Lynch Syndrome ?

[reconjj]

Hello Ladies and Gentleman ,

Im not only fighting my Stage 4 Oligo prostate cancer but just found out my 37 yr old Son has Lynch Syndrome . Lynch usually attacks the colon , but other organs as well including the Prostate . Im just mentioning this to see if anyone on our forum has prostate cancer from Lynch syndrom ? Thanks All , SemperFi , JJ

[Tall_Allen]

"Im not only fighting my Stage 4 Oligo prostate cancer ..." I thought you were cured, no? Is your PSA rising again? Didn't you only have cancer in -pelvic lymph nodes? "Oligo" usually refers to distant metastases.

"... but just found out my 37 yr old Son has Lynch Syndrome " I'm sorry to hear he has a genomic abnormality. Was that on a germline test? Do you have it too?

[reconjj in reply to Tall_Allen]

Hello Tall one , I stopped last 6 month injection Eligard Sept 2024 and last Zytiga , Pred . Sept 2024 . Still Hormone sensitive . Cure ? Who knows . Time will tell . Yes the Wife and me had genetic test and all variations came out negative . My Son had Sebaceous Carcinoma 20 yrs ago , it was a big pimple in his eye brau . Had Moes surgery , dug out all the cancer . Just had a colonoscopy all clear . Thats when we were told that he has Lynch . So now more testing . Thank You for the reply .

[reconjj in reply to Tall_Allen]

I had one tumor in a Pelvic lymph node , 3 high dose fraction , then 25 across the pelvic area . Oligo i thought was 3 or less tumors ? So is Oligo Distant ? Thanks Again . SemperFi , JJ

[Tall_Allen in reply to reconjj]

Oligo is a term usually reserved for distant metastases. Distant metastases are stage M1, pelvic lymph node metastases are stage N1. Sometimes "miN1" is used for pelvic lymph node metastases that are only detected on PET imaging, but not conventional (CT or MRI) imaging.

[garythomas]

I am also oligometastatic stage 4 and have Lynch syndrome. My mum died from colon cancer.

[j-o-h-n]

To reconjj,

As you well know: Reconnaissance is a mission to obtain information by visual observation or other detection methods, about the activities and resources of an enemy or potential enemy.

You and your son are in my thoughts and prayers...

Good Luck, Good Health and Good Humor.

j-o-h-n

[reconjj in reply to j-o-h-n]

Thank You John , God Help us All . SemperFi , JJ