Experiences with

Lynch syndrome

I've just revisited some of the Ovacome videos (accessed by a You Tube search or on their website) and there's a range of them that help explain things like HRD, Lynch syndrome, rare genetic changes, dealing with fatigue, hair care, speaking to family and children about the diagnosis.

* A genetic syndrome such as familial adenomatous polyposis (FAP) or hereditary non-polyposis colorectal cancer (Lynch syndrome). For more information on screening for colon cancer and its prevention, please visit here: https://www.globalcca.org/learn/colorectal-cancer-screening

I do have a bad gene from my dad called Lynch syndrome (msh6) that is why I’ve been getting tested. So I guess I’m lucky this was caught early and doctor says surgery should take care of it. On a happier note, I got a new doggie for Christmas.

This session will feature Ovacome members Hilary and Sue, who will share their experiences of having a hereditary increased risk of ovarian cancer (Lynch syndrome and BRCA).

I've avoided taking alendronate due to being high risk of stomach and throat cancer. My doctor wants me to try risedronate. Has anyone any experience of taking this?

Hi all. I want to record my many test results in a tracker to show current status and trends over time - I'm hoping this will help the right Doctor find the root cause of my issues. Does anybody have a good blank tracker that's already made that they'd be willing to share please? I'm good with excel

Hi everyone The question of oe or de is still tbc but id love your thoughts on pgta If we do go straight to DE our Dr in Spain said they don’t pgta test as the donor is younger than me (I’m 45) but the donor age is 35 and below. I won’t get told until day of transfer what their age is. This has left

basic info: 69 yr old female, Parkinson’s diagnosis Jan 2010. The first 7 yrs I lived close to OHSU in Portland OR and received excellent care. Then moved to a remote area 900 miles away with limited choice for PD care. A neurologist here but no movement specialist. The local hospital performs

happy to report that after all the stress & worry over hubby over the last few months re his spinal stenosis, and then all the hassle with the travel insurers last week, we’ve arrived at our gorgeous Singapore hotel en route for Melbourne and he’s doing really well! Well, he was, until he broke

hi, it has been a while since I posted on here, have had ra since I was 34 am now almost 70. I was told by my opthamologist that I had sjorgrens syndrome a number of years ago as I had problems with my eyes. Until recently I thought that condition was just dry eyes, but have recently seen vlogs on YouTube

Good Morning all, Hope you are all well. I am currently experiencing Sjögren symptoms, Dry eyes ,nasal passage , mouth and other areas, outside of eyes skin very dry,cracked and sore. I went to the optician who said my eyes were very dry and advised drops and heat packs, also to go to Dr for diagnosis

Hello everyone, Has anyone found Nifedipine or Minitran patches helpful for Raynaud's? And if you are using these, do you experience really bad side effects? 💚

This past year I have been suffering with an icy cold, sometimes wet feeling, and also burning like frostbite, in my legs and feet, especially the right hand side. It is worse when sitting. I have had a doppler test to check my blood flow is ok, tests for nerve damage, blood tests, and everything comes

I wanted to ask if anyone had to contemplate FET cycle that falls over Christmas? I had failed FET in January it took 12 months to reach this point because I decided to go attend RIF clinic but all the waiting time then treatment to hopefully deal with implant failure has meant my next cycle can start

Part of AI's response to "acetyl-l-leucine anxiety" Elevated lactate levels in the brain can occur with several neurological disorders, including anxiety, major depressive disorder, and Parkinson's disease. High levels of lactate can lower the brain's pH, which can affect neuronal activity and the

Bit of a random question. For the past few days I’ve had painful gums in one area, to the point where I went to the dentist today to get it looked at. She thinks it could be gum related and possibly due to additional hormones I’m taking. I was wondering whether anyone else has experienced this? I’ve

since having a total hysterectomy in 2019 for very early stage cancer which cured it I have developed nagging pain near the perineum which at times feels as if I’ve been kicked in that area. I also developed urge incontinence and changes to bowel function. Recently I saw a physiotherapist who specialised

I have had PBC since 2000 and coped well so it didn`t stop me doing anything I wanted to do. 10 years ago I was diagnosed with Sjogrens because of symptons I had at that time. 9 years passed without a worry but last year I started with Sjogren problems. It is now difficult to work out whether the issues

Hi I hope someone can help. I have been struggling a while, I had a scan which revealed thyroiditis and a small grade 2 cyst. Drs won't give me any support as bloods are normal. I went back again, after prodding and poking my neck which was uncomfortable suddenly I am on the pathway for throat cancer

Hi All, I just found out last week my first FET failed. I couldn't get my lining up above 6.3mm and the clinic were happy to go ahead as I had a lovely triple line and even during my egg collection my lining only made it to 6.8mm. I was taking pomegranate juice and l-arginine throughout to hopefully