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Mantle cell lymphoma (MCL)
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Hastings Meet up
After a great start in November and December the Hastings group is looking forward to a successful 2016. If you would like to join us at a meeting please let us know. If you know of others in East Sussex or if you are visiting Hastings and would like to meet with others who have polymyalgia rheumatica
After a great start in November and December the Hastings group is looking forward to a successful 2016. If you would like to join us at a meeting please let us know. If you know of others in East Sussex or if you are visiting Hastings and would like to meet with others who have polymyalgia rheumatica
pennyw
Administrator
in
PMRGCAuk
9 years ago
Rituximab and bendamustine
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Hi all fellow cllers. Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone
Donegal
in
CLL Support
9 years ago
I had a few questions
My nan had sickle cell anaemia, she pasted away from it in 2003 aged 59, however now I am 17 turning 18 soon i wanted to look in to it abit more. As far as I know I understand that it's on my dads side. My dad has never been tested for it and only found out my nan had sickle cell anaemia shortly after
My nan had sickle cell anaemia, she pasted away from it in 2003 aged 59, however now I am 17 turning 18 soon i wanted to look in to it abit more. As far as I know I understand that it's on my dads side. My dad has never been tested for it and only found out my nan had sickle cell anaemia shortly after
Jasonfaram17
in
Sickle Cell Society
9 years ago
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Some Statistics regarding Large Vessel Vasculitis
Some statstics came through to us this morning so thought I would share them, but please do not shoot the messenger, I am just passing them on. There is estimated to be 1 new case of TAK (Takayasu Arteritis ) per million here in Europe per year. Average age of onset is 23 years. 50% of those diagnosed
Some statstics came through to us this morning so thought I would share them, but please do not shoot the messenger, I am just passing them on. There is estimated to be 1 new case of TAK (Takayasu Arteritis ) per million here in Europe per year. Average age of onset is 23 years. 50% of those diagnosed
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Daughter update
Well i have good news to tell you and that is she is HOME. The Drs. couldnt believe how quickly she has recovered from Stem Cell transplant. She has got to take it easy and rest not do anything. I have to take her for blood tests on Monday so fingers crossed nothing goes wrong. That all i have to tell
Well i have good news to tell you and that is she is HOME. The Drs. couldnt believe how quickly she has recovered from Stem Cell transplant. She has got to take it easy and rest not do anything. I have to take her for blood tests on Monday so fingers crossed nothing goes wrong. That all i have to tell
fastball
in
NRAS
9 years ago
Elevated LDH
Hello to all. I've been reading posts on the site for months and have found it so helpful. I was diagnosed with CLL two years ago and went through 6 cycles of BR. Now in remission, but my last blood test show an elevated LDH (328). My hemotologist has me coming back to retest in four months rather than
Hello to all. I've been reading posts on the site for months and have found it so helpful. I was diagnosed with CLL two years ago and went through 6 cycles of BR. Now in remission, but my last blood test show an elevated LDH (328). My hemotologist has me coming back to retest in four months rather than
margella
in
CLL Support
9 years ago
husbands blood results suggestive of PA?
My husband suffers from psoriasis, has had Hodgekins lymphoma in past with stem cell transplant and chemo, has underactive thyroid, sarcoidosis of the lungs, heart attack and by pass surgery. Now he is fatigued, depressed, forgetful and his blood results show B12 at 253 (180-1000) Folate at 4.7 (>4)
My husband suffers from psoriasis, has had Hodgekins lymphoma in past with stem cell transplant and chemo, has underactive thyroid, sarcoidosis of the lungs, heart attack and by pass surgery. Now he is fatigued, depressed, forgetful and his blood results show B12 at 253 (180-1000) Folate at 4.7 (>4)
gillsie
in
Pernicious Anaemia Society
9 years ago
Bloodwise news
The drug indications readmitted onto the CDF are: Ibrutinib for relapsed/refractory chronic lympocytic leukaemia and for relapsed/refractory
mantle
cell
lymphoma
Brentuximab for refractory systemic anaplastic lymphoma and for relapsed or refractory CD30+ Hodgkin lymphoma This marks a significant
The drug indications readmitted onto the CDF are: Ibrutinib for relapsed/refractory chronic lympocytic leukaemia and for relapsed/refractory
mantle
cell
lymphoma
Brentuximab for refractory systemic anaplastic lymphoma and for relapsed or refractory CD30+ Hodgkin lymphoma This marks a significant
Hidden
in
CLL Support
9 years ago
Weekly Paclitaxel protocol
Dear all, My mother (post surgery) is on the following adjuvant chemotherapy regimen: 1. Taxol - Paclitaxel (70mg/m2) weekly for 12 week. [This comes out to be paclitaxel 100mg weekly as her BSA is 1.48] 2. Herceptin - Trastuzumab 150mg (weekly) for 52 weeks. No prior anthracyclin or any other chemotherapy
Dear all, My mother (post surgery) is on the following adjuvant chemotherapy regimen: 1. Taxol - Paclitaxel (70mg/m2) weekly for 12 week. [This comes out to be paclitaxel 100mg weekly as her BSA is 1.48] 2. Herceptin - Trastuzumab 150mg (weekly) for 52 weeks. No prior anthracyclin or any other chemotherapy
anshul_15
in
Breast Cancer India
9 years ago
Question again
Hello I've been prescribed ferrous gluconate 130mg but it cant be given by any pharmacy near me and no doctors appointments till 13th January so I'm here too ask what vegetarian friendly iron can people suggest that will help bring up my ferritin from 8 please ive already been suggested solgar gentle
Hello I've been prescribed ferrous gluconate 130mg but it cant be given by any pharmacy near me and no doctors appointments till 13th January so I'm here too ask what vegetarian friendly iron can people suggest that will help bring up my ferritin from 8 please ive already been suggested solgar gentle
nettiboo1982
in
Thyroid UK
9 years ago
any advice on prednisolone for kids...
My 9 year old has ITP since he was one. So far no medication ,now at count of 7 heamatologist satrted giving predisolone, Im not sure if its helpful. I want to know what side effect it can cause. I've been told that bone marrow transplant is the only solution to this condition. I,m an Asian working
My 9 year old has ITP since he was one. So far no medication ,now at count of 7 heamatologist satrted giving predisolone, Im not sure if its helpful. I want to know what side effect it can cause. I've been told that bone marrow transplant is the only solution to this condition. I,m an Asian working
S38abcd
in
ITP Support Association
9 years ago
Plant-derived compound shows activity against Non Hodgkin Lymphoma (NHL). CLL is a NHL.
cell
lines Raji and Ramos; and the
mantle
cell
lymphoma
cell line MINO. : : Further investigation revealed that withaferin A [/i](in mice)[i] induces cell-cycle arrest, prompts apoptosis, inhibits NF-kB nuclear translocation, and reduces the expression of pro-survival signals in B-cell lymphomas.
cell
lines Raji and Ramos; and the
mantle
cell
lymphoma
cell line MINO. : : Further investigation revealed that withaferin A [/i](in mice)[i] induces cell-cycle arrest, prompts apoptosis, inhibits NF-kB nuclear translocation, and reduces the expression of pro-survival signals in B-cell lymphomas.
AussieNeil
Partner
in
CLL Support
9 years ago
Stem cell transplant
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Typicalmommy
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Brain Aneurysms, Brain Tumours & Stage 3 Non Hodgkins Lymphoma in less than 3 months....my carer, Husband and Father!
Zero support, mentally, or physically. His daughter, now 25 was diagnosed with 6cm Brain Aneurysm this time last year, and still recovering from coiling that has slowed the aneurysm a little. Yet, my hubby 47, is blanked, repeatedly told not to worry...it's doubtful my hubby, his daughter and his
Zero support, mentally, or physically. His daughter, now 25 was diagnosed with 6cm Brain Aneurysm this time last year, and still recovering from coiling that has slowed the aneurysm a little. Yet, my hubby 47, is blanked, repeatedly told not to worry...it's doubtful my hubby, his daughter and his
Claire71uk
in
Pain Concern
9 years ago
Possible genetic key in Diffuse Large B-cell lymphoma (DLBCL) may explain why some patients don't respond to treatment
Oxford researchers funded by the UK blood cancer charity Bloodwise, [i]"have found that high levels of shortened forms of a protein, known as FOXP1, in a patient's lymphoma cells enable the cancer to evade the immune system, potentially nearly halving survival rates for these patients"[/i]: http://www.medicalnewstoday.com
Oxford researchers funded by the UK blood cancer charity Bloodwise, [i]"have found that high levels of shortened forms of a protein, known as FOXP1, in a patient's lymphoma cells enable the cancer to evade the immune system, potentially nearly halving survival rates for these patients"[/i]: http://www.medicalnewstoday.com
AussieNeil
Partner
in
CLL Support
9 years ago
Variability in platelet count
I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day 85). I arbitrarily put a cubic polynomial through these data. https://www.desmos.com/calculator/x6fbswb2lq But the platelets are all over the
I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day 85). I arbitrarily put a cubic polynomial through these data. https://www.desmos.com/calculator/x6fbswb2lq But the platelets are all over the
Ramses
in
CLL Support
9 years ago
update on daughter
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
fastball
in
NRAS
9 years ago
CLL relapse and Bendamustine
Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that this drug is possibly going to be delisted in November. Please can anyone advise on an alternative if it is delisted or is it possible to get the
Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that this drug is possibly going to be delisted in November. Please can anyone advise on an alternative if it is delisted or is it possible to get the
Sara2013
in
CLL Support
9 years ago
MDS World Awareness Day today 25th October 2015
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Gforce1
in
CLL Support
9 years ago
Another new one
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Eagle5327
in
CLL Support
9 years ago
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