New to this

[Kelsab]

I have just been diagnosed with endometriosis after having emergency surgery for a cyst on my Overy. They found I have severe deep rooted endometriosis which has stuck everything together including sticking my womb to my bowel. I don't know how how I am supposed to move forward with this diagnosis, they have said I will never have children too. Even though I didn't want anymore it was nice to have the option.. Can anyone share any help, advice tips on living with this

[KFitzWoof]

I’m so sorry. This sounds so painful both emotionally and physically. I don’t think there is much I can say other than you are not alone in this. So many women on here are going through the same or similar. I’m currently awaiting the full results of my laparoscopy from a week ago but my ovaries, womb and bladder are pretty battered from looking at the photos… I’d suggest joining this support group, getting therapy and reaching out to loved ones. I find writing poetry or drawing helps me cope with all the bad juju from endometriosis. Sending you all the well wishes and good juju xx

[Kelsab in reply to KFitzWoof]

Thank you for you reply. I am just in shock. I never expected this from what I thought was either really bad trapped wind or my appendix.. I am looking into it all as I don't know much about it all. Thank you and we'll wishes to you too. X

[Chartolfrey]

This forum is amazing for advice and support. I was told after surgery in jan ive got endo, ado, endemetriomas, fibroids, ovaries stuck to my bowel. Ive now gotta wait from may 12-18 months for full hysterectomy. Its a long and can feel lonely journey but reach out to love ones for support. I found therapy helped. Keep pushing the drs/hospital for updates

[Reena_123]

Hi,

I think a surgery to remove some endometriosis but the problem is it’s next to your bowel so that’s a bit risky I had my endometriosis for the last 10 years I have suffered so much pain but I was booked in for laparoscopy but I decided not to go forward as it carried some risks.

[Kelsab in reply to Reena_123]

What have you decided to do instead if the surgery?

[Sunset-lady]

I have this - it's all stuck. I'm 51, no children and they tried to do a hysterectomy but abandoned it because I would need an endo specialist and a bowel resection. I have been advised against surgery due to the danger around the bowel and the fact I could have a stoma for life. If it's not causing you pain then you don't need to opt for surgery:you can monitor it or go on Zoladex or Prostrap. You can also change your diet to help with symptoms and take supplements too. Exercise and sleep are also important. It's a shock to find out that your organs are stuck together but at least you know and you can adapt and make changes to support yourself. Good luck xxx

[Kelsab in reply to Sunset-lady]

It's such a hard situation to come to terms with. I am in so much pain all the time and I really don't want to be on medication all the time either. I've had so much I've that over the years with various other health issues so I want to stay away from as many medications as I can. I will do my research once I'm out of hospital and see what my options are. Thank you so much and good luck with xx

[BloomingMarvellous]

It’s going to take awhile to come back to a sense of balance so first just be kind to yourself. I panicked and froze and grieved all in a jumble for a bit before I started to be able to think straight about any of it and I think that’s pretty normal response.

There’s lots of approaches and theories out there so it’s easy to overload. Whatever you chose to do or not just try a small thing a bit at a time. Everyone’s Endo and needs are different. The complete opposite can work for different sufferers. So trust yourself implicitly. Am a medic and nutritionist so I found my way through a maze working with what was my way and a lot is out there corroborating what I ended up doing. I felt my way forward. However if I were in your shoes this would have been a great help in short circuiting all the research : Heal Endo book by Katie Edmonds. She has an insta account of the same name. Start there and remember to breathe. ♥️

[Kelsab in reply to BloomingMarvellous]

Thank you so much for your message. I'm finding it all so overwhelming. I received my MRI appointment today and it's soon which means the potential surgery will be soon too but I'm just lost with what to do. I know I can't live with this pain forever either. I just feel so low and don't know where to turn. I have started to think I'm just overreacting.

[BloomingMarvellous]

you’re not ! It’s a real thing and takes time to adjust.