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Lynch syndrome
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Screening for Colorectal Cancer
* A genetic syndrome such as familial adenomatous polyposis (FAP) or hereditary non-polyposis colorectal cancer (
Lynch
syndrome
). For more information on screening for colon cancer and its prevention, please visit here: https://www.globalcca.org/learn/colorectal-cancer-screening
* A genetic syndrome such as familial adenomatous polyposis (FAP) or hereditary non-polyposis colorectal cancer (
Lynch
syndrome
). For more information on screening for colon cancer and its prevention, please visit here: https://www.globalcca.org/learn/colorectal-cancer-screening
GCCA-Survivor
Administrator
in
Colon Cancer Connected
19 days ago
All about Lynch Syndrome webinar - Monday 4 September
The project is working to improve the identification and management of
Lynch
Syndrome
, bridging the gap in testing and diagnosis of
Lynch
Syndrome
and supporting the early detection of cancer and access to personalised care.
The project is working to improve the identification and management of
Lynch
Syndrome
, bridging the gap in testing and diagnosis of
Lynch
Syndrome
and supporting the early detection of cancer and access to personalised care.
TheOvacomeTeam
Partner
in
My Ovacome
1 year ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
This session will feature Ovacome members Hilary and Sue, who will share their experiences of having a hereditary increased risk of ovarian cancer (
Lynch
syndrome
and BRCA).
This session will feature Ovacome members Hilary and Sue, who will share their experiences of having a hereditary increased risk of ovarian cancer (
Lynch
syndrome
and BRCA).
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
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What's on at Ovacome next week? (week commencing 4 September 2023)
Monday 4 September
- Coventry and Warwickshire ovarian cancer support group between 1pm - 2:30pm: https://www.ovacome.org.uk/Event/coventry-support-group - All about
Lynch
syndrome
webinar between 5:30pm - 6:30pm: https://www.ovacome.org.uk/event/all-about-
lynch
-
syndrome
Tuesday 5 September
Monday 4 September
- Coventry and Warwickshire ovarian cancer support group between 1pm - 2:30pm: https://www.ovacome.org.uk/Event/coventry-support-group - All about
Lynch
syndrome
webinar between 5:30pm - 6:30pm: https://www.ovacome.org.uk/event/all-about-
lynch
-
syndrome
Tuesday 5 September
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
Sacral insufficiency fractures
It also turned out there was a genetic element to my cancer -
Lynch
Syndrome
- which has now been thoroughly investigated. My children have been offered genetic testing and thankfully they have not inherited the gene!
It also turned out there was a genetic element to my cancer -
Lynch
Syndrome
- which has now been thoroughly investigated. My children have been offered genetic testing and thankfully they have not inherited the gene!
Poir
in
Pelvic Radiation Disease Association
10 months ago
Estimated Exposure to 6 Potentially Hepatotoxic Botanicals in US Adults
I want everyone to have the choice of trying anything they like - so long as they are fully informed and all information is readily accessible. Trouble is, a lot of information is hard to access for many reasons including language, paywalls, time, and having the required time and skills to get to the
I want everyone to have the choice of trying anything they like - so long as they are fully informed and all information is readily accessible. Trouble is, a lot of information is hard to access for many reasons including language, paywalls, time, and having the required time and skills to get to the
helvella
Thyroid UK
in
Thyroid UK
19 days ago
Hair loss and buprenorphine tablets?
As you all know I have been on low dose buprenorphine tablets for one year & I simply cannot believe I have been free of the dreaded RLS for 12 whole months after 40 years of suffering.However, as we have all discussed I am invariably wide awake during 🤨the night & by the afternoons I simply have to
As you all know I have been on low dose buprenorphine tablets for one year & I simply cannot believe I have been free of the dreaded RLS for 12 whole months after 40 years of suffering.However, as we have all discussed I am invariably wide awake during 🤨the night & by the afternoons I simply have to
Simkin
in
Restless Legs Syndrome
1 month ago
Travel w/Kevzara
Question for those using Kevzara: We’re going to be going on a couple of trips and I’m wondering how to deal with my used syringes. What they send me are not the pen type of injection, but a syringe that has ‘finger grips’ that are 1.5 inch wide. They don’t fit in all sharps disposal containers because
Question for those using Kevzara: We’re going to be going on a couple of trips and I’m wondering how to deal with my used syringes. What they send me are not the pen type of injection, but a syringe that has ‘finger grips’ that are 1.5 inch wide. They don’t fit in all sharps disposal containers because
79andCounting
in
PMRGCAuk
1 month ago
Is there any point applying for pip and can I drive
I wondered if anyone has applied for pip. My auto immune thyroiditis caused me to leave my career in nursing . As my intermittent brain fogs caused me to worry I would make a mistake . Thank fully I left before I did. I now find I can only work part time and I work from home 15 hours minimum wage .
I wondered if anyone has applied for pip. My auto immune thyroiditis caused me to leave my career in nursing . As my intermittent brain fogs caused me to worry I would make a mistake . Thank fully I left before I did. I now find I can only work part time and I work from home 15 hours minimum wage .
poppppy
in
Thyroid UK
1 month ago
907863
when I have a GCA flare 3 months later my hair comes out and grows back really dry and I cannt do anything with it . I went to a dermatologist who recommended , I take viviscal hair tablets ( not cheap) biotin tablets and then on prescription extrovex shsmpoo. Plus every other night I go to bed with
when I have a GCA flare 3 months later my hair comes out and grows back really dry and I cannt do anything with it . I went to a dermatologist who recommended , I take viviscal hair tablets ( not cheap) biotin tablets and then on prescription extrovex shsmpoo. Plus every other night I go to bed with
9077863
in
PMRGCAuk
1 month ago
Supplement overkill?
Hello, after my cancelled egg collection I am now going privately. During this time I’ve read ‘it starts with the egg’ and as I am 33 with an AFC of 4 and AMH of 3. something I started taking everything! Now I’m worried it is a bit overkill and also it’s really expensive. I know it’s hard for someone
Hello, after my cancelled egg collection I am now going privately. During this time I’ve read ‘it starts with the egg’ and as I am 33 with an AFC of 4 and AMH of 3. something I started taking everything! Now I’m worried it is a bit overkill and also it’s really expensive. I know it’s hard for someone
LauraKate30
in
Fertility Network UK
2 months ago
Aleve use for pain other than pmr
I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much
I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much
Linny3
in
PMRGCAuk
2 months ago
First night on Buprenorphine
So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed
So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed
Anthas
in
Restless Legs Syndrome
3 months ago
What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Jules1821
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
question
I started tapering prednisone 10 one day 5 the next for 4 weeks starting 25/6 and since Thursday all of my symptoms are back well my pleural effusion is definitely back with a vengeance. Could this be down to the reduction? Sorry my heads all over the place, my breathing hurts and I’m in so much pain
I started tapering prednisone 10 one day 5 the next for 4 weeks starting 25/6 and since Thursday all of my symptoms are back well my pleural effusion is definitely back with a vengeance. Could this be down to the reduction? Sorry my heads all over the place, my breathing hurts and I’m in so much pain
Numptybrain
in
PMRGCAuk
3 months ago
buprenorphine Patches For Fibromyalgia Head Hair Loss
Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards
Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of hair more like loose strands of hair. Anyone else having these issues etc I'm male by the way. Kindest Regards
Fibroguy66
in
Fibromyalgia Action UK
3 months ago
Suppressed TSH on combined therapy
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
redhead41
in
Thyroid UK
3 months ago
diagnosis finally
Apparently I have Pelvic Congestion Syndrome !!!! I’ll take it, if I can get some help 🙄 Anyone else have this? Shceduled for a Caudal epidural anytime soon.
Apparently I have Pelvic Congestion Syndrome !!!! I’ll take it, if I can get some help 🙄 Anyone else have this? Shceduled for a Caudal epidural anytime soon.
Aprilbaby24
in
Pelvic Pain Support Network
3 months ago
Lynch hell
I was diagnosed with HNPCC (
lynch
syndrome
) in 2003 and have been asking for a full historectomy since then, after repeated referrals from my GP I was eventually seen on 6th June 2023 only to be told I should have had it 20years ago and now the waiting list is 3 years minimum so will be nearly 60 I'm
I was diagnosed with HNPCC (
lynch
syndrome
) in 2003 and have been asking for a full historectomy since then, after repeated referrals from my GP I was eventually seen on 6th June 2023 only to be told I should have had it 20years ago and now the waiting list is 3 years minimum so will be nearly 60 I'm
Ashtonlan3
in
Lynch Syndrome UK
1 year ago
Interesting research
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Just saw this interesting research on DNA cause of inflammatory bowel disease, but they say it might also apply to autoimmune liver diseases. https://amp.theguardian.com/society/article/2024/jun/05/bowel-disease-hope-researchers-find-biological-pathway They hope treatments will be in use within 5
Readlots
in
British Liver Trust
4 months ago
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