Search
Search
About
Log in
Join
Experiences with
Lung transplant
Posts
Communities
4,768 public posts
Filter results
Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
10 months ago
CBD; worth a try for pain relief..?
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
Just found out I need a kidney transplant
Hello, I just found out I need a kidney transplant. I developed kidney disease from taking a medicine that scarred and damaged my kidneys and they’ve just gotten worse and worse. After a biopsy, we discovered that my kidneys are even worse than the numbers show. I am so overwhelmed. My mom could possibly
Hello, I just found out I need a kidney transplant. I developed kidney disease from taking a medicine that scarred and damaged my kidneys and they’ve just gotten worse and worse. After a biopsy, we discovered that my kidneys are even worse than the numbers show. I am so overwhelmed. My mom could possibly
Spaghetto
in
Kidney Transplant
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Creatinine increasing
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
Hi I am 6 yers post kidney transplant non related living donor. My Cr has increased from a baseline of 1.0 to 1.7(3 mo ago) and today 2.4 My Tacro was elevated 3 months ago to 8.3, but now dropped to 6.1. Is this normal for a Cr? I am scared I am going into rejection. I am waiting to hear from
kidneymom09
in
Kidney Transplant
1 year ago
Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
11 months ago
Elevated creatinine from tacrolimus?
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
I am 19 months out from my kidney transplant from a deceased donor. Was doing well and my creatinine was actually within the normal range at about a year post transplant. However, since then my creatinine has been creeping up and now is 1.74. Have tried lowering my protein intake, and more hydration
Hawk12
in
Kidney Transplant Patient Support
1 year ago
Kidney Transplant help
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Hi everyone! Hope everyone is having a wonderful Sunday. I got a call from a gentleman who’s been trying to test as a living donor for me. Mayo Clinic has approved him. We are so excited, grateful, thankful, humbled and yet nervous at the same time. ****Can anyone tell me what they have experienced
Highgfr
in
Kidney Disease
1 year ago
Liver Transplant Assessment
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
I attended a two day liver transplant assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone. Eventually i got the call after waiting anxiously all day to say they had been to be busy to discuss my case and
Mitmab
in
British Liver Trust
1 year ago
Trying to Maintain Money and Mental Health
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
My spouse received a kidney transplant in November 2022. He was on dialysis for 18 months and also developed diabetic retinopathy which requires 5 surgeries prior to and after his transplant. He wants to work and going on disability would be terrible for his mental health. We are having trouble financially
Livi5072
in
Kidney Transplant
1 year ago
Severe reaction to immunotherapy
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
Hi My husband has mesothelioma and has been having immunotherapy (Ipilimumab and Nivolumab) every 3 weeks since early January this year. All was going well until last week when he had a severe reaction - diabetic ketoacidosis - and has been in hospital for a week while they try to stabilise his blood
toffeepudding
in
The Roy Castle Lung Cancer Foundation
1 year ago
question about brain aneurysm and transplant
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
When I was in my he hospital they found a 3mm maybe a little bigger aneurysm on left side of brain. I have had one aneurysm clip back in 1998 and 1999 I had a subarachnoid hemorrhage. I had a grandma seizure and super low blood pressure they took me off all blood pressure meds I was on. The neurologist
Beachgirl32
in
Kidney Transplant
1 year ago
Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get back pain. Doctor prescribed pain killers. After about 6 weeks, many blood tests, consultations and an MRI scan I was diagnosed with discitis
Graham49
in
Advanced Prostate Cancer
1 year ago
New diagnosis of hf
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Hi 1st post for me My brother had a heart transplant at 39 due to severe heart failure (he is now 2 years post op and doing amazingly) so I went to see to the Dr to get checked after his team suggested it. I'm 39 and just been diagnosed with hf, my ef is 32%, I am asymptomatic so far. I have been prescribed
Forrest14
in
British Heart Foundation
1 year ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
wound vac post kidney transplant anyone?
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
I am 3 weeks out from my living donor transfer. I had drainage the entire time from the staples. It was swollen and reddish. I now have a would vac. Anyone else with this experience? Thank you
LeslieK
in
Kidney Transplant
1 year ago
Black Outs and Assessment for st James Leeds Hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Hi Just a quick couple of question guys As anyone had blackouts who as been diagnosed cirrhosis NAFLD my Husband as suffered with with dizziness but on Monday he started having Blackout’s, also as anyone got any advice on what to expect at the Preassessment clinic at St James Leeds University hospital
Dobielove
in
British Liver Trust
1 year ago
Blip in Immunitherapy ?
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
Holepunch
in
The Roy Castle Lung Cancer Foundation
1 year ago
Anxiety between CT scans
Hi, I have an 8mm lung nodule found incidentally about 9 mins ago. I've had a 3 month scan and coming up on the 6 mos one to see if it's changed. I'm worried all of the time that they will find it's grown tremendously and then all that comes with that. My spouse is no longer supportive of me because
Hi, I have an 8mm lung nodule found incidentally about 9 mins ago. I've had a 3 month scan and coming up on the 6 mos one to see if it's changed. I'm worried all of the time that they will find it's grown tremendously and then all that comes with that. My spouse is no longer supportive of me because
Beadygrl
in
Lung Conditions Community Forum
1 year ago
Genetics - Children of Lung Cancer Patients
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
Hi all - I am a young mom who just underwent a lung wedge resection. I will be monitored for life, most likely - but I am wondering about my child. I have two EGFR mutations and am concerned about what this means for my son. Does anyone know much about testing younger patients -he is much too young now
JustBreathe82
in
The Roy Castle Lung Cancer Foundation
1 year ago
Diagnosed 5 months post Operation with Fluid on the lung. Is this normal & will it clear up? Should I be concerned?
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Hi everyone, I hope someone can help me understand my recent diagnosis. I'd a lower left lung lobectomy last November and recently had my follow up appointment which will be annually from now on. I was told by the registrar not the consultant that I'd fluid on my lung. I wasn't told anything more than
Eaglewings1
in
The Roy Castle Lung Cancer Foundation
1 year ago
1
...
21
22
23
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
870 results
British Liver Trust
715 results
The Roy Castle Lung Cancer Foundation
501 results
View top 10 communities
Sort by
Most Relevant
Newest