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Re Introduction Hi everyone
disease
(this had to be prescribed through Wythenshawe Hospital & not through my specialist at North Manchester General Hospital where I ususally go Recently I persuaded my specialist to consider me for an assessment for a lung transplant -took me ages but eventually relented.
disease
(this had to be prescribed through Wythenshawe Hospital & not through my specialist at North Manchester General Hospital where I ususally go Recently I persuaded my specialist to consider me for an assessment for a lung transplant -took me ages but eventually relented.
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
5 months ago
Appointments
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial
lung
pneumonitis /hypersensitivity spectrum interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial
lung
pneumonitis /hypersensitivity spectrum interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
ProudYorky
in
Living with Interstitial Lung Disease (ILD)
2 months ago
sleeping
I have just learned how important sleep is for
lung
disease
. For 2 nights in a row I did not sleep well. On the 3rd night my breathing was so bad and had been all day. I actually fell asleep sitting up and didn’t wake until 5 in the morning and I’d left the light on.
I have just learned how important sleep is for
lung
disease
. For 2 nights in a row I did not sleep well. On the 3rd night my breathing was so bad and had been all day. I actually fell asleep sitting up and didn’t wake until 5 in the morning and I’d left the light on.
Osha
in
Bronchiectasis Support
6 months ago
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Calcified vessels
I have
lung
disease
and get chest pains when walking and also fast heart rate for which I am waiting for a 24 hour heart monitor. Any advise appreciated
I have
lung
disease
and get chest pains when walking and also fast heart rate for which I am waiting for a 24 hour heart monitor. Any advise appreciated
sueysue
in
British Heart Foundation
8 months ago
First Time With Aspergillosis
MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds,
Lung
disease
Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due to my mitochondrial disorder.
MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds,
Lung
disease
Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due to my mitochondrial disorder.
Diffuse_Confuse
in
Aspergillosis and Rare Fungal Infection Support
24 days ago
Cotton fibre
Does anyone know of anyone who has suffered through
lung
disease
caused by working in the textile industry,byssinosis, copd.
Does anyone know of anyone who has suffered through
lung
disease
caused by working in the textile industry,byssinosis, copd.
UptheTicks
in
Lung Conditions Community Forum
11 months ago
I Still haven’t been diagnosed but feel really bad
hello After lots of back and forth at the Dr’s and various hospital departments. haematology found me to have a raised eosinophilia level and asked for me to be referred to the allergy clinic they referred me back to ENT with a suspected fungal
lung
disease
, ENT found my frontal and ethmoid sinus
hello After lots of back and forth at the Dr’s and various hospital departments. haematology found me to have a raised eosinophilia level and asked for me to be referred to the allergy clinic they referred me back to ENT with a suspected fungal
lung
disease
, ENT found my frontal and ethmoid sinus
Sara128
in
Aspergillosis and Rare Fungal Infection Support
3 months ago
Please join INHERIT Study
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Join the INHERIT Study to help us better understand the genetic risk for lung cancer, and what can be done for prevention and treatment. Our goals are to learn more about: -Inherited or genetic risk for developing lung cancer in certain people or families -Changes in lung cancer tumors in people with
Miranda_GO2
Partner
in
Lung Cancer Support
10 days ago
Aspergillus post lung transplant.
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Mrbojangles
in
Lung Conditions Community Forum
12 days ago
Bronchoscopy
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
nyla668
in
Lung Conditions Community Forum
26 days ago
A BIG THANKYOU To All
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
primrose71
in
Lung Conditions Community Forum
1 month ago
Exercise post surgery
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
GGoyster
in
The Roy Castle Lung Cancer Foundation
1 month ago
gabapentin
I had a lung operation in January to remove dead tissue ( left lobe). I was prescribed gabapentin capsules but whenever I take them I have shortness of breath my chest feels a little tight and also I feel like I want to cough. I stop taking them and things start to settle down again especially after
I had a lung operation in January to remove dead tissue ( left lobe). I was prescribed gabapentin capsules but whenever I take them I have shortness of breath my chest feels a little tight and also I feel like I want to cough. I stop taking them and things start to settle down again especially after
AllyB27
in
Lung Conditions Community Forum
1 month ago
lung transplant discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
horseygirl_0103
in
Lung Conditions Community Forum
1 month ago
Lung cancer
Diagnosed with lung cancer very high in lung, Doctor says it's very difficult to get for biopsy, and then tells me that as I weigh 130 kg I might not be suitable for radiotherapy, is this right?
Diagnosed with lung cancer very high in lung, Doctor says it's very difficult to get for biopsy, and then tells me that as I weigh 130 kg I might not be suitable for radiotherapy, is this right?
Marydoll55
in
The Roy Castle Lung Cancer Foundation
1 month ago
Lung Transplantation
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
mrblue12
in
Lung Conditions Community Forum
1 month ago
EGFR p.L747_T751de
Hi, Dad’s oncologist has stopped the Erlotinib as last scan in Jan showed tumour growth. Private Liquid biopsy result just back, mutation EGFR p.L747_T751de. No treatment offered by NHS, oncologist thinks will be more harmful to dad but how does he know for sure? I read some PubMed data that restarting
Hi, Dad’s oncologist has stopped the Erlotinib as last scan in Jan showed tumour growth. Private Liquid biopsy result just back, mutation EGFR p.L747_T751de. No treatment offered by NHS, oncologist thinks will be more harmful to dad but how does he know for sure? I read some PubMed data that restarting
Adaughter
in
The Roy Castle Lung Cancer Foundation
2 months ago
Please join us next Tuesday, March 19th for our Small Cell Lung Cancer Treatment Landscape Living Room
Hello, Please join us in our San Carlos office next Tuesday March 19th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jared Weiss, MD, Professor of Medicine, Section Chief of Thoracic and Head/Neck Oncology at University
Hello, Please join us in our San Carlos office next Tuesday March 19th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jared Weiss, MD, Professor of Medicine, Section Chief of Thoracic and Head/Neck Oncology at University
Michelezeh
Partner
in
Lung Cancer Support
2 months ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
disease
or heart disease.
disease
or heart disease.
lankisterguy
Volunteer
in
CLL Support
10 months ago
Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
Gingergus
in
The Roy Castle Lung Cancer Foundation
2 months ago
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