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Durvalumab not working, based on Guardant 360 Tumor Response Map...
Hello All, I've been a frequent reader/follower of this discussion forum, albeit never poster (until now), but just want to let everyone know I'm very appreciative of all the technical advice and positive supportive messages that are shared on a daily basis here. I've finally decided to jump in and
Hello All, I've been a frequent reader/follower of this discussion forum, albeit never poster (until now), but just want to let everyone know I'm very appreciative of all the technical advice and positive supportive messages that are shared on a daily basis here. I've finally decided to jump in and
yenlilly
in
Lung Cancer Support
2 years ago
Sharing a video - ASCO 2022 highlights
Hi everyone The Lung Cancer Research Foundation ran a session yesterday to share the highlights of the major developments in lung cancer treatments presented at ASCO this year. ASCO is one of the major cancer conferences for researchers and doctors. I've posted the link here. Its an hour long and
Hi everyone The Lung Cancer Research Foundation ran a session yesterday to share the highlights of the major developments in lung cancer treatments presented at ASCO this year. ASCO is one of the major cancer conferences for researchers and doctors. I've posted the link here. Its an hour long and
sassassas
in
The Roy Castle Lung Cancer Foundation
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
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Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
Transplant Assessment over and out (almost)
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my
lung
transplant
assessment on Monday and Tuesday this week.
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my
lung
transplant
assessment on Monday and Tuesday this week.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Should I ask for a new assessment
I was diagnosed with terminal squamous cell lung cancer last October. My upper left lung had collapsed with a 10cm tumour and the tumour was blocking the lower lobe and caused it to overinflate. I had two sessions of palliative radiotherapy, one week apart, in Nov 21 to help keep the lower lobe functional
I was diagnosed with terminal squamous cell lung cancer last October. My upper left lung had collapsed with a 10cm tumour and the tumour was blocking the lower lobe and caused it to overinflate. I had two sessions of palliative radiotherapy, one week apart, in Nov 21 to help keep the lower lobe functional
ginkgo
in
The Roy Castle Lung Cancer Foundation
2 years ago
Life insurance
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Kidney2014
in
Kidney Transplant
2 years ago
Please join us tomorrow Tuesday, June 21st, Living Room
Hello, Please join us tomorrow, Tuesday, June 21st , for our Living Room discussion. We will have speaker Dr. Ross Camidge, from University of Colorado Cancer Center. Dr. Camidge will be speaking on "Targeted Therapies and their Role in Treating Lung Cancer " The conversation will be focused on how
Hello, Please join us tomorrow, Tuesday, June 21st , for our Living Room discussion. We will have speaker Dr. Ross Camidge, from University of Colorado Cancer Center. Dr. Camidge will be speaking on "Targeted Therapies and their Role in Treating Lung Cancer " The conversation will be focused on how
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Serious lung gvhd
Has anyone got any experience of serious complications with
lung
gvhd and very poor
lung
function post
transplant
Has anyone got any experience of serious complications with
lung
gvhd and very poor
lung
function post
transplant
su0906
in
Leukaemia CARE
2 years ago
Fluid around liver post transplant
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Craftynan
in
British Liver Trust
2 years ago
Comparison can be good for the soul...
I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly
I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly
Timberman
in
COPD Friends
2 years ago
No to transplant
As anyone ever said ‘no’ turned down a kidney transplant? Why?
As anyone ever said ‘no’ turned down a kidney transplant? Why?
Jfkh30
in
Kidney Disease
2 years ago
Lung Cancer diagnosis update
Hi everyone, Went for my appointment yesterday but was a bit disappointed coz my CT scan staging where not there. So have to wait until the doctor gets the results. So will keep you updated. Thanks to everyone for support. Xx
Hi everyone, Went for my appointment yesterday but was a bit disappointed coz my CT scan staging where not there. So have to wait until the doctor gets the results. So will keep you updated. Thanks to everyone for support. Xx
Pipido36
in
The Roy Castle Lung Cancer Foundation
2 years ago
What a week!
Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double
lung
transplant
. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision.
Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double
lung
transplant
. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision.
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Oxygen user and covid antivirals
(she hasn’t really been given any further guidance on it other than reading what’s on the gov app) I’m on oxygen and pre-assessment for double
lung
transplant
. I’ve since called my gp and they can’t tell me anything either. They will try to have a response for me tomorrow.
(she hasn’t really been given any further guidance on it other than reading what’s on the gov app) I’m on oxygen and pre-assessment for double
lung
transplant
. I’ve since called my gp and they can’t tell me anything either. They will try to have a response for me tomorrow.
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
I cannot stop gaining weight! Help
I am 2 1/2 years post kidney transplant. Before the transplant, I was extremely healthy and fit, ate all the right foods, (nothing processed), worked out daily, was a regular bike rider and hiker, etc. After my transplant, I went through 2 grueling years of rejection treatments which included lots
I am 2 1/2 years post kidney transplant. Before the transplant, I was extremely healthy and fit, ate all the right foods, (nothing processed), worked out daily, was a regular bike rider and hiker, etc. After my transplant, I went through 2 grueling years of rejection treatments which included lots
Norken
in
Kidney Transplant
2 years ago
Vaccinations for covid19 done after Transplant: if you got covid19, what were symptoms and outcome
My spouse had his transplant 3.5 yrs ago and we both received our covid19 vaccination/booster shots afterwards. If you got covid19, what were your symptoms and outcome. If you know how you got it, please share. We have been living very isolated for 3.5 yrs. We do not go into anyone's house or allow them
My spouse had his transplant 3.5 yrs ago and we both received our covid19 vaccination/booster shots afterwards. If you got covid19, what were your symptoms and outcome. If you know how you got it, please share. We have been living very isolated for 3.5 yrs. We do not go into anyone's house or allow them
Gardner-NY
in
Kidney Transplant
2 years ago
Things to keep in mind while taking Insurance for Post transplant patients in US?
Hello, what must be the things we need to consider to take insurance in US for post transplantation patients. ? I had my kidney transplantation successfully 16 months ago and I'm trying to move to US. So pls help me here.
Hello, what must be the things we need to consider to take insurance in US for post transplantation patients. ? I had my kidney transplantation successfully 16 months ago and I'm trying to move to US. So pls help me here.
PatientWhizbang
in
Kidney Transplant
2 years ago
My brother
Hi me again - my brother has started treatment- 2nd chemo & immunotherapy yesterday - he’s doing ok ish but his cough is getting worse & he’s exceptionally breathless - is it normal for that to happen ? He has to put the phone down because he gets so stressed. I’m flying in for his appointment with his
Hi me again - my brother has started treatment- 2nd chemo & immunotherapy yesterday - he’s doing ok ish but his cough is getting worse & he’s exceptionally breathless - is it normal for that to happen ? He has to put the phone down because he gets so stressed. I’m flying in for his appointment with his
Brianderrick12
in
The Roy Castle Lung Cancer Foundation
2 years ago
Driving After Transplant
How long after a kidney transplant before you can drive?
How long after a kidney transplant before you can drive?
frebusmaxwell
in
Kidney Disease
2 years ago
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