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PSA rise
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
konichiwa12
in
Advanced Prostate Cancer
5 months ago
new and looking for resources Stage 4 metastatic. Gleason 9
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
Sunnysailor
in
Advanced Prostate Cancer
5 months ago
Advice with Graves Disease
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
CharlieUK
in
Thyroid UK
5 months ago
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high liver enzymes
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Dna4christ
in
Liver4Life
5 months ago
Adrenal tumour - anyone here with experience with it?
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Incoguto
in
Thyroid UK
5 months ago
Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
5 months ago
Not PCa related but sounds like a very promising approach
When I read "advanced pancreatic cancer" and "overall disease control of 94%" in the same document...I feel like smiling.... https://ascopost.com/news/april-2024/advanced-pancreatic-cancer-oncolytic-virus-based-immunostimulatory-gene-therapy-plus-chemotherapy/
When I read "advanced pancreatic cancer" and "overall disease control of 94%" in the same document...I feel like smiling.... https://ascopost.com/news/april-2024/advanced-pancreatic-cancer-oncolytic-virus-based-immunostimulatory-gene-therapy-plus-chemotherapy/
Maxone73
in
Advanced Prostate Cancer
3 months ago
Do I have Graves disease?
After being diagnosed with Thyrotoxicosis and medicated with Carbimazole and Propranolol, they finally did the Thyroid Antibodies test. They said I have hyperthyroidism, likely caused by Graves disease. I have symptoms of Thyroid Eye Disease. My results came back in range! So, do I not have Graves disease
After being diagnosed with Thyrotoxicosis and medicated with Carbimazole and Propranolol, they finally did the Thyroid Antibodies test. They said I have hyperthyroidism, likely caused by Graves disease. I have symptoms of Thyroid Eye Disease. My results came back in range! So, do I not have Graves disease
Opposite
in
Thyroid UK
5 months ago
Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
5 months ago
Not like a research from Johns Hopkins, but let's consider it
"Florida Atlantic University's Schmidt College of Medicine and collaborators are the first to demonstrate in vivo the chemo-preventive properties of alpha-santalol against prostate cancer development using a transgenic mouse model." https://www.news-medical.net/news/20240213/Study-demonstrates-chemo-preventive-properties-of-alpha-santalol-against-prostate-cancer-development.aspx
"Florida Atlantic University's Schmidt College of Medicine and collaborators are the first to demonstrate in vivo the chemo-preventive properties of alpha-santalol against prostate cancer development using a transgenic mouse model." https://www.news-medical.net/news/20240213/Study-demonstrates-chemo-preventive-properties-of-alpha-santalol-against-prostate-cancer-development.aspx
Maxone73
in
Fight Prostate Cancer
5 months ago
Third Perianal Abscess Drainage
I just had my third Perianal Abscess drained in an operation. I was diagnosed with Crohn's last year. I have fistula's that haven't closed so they put a Seton in during this operation. I'm wondering what suggestions people might have for diet and how to avoid getting another abscess. It's incredibly
I just had my third Perianal Abscess drained in an operation. I was diagnosed with Crohn's last year. I have fistula's that haven't closed so they put a Seton in during this operation. I'm wondering what suggestions people might have for diet and how to avoid getting another abscess. It's incredibly
MrNewfie17
in
Crohn's and Colitis Support
5 months ago
Newbie to this community and wondering about B12 deficiency
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Hello, for the past 4 years I've had symptoms of CFS, plus low FT4 and on occasions, low TSH. I've also had my cortisol tested by saliva and short synacthen test, both showed low levels but the adrenals work when stimulated so it's not Addisons. I've tried levothyroxine, T3 and thyroid glandulars and
Jamima
in
Pernicious Anaemia Society
5 months ago
What category of Intermediate Risk Am I?
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
I am trying to make a decision regarding HT with RT. I am 78. I have CKD 3b, and a solitary kidney. I am 6.5 years in remission from UTUC kidney cancer. A number of papers indicate that HT could be detrimental to my kidney. Those with FIR PCa could avoid HT with little risk. The following is defined
Nordman
in
Advanced Prostate Cancer
5 months ago
Hemodialysis question
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
I did PD from Feb 2023 to July 2023 when it failed and sent me to hospital. In August they put a chest catheter in and I started hemodialysis. After 3 treatments it cleared up the problems I was having on PD. At first I was doing Tues, Thur, and Sat in center for 3 hours and 15 minutes. My kt/V was
horsie63
in
Kidney Dialysis
5 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
5 months ago
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Any comment on cortisol/aldosterone results please
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
Hi all, I've just received my results of a private blood test from Inuvi. Could anyone comment as to if they look like a problem I need to attend to or not? Thanks in advance. Aldosterone Serum/Plasma # * 156.0 pmol/L Cortisol (Serum) ** 147.0 133 - 537 nmol/L Cortisol Reference range 6-10am: 133
PotatoFan
in
Thyroid UK
5 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
5 months ago
Phosphorous questions
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
I have been on home hemo now for almost four months. My phosphorous has steadily increased. I never had issues with Phos until dialysis. They have put me on Sevelamer binder, which totally cemented me up, when I took two a day. I mean in pain constipation. I backed off to one a day, when they wanted
Bassetmommer
in
Kidney Dialysis
5 months ago
how often for a Fibroscan
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
Someone recently asked how often she should get a fibroscan or a MRE ( a more sophisticated scan). In Dr. Jones' book he says after getting one usually upon diagnosis for a baseline, most have one repeated every 1-5 years depending on how active or aggressive the disease is. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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