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Adrenaline
I have suffered from PMR for the last 3 years 10 months. I am now down to 2 mg of Pred, 1 at 3am ish and 1after breakfast. I recently asked my GP for a blood test for my Adrenalin levels as I didn’t feel a return of Adrenalin even though I am on a very low dose of steroids. It took 3 months to get the
I have suffered from PMR for the last 3 years 10 months. I am now down to 2 mg of Pred, 1 at 3am ish and 1after breakfast. I recently asked my GP for a blood test for my Adrenalin levels as I didn’t feel a return of Adrenalin even though I am on a very low dose of steroids. It took 3 months to get the
GrannyJane
in
PMRGCAuk
1 month ago
Should I expect a face to face follow up after lap surgery?
on the 17th of May I had diagnostic lap surgery. When I came round, the constant that performed the op came and showed me some pictures and chatted to me v briefly. I cannot remember much of the conversation. I was given a discharge letter that listed many issues (stage 4 endo) and a list of things that
on the 17th of May I had diagnostic lap surgery. When I came round, the constant that performed the op came and showed me some pictures and chatted to me v briefly. I cannot remember much of the conversation. I was given a discharge letter that listed many issues (stage 4 endo) and a list of things that
Bakewey
in
Endometriosis UK
1 month ago
New here please advise ☺️
Hello all, after multiple scans due to reoccurring ovarian cysts and general issues I have been informed by my dr that I have an endometomia i think it’s spelled somewhere around my left ovary as well as some other cysts and I have now been referred to gynaecology about this. I just wondered if anyone
Hello all, after multiple scans due to reoccurring ovarian cysts and general issues I have been informed by my dr that I have an endometomia i think it’s spelled somewhere around my left ovary as well as some other cysts and I have now been referred to gynaecology about this. I just wondered if anyone
Stitch1996
in
Endometriosis UK
1 month ago
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severe pain with no inflammatory markers
Hi everyone. Can anyone relate to this please? Briefly I had a surgery in early February and haemorrhaged afterwards. My left keg became very stiff and uncomfortable which quickly escalated to a limp, followed by severe pain and stiffness. I have seen four GP`s, rang Rheumatology seven times, referred
Hi everyone. Can anyone relate to this please? Briefly I had a surgery in early February and haemorrhaged afterwards. My left keg became very stiff and uncomfortable which quickly escalated to a limp, followed by severe pain and stiffness. I have seen four GP`s, rang Rheumatology seven times, referred
CecilyParsley
in
Behçet's UK
1 month ago
Knee replacement and Parkinson's
Husband with Parkinson's getting steadily worse now, particularly balance/walking. Diagnosed 5 years ago, probably had it 3/4 years previously. The problem is that he now needs total knee replacement for both knees. We have a very long awaited appointment with Neurology nurse in October to discuss
Husband with Parkinson's getting steadily worse now, particularly balance/walking. Diagnosed 5 years ago, probably had it 3/4 years previously. The problem is that he now needs total knee replacement for both knees. We have a very long awaited appointment with Neurology nurse in October to discuss
Jalia
in
Cure Parkinson's
1 month ago
Needing help
Hiya ladies my gynaecologist has finally agreed to surgery but needing to lose a Stone I've last 2 already but finding it hard to shift this last bit any suggestions ps not a big eater anymore could go through the day with just one meal. I'm thinking about just doing the shakes to replace the food instead
Hiya ladies my gynaecologist has finally agreed to surgery but needing to lose a Stone I've last 2 already but finding it hard to shift this last bit any suggestions ps not a big eater anymore could go through the day with just one meal. I'm thinking about just doing the shakes to replace the food instead
Mammyof2gals
in
Endometriosis UK
1 month ago
When Your AF Meds Crash the Pain Relief Party
I am currently on a waitlist for a total knee replacement (TKR) and have been diagnosed with paroxysmal atrial flutter/atrial fibrillation (AF/AFL). Before the surgery, I plan to have an in-depth conversation with the anesthesiologist regarding the strong pain medications (opioids) typically prescribed
I am currently on a waitlist for a total knee replacement (TKR) and have been diagnosed with paroxysmal atrial flutter/atrial fibrillation (AF/AFL). Before the surgery, I plan to have an in-depth conversation with the anesthesiologist regarding the strong pain medications (opioids) typically prescribed
FraserB
in
Atrial Fibrillation Support
1 month ago
DBS and it's benefits
My neurologist has recommended for DBS . As per the data ,I am informed that the success rate is 90%.Here also the neurologists are divided in two. Few says that medicine will continue even after DBS while other say no. I would request those who have been operated for DBS to share their actual experience
My neurologist has recommended for DBS . As per the data ,I am informed that the success rate is 90%.Here also the neurologists are divided in two. Few says that medicine will continue even after DBS while other say no. I would request those who have been operated for DBS to share their actual experience
MerckK
in
Cure Parkinson's
1 month ago
What's next?
Surgery, pelvic and prostate bed radiation. 2 years zytiga/lupron. PSA <0.04 for 2 years. Radiation oncologist agrees with 2 MO no scans till PSA rises. 2 MO say no more treatment unless PSA rises.What is best next treatment if needed? Nervous not being proactive.Both MOs agreed only 2 years lupron.
Surgery, pelvic and prostate bed radiation. 2 years zytiga/lupron. PSA <0.04 for 2 years. Radiation oncologist agrees with 2 MO no scans till PSA rises. 2 MO say no more treatment unless PSA rises.What is best next treatment if needed? Nervous not being proactive.Both MOs agreed only 2 years lupron.
rfgh20
in
Advanced Prostate Cancer
1 month ago
Randi Needs a Kidney
My name is Randi and I live in Maine. I have had kidney disease for many years. Over time my kidney disease has gotten worse, causing my kidneys not to work well enough to keep me alive. My treatments at this time are limited to dialysis or a kidney transplant. I have been on dialysis for some time now
My name is Randi and I live in Maine. I have had kidney disease for many years. Over time my kidney disease has gotten worse, causing my kidneys not to work well enough to keep me alive. My treatments at this time are limited to dialysis or a kidney transplant. I have been on dialysis for some time now
ravenrose
in
Kidney Donation
1 month ago
Nash & Gallbladder stone issue
I've diagnosed Nash. At present my blood level (Lft) are fine, but platelet 130, in this situation, any risk issue of gallbladder surgery regarding gallstone (9mm) by laparoscopy? Advance thanks for your valuable suggestion/opinion.
I've diagnosed Nash. At present my blood level (Lft) are fine, but platelet 130, in this situation, any risk issue of gallbladder surgery regarding gallstone (9mm) by laparoscopy? Advance thanks for your valuable suggestion/opinion.
selinabd24
in
Living with Fatty Liver and NASH
1 month ago
more joint issues
hello , has anyone on this wonderful platform needed an ankle fusion? My sub talar joint has collapsed and I have been recommended a fusion and repositioning of tendon. In the meantime I have been troubled by severe knee pain , X-ray was normal! However MRI shows a meniscal tear and stage 4 osteoarthritis
hello , has anyone on this wonderful platform needed an ankle fusion? My sub talar joint has collapsed and I have been recommended a fusion and repositioning of tendon. In the meantime I have been troubled by severe knee pain , X-ray was normal! However MRI shows a meniscal tear and stage 4 osteoarthritis
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
1 month ago
Not losing weight on an Atkins Diet- suggestions please
I am a 76 year old man. My BMI is in the stated range at 22 though I’m not sure the calculations for BMI at my age are valid or whether the tables factor in the variable and progressive muscle wasting of old age. I have very evident muscle wasting compared to my younger more active days which is normal
I am a 76 year old man. My BMI is in the stated range at 22 though I’m not sure the calculations for BMI at my age are valid or whether the tables factor in the variable and progressive muscle wasting of old age. I have very evident muscle wasting compared to my younger more active days which is normal
Hidden
Healthy BMI
in
Weight Loss Support
1 month ago
Is my chronic pain back? Need advice and someone to talk too.
Hi everyone. I have had surgery to remove endometriosis 13 weeks ago. I was pain free for 11 weeks and now for the past 2 weeks I’ve been in chronic pain everyday. Pelvis pain, Stabbing groin pain, burning aching legs and lower back pain into my bum. Has surgery not worked? What happens now? I’m terrified
Hi everyone. I have had surgery to remove endometriosis 13 weeks ago. I was pain free for 11 weeks and now for the past 2 weeks I’ve been in chronic pain everyday. Pelvis pain, Stabbing groin pain, burning aching legs and lower back pain into my bum. Has surgery not worked? What happens now? I’m terrified
EmilyKindon
in
Endometriosis UK
1 month ago
Endometriosis
I was diagnosed with endometriosis 2022 and I have been having internal breeding and severe pain periods, I went for treatment but it didn't help,last year I did womb removel on September, on January I went for MRI and they found out that I'm on stage 4 of endometriosis, I'm still waiting to go for surgery
I was diagnosed with endometriosis 2022 and I have been having internal breeding and severe pain periods, I went for treatment but it didn't help,last year I did womb removel on September, on January I went for MRI and they found out that I'm on stage 4 of endometriosis, I'm still waiting to go for surgery
Sasha8606
in
Endometriosis UK
1 month ago
New to this
I have just been diagnosed with endometriosis after having emergency surgery for a cyst on my Overy. They found I have severe deep rooted endometriosis which has stuck everything together including sticking my womb to my bowel. I don't know how how I am supposed to move forward with this diagnosis, they
I have just been diagnosed with endometriosis after having emergency surgery for a cyst on my Overy. They found I have severe deep rooted endometriosis which has stuck everything together including sticking my womb to my bowel. I don't know how how I am supposed to move forward with this diagnosis, they
Kelsab
in
Endometriosis UK
1 month ago
Carboplatin and Caelyx chemo combination
Hello everyone. Just wondering if anyone has had the combination of carboplatin and Caelyx for recurrence? I had review following scan this week and was told some recurrence in lymph nodes, pelvis and axillary. This wasn't a complete surprise as since finishing my treatment in February and starting niraparib
Hello everyone. Just wondering if anyone has had the combination of carboplatin and Caelyx for recurrence? I had review following scan this week and was told some recurrence in lymph nodes, pelvis and axillary. This wasn't a complete surprise as since finishing my treatment in February and starting niraparib
Bluedoor24
in
My Ovacome
1 month ago
Prostap Flare - how long?
hey team. looking for some reassurance and info. Did you flare after starting prostap and if so how long did it last? I’m on week four following my first injection and it’s been excruciating for the last 2.5 weeks. I’ve got low add back estrogen patches and a mirena coil, whilst waiting for colorectal
hey team. looking for some reassurance and info. Did you flare after starting prostap and if so how long did it last? I’m on week four following my first injection and it’s been excruciating for the last 2.5 weeks. I’ve got low add back estrogen patches and a mirena coil, whilst waiting for colorectal
PotatoSalad
in
Endometriosis UK
1 month ago
Mitral Valve Regurgatation
I was referred to cardiology in March 2024. I had an echocardiogram which showed I had moderate to severe mitral regurgatation. I was already getting breathless on excertion ,I have since had all the relative tests needed before surgery for repair to valve which could be done keyhole. I was told back
I was referred to cardiology in March 2024. I had an echocardiogram which showed I had moderate to severe mitral regurgatation. I was already getting breathless on excertion ,I have since had all the relative tests needed before surgery for repair to valve which could be done keyhole. I was told back
Earlybird7
in
British Heart Foundation
1 month ago
Episode
After pelvic floor surgery 9 days ago I have been in Afib diagnosed by feeling as well as my smart watch. The longest I have ever had it is two days. I am on Edoxabsn, candersatan and Bisoprolol. Should I just wait for it stop.
After pelvic floor surgery 9 days ago I have been in Afib diagnosed by feeling as well as my smart watch. The longest I have ever had it is two days. I am on Edoxabsn, candersatan and Bisoprolol. Should I just wait for it stop.
Croydegal
in
Atrial Fibrillation Support
1 month ago
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