten
Adriana
in
Gluten Free Guerrillas
13 years ago
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